Cystic Fibrosis exercise network. Bringing together therapists, technicians and staff with a passion for exercise in managing CF.

United Kingdom
Joined September 2018
CF Exercise Network retweeted
LEARNING OPPORTUNITY!!! ‼️ Registration is still open for the CF Exercise Network Study Day: Friday 8th September 2023 at Lancaster University. The programme looks fantastic and p.s. it is free! @CF_Exercise eventbrite.co.uk/e/uk-cf-exe…
7
6
1,026
CF Exercise Network retweeted
The European CF Society Exercise Working Group, led by Dr Zoe Saynor has released err.ersjournals.com/content/… standardising exercise testing in CF globally. CFPhysio.com Inc is working together with the ECFS EWG to develop an online learning package for clinicians.
9
16
2,219
CF Exercise Network retweeted
The International Physiotherapy Group global survey highlighting #Physiotherapy research priorities for working with people with #CysticFibrosis. @acpcf @AcpcfR #ECFS2022
1
9
📢📢Are you a parent/guardian of a child (6-12 years) with #CF? We are offering a great opportunity to try out a new family-based programme & get involved in #cysticfibrosis #research! Get in touch! forms.office.com/r/Xk52UCwg7… or email directly: [email protected] Please RT!
1
9
5
📢Are you a parent/guardian of a child (6-12 years) with #CF? 👉We are offering a great opportunity to try out a new programme and get involved in #cysticfibrosis research! ✉️Get in touch! forms.office.com/r/Xk52UCwg7… or email directly: [email protected] Please share & RT!
2
9
1
10
CF Exercise Network retweeted
Reminder! Applications for 1st ever CF Trust 'Exercise Practitioner Fellowship' are open! This exciting opportunity is designed in particular for those whose specialism is in exercise services within CF care. Closes 15th October! More info: cysticfibrosis.org.uk/exerci…
📢STUDY ALERT! 📢 How do we make physical activity interesting and enjoyable for children with #cysticfibrosis and their families? If you have kids with #CF, we'd love to have you involved in our interview study. #CFAwarenessMonth Get in touch! forms.office.com/r/gZJuk5KxS…
3
7
2
4
CF Exercise Network retweeted
📢*STUDY ALERT*📢 We're looking for children with #cysticfibrosis aged 6-12, and their FAMILY too! Parents and guardians - this is for you too! We will investigate how we can make children, and families, more active. It is an interview study, and is done at home - easy peasy!
3
27
5
20
CF Exercise Network retweeted
An excellent case report, explicitly showing differences between normative equations in CPET (despite underlying data being the same), and how this can have a dramatic effect on patient care.
Get an early view of our publication highlighting the issues surrounding normative reference data in #CPET @ERSpublications @EuroRespSoc @ERS_Assembly9 openres.ersjournals.com/cont… We recommend an approach similar to #GLI to develop all age CPET normative data
1
3
CF Exercise Network retweeted
Our latest commentary from myself and @_James_Shelley in The Sport & Exercise Scientist from @basesuk today, discussing the importance and role of sport and exercise scientists in managing #cysticfibrosis.
2
4
19
People with #CF - we want to know what we can do to help you continue to be #active at this time. What is the biggest factor stopping you from being active right now? Please retweet @cftrust @Beam_CF @CFTrustYouth
41%Anxiety / stress
22%Lack of (fun) ideas
25%Lack of physical space
12%Other
64 votes • Final results
2
9
1
9
CF Exercise Network retweeted
Invitation to participate in research: I am a 3rd year BHSc Physiotherapy student looking for adults with CF to complete a survey focusing on what helps or stops them from completing their Physiotherapy treatment. If you wish to volunteer, please follow: yorksj.eu.qualtrics.com/jfe/…
1
16
3
10
CF Exercise Network retweeted
Don't forget to sign up for this years CF & Exercise study day! Only £10 for a full day of talks, workshops and networking - make sure you don't miss out! eventbrite.co.uk/e/cf-and-ex… Please share, RT and let everyone interested in #cysticfibrosis and #exercise know!
1
4
6
CF Exercise Network retweeted
What an inspirational chap! Did not miss a single oportunity to get involved in all kinds of activities inc bike, HIIT, gym, badminton etc while in hospital. You, Sir are our #rehablegend @BristolAdultCF
3
6
24
CF Exercise Network retweeted
*CALL FOR PARTICIPANTS* Do you have cystic fibrosis? Do you know someone living with CF? We are conducting an exciting CF-specific exercise intervention at DCU & would love for you to participate! If interested or for more info please fill in this form: nicolahurley.wufoo.com/forms…
3
36
8
47
CF Exercise Network retweeted
Looking to setup an online journal club in #cysticfibrosis and #exercise for Jan 2020. We'll discuss ongoing research, new findings, success/challenges and clinical practice🏃‍♂️🏥⚽️ Interested? Sign up here✏️➡️bit.ly/35gQwqr
4
14
5
62
CF Exercise Network retweeted
Happy weekend everybody. We’d be grateful if you could just take a couple of minutes to let us know what you think of these clinical trial questions. Thank you! surveymonkey.co.uk/r/CFTrial…
CF Exercise Network retweeted
#ECFS2019 starts in 1 week! The abstracts for the 42nd European Cystic Fibrosis Conference are now published in #JournalCF. ow.ly/c88F50usnB0
9
2
23
CF Exercise Network retweeted
#CysticFibrosis and #PhysicalActivity: a special topic in the updated document from 🇸🇪'Physical activity to prevent & treat disease', available in English #FYSS. #Mucoviscidose & #ActivitéPhysique, 1 chapitre dédié disponible en anglais ici fyss.se/wp-content/uploads/2…