I'm Bea, living with CF and CFRD, looking forward to chatting to other CFers (since we cant meet in person!) (Yorkshire/J6) x

Joined June 2014
So I’m 44 years old today 🎉, not an age I thought I’d get to! - as little as 4 months ago I was trying to work out how I could cut down my hours at work (again) as I was struggling so much - then I got offered symdeko on compassionate grounds! 😊💜 x @CFAware
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Aw I got a lovely birthday card from my ward! 🥰 (J6/Leeds) A big THANK YOU to everyone - that’s so sweet of you all!! 🥰 - and thank you for everything you do 🤗 x @CFLeeds @CFAware @cftrust
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"The damage that you're doing to families like myself is terrible". A mother of a child who has cystic fibrosis tells Health Secretary Steve Barclay that it's "not fair" to blame NHS issues on COVID, adding that there were challenges before the pandemic. trib.al/gnCqO1h
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👍💜 x #cf #cysticfibrosis
This afternoon, our Public Affairs Officer @gtpaget met with @RachaelMaskell MP, in her role as a member of @CommonsHealth, alongside the Chair of the Prescription Charges Coalition, Laura, and Aaron (@DoctorCF) who has CF to discuss our campaign... (1/2)
Brilliant! 😊 x
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🐼🥰 x
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This 😂 x
Being British is having to tell the doctor you’re “fine, thanks” before you can then go on to discuss your actual level of sickness.
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After 14 days of testing positive for covid I’m finally testing negative!!! 🎉 thank goodness for the vaccines! 😊 x
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47 today!! 🤪 x
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Was going to do an April Fools joke about a national tea shortage but then decided nobody needs that panic in their lives right now.
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😢 x
Атака на українську свободу – це напад на всю свободу. Ви наші сестри і брати.
Awww 🐏😊 x
Clever sheep taking over bus stop in Wales #StormEunice
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Another human being showing that they are a cunt today, congrats to Kurt for proving no matter how much money you have, it doesn’t make you a good person. Fucking scum bag needs investigating and criminal charges bringing forward
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Not to brag but I opened both boxes of meds the right way so if you need me I'll be buying 300 lottery tickets.
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Ambushed by Cake: it just has to be the title of my next book! #AmbushedByCake
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Sooo cute! 🥰💚 x
Photographer Dmitry Kokh discovered an abandoned house inhabited by polar bears. bit.ly/3tYIUbg
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Happy Christmas twitter friends sending you all so much love 🤗🎄🎉💜 xxx
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