The SoCal Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
Los Angeles
Joined August 2009
- Tweets823
- Following1.9K
- Followers1.3K
- Likes285
CFF Southern California retweeted
According to 2023 Patient Registry data, the median predicted age of survival for people with cystic fibrosis born between 2019-2023 is 61. Let’s break down what this number means.
CFF Southern California retweeted
We have invested more than $6.6 million in additional funding in Sionna Therapeutics to continue research into the development of potential new modulator therapies for people with #cysticfibrosis with an F508del mutation.
CFF Southern California retweeted
People who have #cysticfibrosis, or diseases that weaken the immune system, are at higher risk of developing health problems because of Aspergillus. Some types of allergic bronchopulmonary aspergillosis (ABPA) are mild, and others are very serious.
CFF Southern California retweeted
Today is #WorldAspergillosisDay. Aspergillosis is an infection caused by Aspergillus, a common fungus in our environment that most people breathe in every day without getting sick.
CFF Southern California retweeted
We are providing up to $15 million to Prime Medicine, for preclinical research into whether a gene editing technology called prime editing could treat people with #cysticfibrosis.
CFF Southern California retweeted
This #GivingTuesday, your donation goes twice as far. Thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF, donations up to $250,000 will be doubled beginning at midnight. Give today for a future without CF: on.cff.org/GivingTuesday23
ALT A graphic reads, "Match alert! On GivingTuesday, your gift goes twice as far. #GivingTuesday."
CFF Southern California retweeted
Live from LA, join us for the CF Foundation’s seventh annual Get Salty Comedy Show on 10/22 at the @HollywoodImprov featuring,🎤@MrCraigRobinson #MelissaVillasenor @FrankieQuinones , #EvanWilliams, @RickGlassman 🎟️ events.cff.org/GetSalty2023
CFF Southern California retweeted
The @US_FDA approved Trikafta for children with CF ages 2-5 years with at least one copy of the F508del mutation or one copy of certain mutations. With this approval, more than 900 children will have access to a CFTR modulator for the first time. cff.org/news/2023-04/trikaft…
CFF Southern California retweeted
Last week, more than 175 advocates, including nearly 30 people with CF, and thousands of community members, raised their collective voices and advocated for the CF community. Thanks to all who participated in March on the Hill and our Online Day of Action. on.cff.org/428H3PY
CFF Southern California retweeted
With the support of an Impact Grant, Work Proudly provides adults with cystic fibrosis and their caregivers with training and equipment to secure flexible remote work. Have an idea that benefits the CF community? Apply for an Impact Grant by April 5: on.cff.org/ImpactGrant
ALT A dark-skinned woman sits on a step and a dark-skinned boy stands behind her. Text reads, "Claire's Place Foundation For Cystic Fibrosis Support."
CFF Southern California retweeted
We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b
CFF Southern California retweeted
Research is more than data.
At ResearchCon 4/7 and 4/9, hear from CF community members about why their stories matter in research. Plus, researchers and clinicians will share the latest on a wide variety of #CFResearch and care topics. Register today: on.cff.org/ResearchCon2022
ALT Text reads, “More than data. Learn how your story matters in research. Join us April 7 & 9. cff.org/ResearchCon”
CFF Southern California retweeted
We are awarding up to $15.9M in additional funding to Eloxx Pharmaceuticals Inc. to support more clinical trials of ELX-02, a potential therapy for people with #cysticfibrosis who have nonsense mutations. #CFresearch on.cff.org/3LpSb1C
CFF Southern California retweeted
Ready for #NACFC 2021? Follow our Twitter list to virtually connect with others in the cystic fibrosis community who are attending the conference. on.cff.org/3bvN2p3
CFF Southern California retweeted
Can exercise substitute for traditional airway clearance after you’ve been on a modulator? At this year’s #NACFC, attend “ACT and Exercise in the World of Modulator Therapy,” to hear from top researchers on this important topic.
Register today: on.cff.org/NACFC-2021
ALT A purple graphic has text that reads, "Researchers and patients discuss the benefits of exercise in aiding airway clearance and determine whether airway clearance or exercise beliefs have changed in post-modulator times. Find out what researchers and providers had to say about whether exercise can substitute for traditional airway clearance after patients begin a modulator."
CFF Southern California retweeted
Today, we announced three new research awards as a part of our Path to a Cure initiative. This includes up to $2.6M to Eloxx Pharmaceuticals to identify compounds that could potentially treat people with #cysticfibrosis with nonsense mutations. cff.org/About-Us/Media-Cente…
CFF Southern California retweeted
Did you know that you can keep fundraising for your #GreatStrides team even after your walk is over? Exceed your fundraising goal with these tips. on.cff.org/2SnQH1y
CFF Southern California retweeted
"CF is a part of me, whether I choose to hide it or not, and I realized after my first hospitalization that I was carrying around an unnecessary burden by keeping it a secret." -Lisa Amsler, an adult with #cysticfibrosis on.cff.org/3wqd2ug
CFF Southern California retweeted
While receiving a prescription for a mammogram may not be something most people look forward to, Katie Fielding (@KatieF), an adult with #cysticfibrosis, shares why she celebrated achieving this milestone. on.cff.org/3oRKxDd
CFF Southern California retweeted
You can watch the full segment online. on.cff.org/DrOzShow