
UK charity supporting families affected by heart muscle disease. For free specialist advice, freephone 0800 018 1024 or email [email protected].
Joined March 2009
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We are no longer active on X and our account will no longer be monitored. To keep up to date, follow us on Facebook, Instagram or LinkedIn. Alternatively, our website is full of useful information:
📲 cardiomyopathy.org
Research reveals why hypertrophic #cardiomyopathy may be underdiagnosed in women.
theguardian.com/science/2025… Learn more: bit.ly/3WdhhJb #HCM
From all of us here at Cardiomyopathy UK, we want to wish you and your loved ones a safe and happy Christmas! ❤️🎄
❤January Support Group Meetings💚
🌐cardiomyopathy.org/support-g…
📩[email protected]
(PLUS Coffee & Catch Up Fridays at 2pm!)☕️💌
#cardiomyopathy
We have a new podcast called ‘Cardiomyopathy Conversations’ with Cardiomyopathy UK Trustee Libby Jarman! 🎙️❤️
In the opening episode, Libby talks to Professor Perry Elliott about all things cardiomyopathy. 🩷💬
Follow the link below to listen:
📲 buff.ly/3BlZB6V
Exciting news! 🎉 In 2025, we’ll begin funding research into cardiomyopathy to create a future where everyone with the condition can live a long, fulfilling life. ❤️ Learn more about this milestone and how you can get involved:
📲 buff.ly/4il2UM2
❤ Cardiomyopathy UK December Support Group Meetings ❤️
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For more information :
🌐cardiomyopathy.org/support-g…
📨[email protected]
(PLUS Coffee & Catch Up every Friday at 2pm!)
#cardiomyopathy 💌
UK study shows that dilated #cardiomyopathy can be caused by the cumulative influence of hundreds or thousands of genes, not just by a single faulty gene 🧬 news-medical.net/news/202411… #DCM
We hosted our #CardioConference 2024 on Saturday, and what an incredible day it was!❤️
We want to say a huge thank you to everyone who attended, volunteered, and spoke.🌟
The talks will be on YouTube in early 2025. Join our mailing list for updates:
📲 cardiomyopathy.org/stay-touc…
Cardiomyopathy UK retweeted
Such a great day of talks at the @Cardiomyopathy conf in London. I talked about how #ACT can help people with cardiomyopathy & shared the progress we've made together this year. Looking forward to more of this in 2025 ♥️
Cardiomyopathy UK retweeted
Thank you @Cardiomyopathy for asking myself & @Emma_OMalley to speak at the National Conference 2024 on Genetics & Family Planning. It was an honour & fantastic opportunity to touch base with patients & colleagues; bring on 2025 & further collaboration #cardiogen @theAGNC @RBandH – at Wandsworth, London
Cardiomyopathy UK retweeted
We are working together to improve lives of Cardiomyopathy patients!! – at Croydon, London
Just great to meet @stephanie2453 at @Cardiomyopathy and to be invited to talk about cardiac tests. A super opportunity to meet and discuss with patients and professionals and about all we do… so nice to see some of my ☺️ patients in the audience looking great 😁
Cardiomyopathy UK retweeted
if you have cardiomyopathy or myocarditis (or have a family member with cardiomyopathy) and you're interested in joining the Heart Hive - thehearthive.org
Just give us some basic details and we'll connect you with research. It's up to you which you take part in!
Cardiomyopathy UK retweeted
Back to this platform after years of forgetting I have an account ☺️ I was in London today and am so proud to have been awarded the Carolyn Biro award with @Cardiomyopathy 💖 Mum, Tilda and I have had the best day 💖 I am so thankful x
Cardiomyopathy UK retweeted
A fantastic day @Cardiomyopathy conference raising awareness of #PPCM to help save mothers’ lives.
✨Please share to spread the word and encourage others to take the #PPCMPledge✨
Replying to @mwrebeccajarman
@mwrebeccajarman is at the #CardioConference today giving a talk on peripartum cardiomyopathy (PPCM) and the #PPCMPledge
Learn more:
📲 cardiomyopathy.org/about-car…
Cardiomyopathy UK retweeted
An excellent day at the Cardiomyopathy UK National Conference 2024! Lovely to see so many people interested in the Heart Hive’s mission to open up research to more people with #cardiomyopathy and #myocarditis
Cardiomyopathy UK retweeted
Another fantastic @Cardiomyopathy conference! 👏👏👏
Gr8 to learn & meet w/ fellow trustees, staff, volunteers, members & nurses ☺️
Pls never feel alone if you are impacted by #cardiomyopathy-we are here for you! 🤗
Cardiomyopathy UK retweeted
@Cardiomyopathy CEO @joel_d_rose closing a fantastic patient conference. Fantastic day meeting with people affected by the condition and sharing the work of the charity. 👇👇👇
Cardiomyopathy UK retweeted
Very honoured to have Dr Henry Savage (@savodoc) present on Devices & Surgery.
A packed room for a really interesting and insightful session ❤️🩺
#cardiomyopathy #cardioconference
Our President Professor Perry Elliott & Trustee @libbyjarman perfectly positioned to promote their new ‘Cardiomyopathy Conversations’ podcast 🎙️❤️
Keep an 👁️ on our social media accounts for more details…
#cardiomyopathy #cardioconference #ppcmpledge




























