#HuntingtonsDisease Community Advocate. Entrepreneur. Passion to Help Others. Founder @HD_Genetics & Co-F @hdyofeed Viau’s Are My Own. Tommie Hoops Fan

Charlotte, NC
Joined August 2011
BJ Viau retweeted
We were so grateful to the FDA for bringing the collective #HuntingtonsDisease voice to this roundtable discussion. Thank you!
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Tommies are currently #115 in the NET Rankings. This is higher than: 122. Minnesota 126. Georgetown 127. Oregon 128. Cincinnati 131. Florida St 132. Miss State 147. DePaul 148. Utah 162. Maryland 164. Marquette 167. Pittsburgh 181. Boston College 198. Rutgers 202. Georgia Tech
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ST THOMAS AT THE HORN FOR THE WIN NOLAN MINESSALE, BALL DONT LIE
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BJ Viau retweeted
Find out about @HD_Genetics' new service as BJ Viau joins us on #Help4HDLive! Hear the details this TOMORROW at 1pm PST! blogtalkradio.com/help4hd Listen later on your streaming service: Spotify, iTunes, iHeartRadio, or Blog Talk.
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Flashing back to Thursday night #RollToms
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This week is Thyroid Eye Disease Awareness Week! For more information on TED, visit: preventblindness.org/thyroid…
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#ThyroidEyeDisease is an autoimmune condition that can cause vision loss. Watch @visionadvocacy's Living Well with Thyroid Eye Disease webinar to learn more. bit.ly/3QwmN5M #TEDAwarenessWeek
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Just how successful St.Thomas has been in its first two seasons should be talked about more. @gregpmitchell profiled it for us last year. They are the only team in history to transition from D-III to D-I. With that, they won 19 games in year two. midmajormadness.com/2022/12/…
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24 hard truths about investing in Airbnb short term rentals: 3 bedroom homes are the worst short term rental investment. All cities eventually ban Airbnb. Probably suburbs will too. Any STR strategy in the United States predicated on digital nomads and “work from home” is Dead On Arrival. Every time you get a bad review or a pipe bursts, you'll feel like quitting. 99% of homes listed for sale in the last 5 years as “STR opportunities” would make terrible investments. Even in the best of times, it is a slog. There was no golden age of operating. Buying and renovating an STR is a fun 70 hour a week job. Running one is a miserable 7 hour a week one. Almost all short term rental guests are awesome. But the percentage of “bad guests” will be related to the location and size of your property. Something will go wrong. So the more properties you have, the more often things are going wrong. The best STR markets require you to get a very hard to acquire permit. But then you spend the rest of your life doing arcane paperwork to keep that permit. When vacation areas ban short term rentals, it craters their property values. They do it any way because they hate Airbnb. No home purchased for more that $2MM can turn a profit as an STR. Financing and insurance is much tougher to get for a short term rental. Large groups don’t typically travel midweek except during the summer and holidays. All those bookings you got were because of the pandemic. The price of homes in many STR markets is set by second home buyers, who pay much more than any financial buyer would. Seasonality is a killer. If people didn’t visit your location in droves in 2019, they probably aren’t in 2023 (the pandemic was an exception). The Airbnb review process is torture for hosts, living in constant fear of a bad review. It's the single biggest reason most STR hosts don't last and churn out. The people that were very very very early to Airbnb were regulated out of existence. The people that came slightly later did better. Property managers in STR talk a big game, but if you use them you’ll lose money. The large STR property management firms you see advertising everywhere are the absolute WORST. If you use a PM, find a boutique where all their properties have good reviews. All advice about “getting rich with Airbnbs” written before 2023 has zero relevance today. But people will still sell the same course with the same message. The pot of gold at the end of the rainbow after years of hard work is simply having a low cost basis relative to the nightly rates set by the market. If you want to stay in the game, you have to love the game: delighting guests, making your product awesome, and always striving to improve.
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During the Horizon @IrishOpen_, we’ll donate €150 for every birdie & €300 for every eagle on the 18th hole to the tournament’s official charity, @MakeAWish_ie. @HorizonCEOTW will also match the total funds raised to grant wishes for children with life-threatening conditions.

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As part of our support of @NotreDame’s Patient Advocacy Initiative, we hosted university faculty and local patient advocacy groups at our global headquarters in Dublin to discuss how we can help students interested in careers in rare disease patient advocacy.

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(1) @BJsView just recently did this blog post - He goes into his feelings of being gene negative. BJ, thank you so much for sharing your story. It is so important to hear these stories and to know how others potentially feel. I, for one, am so glad you are HD negative!
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Drug to treat movement symptoms of HD approved by FDA - ift.tt/hbGgo6D
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It was one first birthday over the weekend….thank you to all those who’ve supported and trusted us with your genetic testing f questions and decisions! #grateful #appreciative #huntingtonsdisease #genetictesting
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Gene Mcgivern has been an incredible colleague & friend to so many @UofStThomasMN & @TommieAthletics. Gene is a Class Act: hard working, humble, passionate, kind, honest, funny, & selfless. It’s been an honor working with him. Thank you, Gene! You made us all better!
One more piece from a one-of-a-kind guy wrapping a one-of-a-kind career. Read Gene’s final blog for @UofStThomasMN: tinyurl.com/y25kfybx #RollToms
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The cost of Huntingtons genetic testing…
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Learn how an unexpected trip to the emergency room inspired Donna Moss to become an advocate for others in the latest Horizon Stories blog post: bit.ly/43lrhR7. #GravesDiseaseAwarenessMonth

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We always enjoy sharing feedback from our clients!
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BJ Viau retweeted
Help 4 HD welcomes @BJ Viau , the director of @HD_Genetics! Listen in next week at our virtual #HIPE on July 1st! #Help4HD #Help4HDHIPE2023 #HuntingtonsDisease Join us July 1st 8am-1:30pm PST. Click here to register today: help4hd.org/events-1/help-4-…
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