The SoCal Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
Los Angeles
Joined August 2009
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It's time to laugh for a good cause! Get your tix for the Get Salty Comedy Show on Oct 6 at the @HollywoodImprov events.cff.org/GetSalty2024/ #cysticfibrosis #curecf #comedyshow #hollywood #losangeles
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CFF Southern California retweeted
According to 2023 Patient Registry data, the median predicted age of survival for people with cystic fibrosis born between 2019-2023 is 61. Let’s break down what this number means.
Have you ever heard people refer to cystic fibrosis as “65 Roses”? With one week until June 5 (6/5), 65 Roses Day, learn the story behind the term and how you can join the 65 Roses Club: a group of monthly donors committed to helping cure cystic fibrosis:cff.org/about-us/65-roses-st…
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Join us for an art walkthrough with CF Artists at dnj Gallery in Santa Monica on 6/2. 🎨You will meet young professionals from LA & OC, CF artists and learn what inspires them to create their art. RSVP to Natalie, nkanooni@cff.org. Lunch & drinks will be provided!
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We’re so proud of our volunteers for representing the #cysticfibrosis community during @CF_Foundation’s March on the Hill. We can’t wait for you to share your story with @RepTedLieu,@AdamSchiff, @RepYoungKim, @RepMikeLevin, @Senlaphonza . #CFAdvocacy
First #cysticfibrosis Art Exhibit in #LosAngeles at pnj Gallery in #SantaMonica. Join us for opening night on April 13th!
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CFF Southern California retweeted
We have invested more than $6.6 million in additional funding in Sionna Therapeutics to continue research into the development of potential new modulator therapies for people with #cysticfibrosis with an F508del mutation.
A huge shout out to the teams who registered for Paddle for CF this past week!🤙 Join these teams, along with Quiksilver celebrity pro-surfer, Reef McIntosh, at this year’s 4th annual Paddle for CF on Sat., May 11, at Huntington Beach.
Link to register: fightcf.cff.org/site/TR/Team…
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A BIG welcome to the teams that registered for one of our Great Strides walks last week! Walk with them in less than 3 months by registering as an individual walker or creating a team. 👟 we are stronger together! 💪 Find a walk site near you: fightcf.cff.org/site/SPageSe…
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Hook the Cure is back in Puerto Vallarta on Nov 7th to support the CF Foundation. Join us for a fabulous weekend of all inclusive oceanfront accommodations, top-notch fishing & golf, luxurious spa treatments, & special appearances by celebrity guests. hookthecure.org 🎣🏌️♂️
“I joined [Tomorrow’s Leaders] for the unique networking opportunities to expand my network, like Coffee with a Board Member, but I’ve stayed because of the amazing people I’ve met along the way who I now consider great friends.” - Courtney, member of the Orange County TL Chapter
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Last week, the 2024 Paddle for CF committee kicked off this year with the first planning meeting.🤙 Seamus and the committee can’t wait to see you at this year’s event, you do not want to miss it! Join us Saturday, May 11, in Huntington Beach. 🌊: fightcf.cff.org/site/TR/Team…
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Navigating CF is an informational video series on Youtube presented by Compass case managers. Follow this link to learn more or to start the series: cff.org/support/navigating-c…
#cysticfibrosis
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CFF Southern California retweeted
People who have #cysticfibrosis, or diseases that weaken the immune system, are at higher risk of developing health problems because of Aspergillus. Some types of allergic bronchopulmonary aspergillosis (ABPA) are mild, and others are very serious.
CFF Southern California retweeted
Today is #WorldAspergillosisDay. Aspergillosis is an infection caused by Aspergillus, a common fungus in our environment that most people breathe in every day without getting sick.
CFF Southern California retweeted
We are providing up to $15 million to Prime Medicine, for preclinical research into whether a gene editing technology called prime editing could treat people with #cysticfibrosis.
Registration is open for BreatheCon February 9-10! This two-day, virtual event provides adults with cystic fibrosis a welcoming, inclusive space to come as you are.
Register now: events.ringcentral.com/event…
#cysticfibrosis
CFF Southern California retweeted
This #GivingTuesday, your donation goes twice as far. Thanks to the generosity of Lou and Nancy Stremick, whose 18-year-old granddaughter, Ella, has CF, donations up to $250,000 will be doubled beginning at midnight. Give today for a future without CF: on.cff.org/GivingTuesday23
ALT A graphic reads, "Match alert! On GivingTuesday, your gift goes twice as far. #GivingTuesday."
CFF Southern California retweeted
Live from LA, join us for the CF Foundation’s seventh annual Get Salty Comedy Show on 10/22 at the @HollywoodImprov featuring,🎤@MrCraigRobinson #MelissaVillasenor @FrankieQuinones , #EvanWilliams, @RickGlassman 🎟️ events.cff.org/GetSalty2023
