A Canadian not-for-profit dedicated to empowering autoinflammatory patients, families and researchers.
Canada
Joined July 2022
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Hello! We’re the Canadian Autoinflammatory Network (Réseau Auto-inflammatoire Canadien), a non-profit dedicated to empowering autoinflammatory patients of all ages in Canada. Here’s a quick 🧵on us: (1/4)
Canadian Autoinflammatory Network retweeted
Tonight, August 3, the Clock Tower & CWOOD sign will shine green for Autoinflammatory Disease Awareness Month 💚 Join us in raising awareness, supporting those affected, and promoting research, education, and advocacy. Learn more at @CdnANetwork
#Shine4Autoinflammatory #CWOODCT
ALT Historic Collingwood clock tower and 'CWOOD' sign illuminated in green lights against a dark night sky.
Canadian Autoinflammatory Network retweeted
Celebrate #RareDiseaseDay by watching the on-demand recording of our #SpeakerSeries #webinar, "#Matchmaking for #RareDisease Diagnosis."
Discover the power of international data sharing and collaboration from matchmaking pioneers.
Stream it on-demand: phenotips.com/speaker-series…
Canadian Autoinflammatory Network retweeted
Please donate to support the program, & send messages to honor Dr Kastner via the official onine donation link. ISSAID & TARN are co-sponsors. We welcome other orgs & institutions to support the symposium-This can be done w/ ISSAID or our org. Thanks! 🧡 givebutter.com/c/autoinflamm…
Canadian Autoinflammatory Network retweeted
Living with a systemic autoinflammatory disease: burden of disease and effects on quality of life—an international patient survey:
Great Paper @AAlliance_SAID
pdf.sciencedirectassets.com/…
Canadian Autoinflammatory Network retweeted
Discussing the Transition from Pediatric to Adult Rheumatology Care with Dr Yan Yeung, ORA Vice-President and President-elect @takeapaincheck at the Unity Through Rheumatic Diseases 2025!
Canadian Autoinflammatory Network retweeted
So proud of these trainees presenting their work at #MCHRD2025 today. Their dedication to child health research is inspirational. @MacUPediatrics @machealthsci @mac_peds @anneklassen @kabeattie @CAFsociety @mch_childrens @McMasterCHR @hamhealth
Canadian Autoinflammatory Network retweeted
Thank you #MCHRD2025 organizers for allowing me to share this work! @CAFsociety @Dr_Gorter @kabeattie @MacUPediatrics
.@MacUPediatrics rheumatologist Michelle Batthish (@m_batthish) shares insights on her research into the transition to adulthood in pediatric patients.
#MCHRD2025 #ChildHealth #Research #ToolKit
Canadian Autoinflammatory Network retweeted
February 28 is #RareDiseaseDay, but every day we #CareForRare.
Help us raise awareness about how rare rheumatic diseases affect children, teens, and young adults across Canada. Together, we can make a difference.
Learn more at cassieandfriends.ca/careforr…
Canadian Autoinflammatory Network retweeted
🌍 Exciting news! The RDI-Lancet Commission on Rare Diseases has officially launched! Co-chaired by CRDN's own Dr. Kym Boycott (Canada) & Dr. Roberto Giugliani (Brazil), it brings 27 experts from 6 continents to improve healthcare for PLWRD. Learn more: rarediseasescommission.org/
Canadian Autoinflammatory Network retweeted
CORD @raredisorders calls on federal parties to commit to a national strategy for rare diseases. Federal strategy is overdue.
Canada is the ONLY developed country without a national strategy for #RareDiseases, affecting 3M Canadians. It's time for federal leaders to step up by creating a strategy that improves care, research, & access to therapies
Full Letter👉 bit.ly/3PyLNt6
Canadian Autoinflammatory Network retweeted
White Coat Black Art avec le Dr Brian Goldman
Ian Stedman, membre du conseil consultatif de l’IG des IRSC et du réseau canadien des maladies rares (RCMR) :
Il a diagnostiqué sa maladie rare grâce à Google. Il espère maintenant que l'IA pourra faire la même chose pour d'autres
ALT article podcast
Canadian Autoinflammatory Network retweeted
White Coat Black Art with Dr. Brian Goldman
Ian Stedman, member of #CIHR-IG Institute Advisory Board and Canadian Rare Disease Network (CRDN):
He diagnosed his rare disease using Google. Now he hopes AI can do the same for others
tinyurl.com/5hd6uxfe
ALT podcast article
Canadian Autoinflammatory Network retweeted
He diagnosed his rare disease using Google. Now he hopes artificial intelligence can do the same for others. @CHEO using #AI to help diagnose #RareDisorders, by @phildrost cbc.ca/radio/whitecoat/artif… via @cbcwhitecoat @NightShiftMD
Canadian Autoinflammatory Network retweeted
🎥 Missed our recent townhall? No worries – the recording is now live: youtube.com/watch?v=ffUB1zDm…
We also want to hear from YOU! 🫵
Take a moment to review CRDN's proposed strategic plan and share your thoughts with us.
🔗survey.ucalgary.ca/jfe/form/…
Canadian Autoinflammatory Network retweeted
Excited for what November has to offer? 🌟
Discover a variety of events happening both in Canada and globally with the CRDN Events Calendar!
📅 Check out the CRDN Events Calendar: canadianrdn.ca/events/
💡 Submit your details here: canadianrdn.ca/events-contac…
Canadian Autoinflammatory Network retweeted
Devenez un patient chercheur grâce au programme de certificat virtuel Patient & Community Engagement Research (PaCER) de l'@UCalgary.
Pour en savoir plus, consultez le site bit.ly/PaCERprogram.Vous souhaitez poser votre candidature? Envoyez un courriel à currie@ucalgary.ca.
Canadian Autoinflammatory Network retweeted
Exciting News!💥
Become a patient researcher through @UCalgary's virtual Patient & Community Engagement Research (PaCER) certificate program!
Learn more at bit.ly/PaCERprogram
Interested in applying? Email currie@ucalgary.ca by November 15, 2024.
Canadian Autoinflammatory Network retweeted
📅 Mark your calendars!
Join us on October 31st from 12-1 PM MST for the CRDN Townhall, where we'll dive into the latest updates on our strategic plan co-development.
Don't miss out—register today: canadianrdn.ca/join-the-crdn…
Congratulations to these amazing physician-researchers who are leading the way in Canada & have secured funding from @CDA_AMC for a CAN-SAID registry! Such wonderful news!!!
@KLBrownLab @LoriBTucker1 @QdQwerty
cda-amc.ca/drugs-rare-diseas…
