Autoinflammatory Awareness Month has been recognized globally since 2015. Join in raising awareness to promote improved care, research & treatments. Thanks!
Joined July 2020
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New, Research Opportunities, and Updates for Autoinflammatory Disease Patients, Caregivers & Healthcare Providers - mailchi.mp/4a14193abf01/even…
Autoinflammatory Awareness Month retweeted
Tonight the #CNTower will be lit gold for Childhood Cancer Awareness Month
Ce soir, la #TourCN sera illuminée en or pour le Mois de sensibilisation aux enfants atteints du cancer
ALT Closeup of the CN Tower at night lit gold / Gros plan de la Tour CN illuminée en or la nuit.
Autoinflammatory Awareness Month retweeted
💙 September is #RheumaticDiseaseAwarenessMonth, a time to increase visibility for diseases that affect thousands of children and remain widely misunderstood. To learn about how you can help move research forward for these children, visit carragroup.org/
#pedsrheum
August is Int'l Autoinflammatory Awareness Month! We wanted to start the month with our official video. Still hard to top it. It is in various languages too.
youtu.be/8BMvsiMemJE?si=dNxi…
#autoinflammatoryawareness
#august4autoinflammatory
Autoinflammatory Awareness Month retweeted
What if the patient who never quite fits the diagnosis has an underlying genetic disorder? We explore Haploinsufficiency of A20 (HA20) with Dr. Daniella M. Schwartz and discuss why this emerging condition is changing how we think about immune-mediated disease. LISTEN → acr.tw/4f0gZiu
Autoinflammatory Awareness Month retweeted
Interstitial lung disease (ILD) wasn't recognized as a manifestation of Still's disease in older medical textbooks. So when did that change, and why does it matter today? Michael J. Ombrello, MD, joins the podcast to discuss how our understanding has evolved and what clinicians should know. LISTEN → acr.tw/4gQpT3p
Autoinflammatory Awareness Month retweeted
International Autoinflammatory Awareness Month starts this weekend, on August 1st. We hope anyone in the MI area can come and enjoy a fun day with a great $5 lunch and activities! If you are not in MI you can show your support w/ a donation. 🧡 #hope4SAID
givebutter.com/shine-your-li…
Autoinflammatory Awareness Month retweeted
Please donate to support the program, & send messages to honor Dr Kastner via the official onine donation link. ISSAID & TARN are co-sponsors. We welcome other orgs & institutions to support the symposium-This can be done w/ ISSAID or our org. Thanks! 🧡 givebutter.com/c/autoinflamm…
Autoinflammatory Awareness Month retweeted
3rd Symposium on Autoinflammation and Immune Dysregulation @ the National Institutes of Health (NIH), Bethesda, Maryland, USA April 16–17, 2026. We will also be honoring Dr Kastner too. Register here today. FREE!
tarnnetwork.org/events/celeb… 🧡 #autoinflammatory #Rheum #Immunology
Come to Methuen Riverwalk, MA @ 7 pm for a night of fun to Shine 4 Sammy & Int'l #Autoinflammatory Awareness Month! The falls will be lit orange! 🧡facebook.com/events/10567488… #autoinflammatory #shine4autoinflammatory #OrangeEra #august4autoinflammatory #autoinflammatoryawareness
Tonight, @NiagaraFalls will be lighting up orange for Int's #Autoinflammatory Awareness Month! 🧡 Thank you Niagara Falls and the @CdnANetwork. Watch the webcam: earthcam.com/canada/niagaraf…
#Orange4Autoinflammatory #autoinflammatoryawareness #OrangeEra #shine4autoinflammatory
Thank you @HopeArthritis and Dr @angela_migowa for helping to share these informative infographics in a few languages, especially during Int'l #Autoinflammatory Awareness Month! #augusut4autoinflammatory #autoinflammatoryawareness #hope4SAID @AAlliance_SAID 🧡
Thank you for helping to spread awareness! Especially during International Autoinflammatory Awareness Month! @AutoinflamMonth! #autoinflammatory #autoinflammatoryawareness #morethanafever
Autoinflammatory Awareness Month retweeted
Thank you for helping to spread awareness! Especially during International Autoinflammatory Awareness Month! @AutoinflamMonth! #autoinflammatory #autoinflammatoryawareness #morethanafever
🔥 Not every fever is an infection.
Some children have Periodic Fever Syndromes — uncontrollable fevers + joint pain, rash, or red eyes, without infection.
💡 Treatment: Biologics that target the fever pathway.
📄 Read info sheets (EN/SWA/FR) + more
🌍 hopearthritisfoundation.org/…
Tonight, the CN Tower @TourCNTower in Toronto will be lighting up orange for Int'l #Autoinflammatory Awareness Month! @AutoinflamMonth 🧡 Thanks @CdnANetwork for coordinating this. #hope4SAID #autoinflammatoryawareness #OrangeEra
Watch the webcam of the @TourCNTower light up orange tonight for Int'l #Autoinflammatory Awareness Month at this link: cntower.ca/live-views #Orange4Autoinflammatory #autoinflammatoryawareness #OrangeEra #shine4autoinflammatory 🧡
Autoinflammatory Awareness Month retweeted
American College of Rheumatology Guidance Statement for Diagnosis and Management of VEXAS Developed by the International VEXAS Working Group Expert Panel - Mekinian - Arthritis & Rheumatology - Wiley Online Library acrjournals.onlinelibrary.wi…
Thanks American College of Rheumatology @ACRRheum, ACR on Air, w/ the kind host, Dr Hausmann & their producer. We appreciate the ACR sharing this during Int'l #Autoinflammatory Awareness Month! 🧡@AutoinflamMonth #august4autoinflammatory #morethanafever #Rheumatology
From parent to global advocate—Karen Durrant, RN, BSN, founder of @AAlliance_SAID, shares how her search for her child’s diagnosis led to international impact. LISTEN to her story in our NEWEST EPISODE → acr.tw/3Jcd7xp @KarenDurrant_sf
Autoinflammatory Awareness Month retweeted
Thanks American College of Rheumatology @ACRRheum, the #ACR on Air Podcast, their kind host, Dr Hausmann & their producer. We appreciate you sharing this during Int'l #Autoinflammatory Awareness Month! 🧡@AutoinflamMonth #Rheumatology #autoinflammatoryawareness #morethanafever
From parent to global advocate—Karen Durrant, RN, BSN, founder of @AAlliance_SAID, shares how her search for her child’s diagnosis led to international impact. LISTEN to her story in our NEWEST EPISODE → acr.tw/3Jcd7xp @KarenDurrant_sf
Autoinflammatory Awareness Month retweeted
2025 ACR Guidance on Diagnosis and Management of VEXAS
The ACR has published a formal international consensus guidance on VEXAS as a resource for clinicians seeking to understand the disease and its management.
buff.ly/V34BfGm
Come to Methuen Riverwalk in MA @ 7 pm for an amazing night of fun and awareness for Int'l #Autoinflammatory Awareness Month! The waterfall will be lit up orange. Shine a Light for Sammy, and Autoinfammatory Diseases! #shine4autoinflammatory #OrangeAugust facebook.com/events/10567488…
