Hoping to provide support to those with ataxia. In memory of Rick and Shantel who were taken away from us much too soon by this deadly disease.
Joined December 2022
- Tweets7.9K
- Following13
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Ataxia Support retweeted
The holidays can be challenging when you're grieving. Join us Nov. 5 at 12 PM CT for a special Remembrance Event with Amy Fowler as we discuss ways to support one another through loss and remembrance.
Register Today: us02web.zoom.us/meeting/regi…
Ataxia Support retweeted
In NAF This Week, Andrew reflects on the loss of Dr. Susan Perlman, a beloved leader and pioneer in the Ataxia field. He also shares highlights from his recent trips to Washington, D.C., and Boston, where he is participating in rare-disease conferences. nafbx.podbean.com/e/naf-this…
Ataxia Support retweeted
Huntsville showed up in a big way! 👟💙
Thank you to everyone who joined the Huntsville Walk N' Roll! Together, we raised nearly $8,000 to support treatment development and people affected by Ataxia. 💙
Learn More: ataxia.org/event/huntsville-…
Ataxia Support retweeted
Congratulations to the Denver & Colorado Springs Support Groups on helping secure four Colorado proclamations recognizing Ataxia Awareness Day!
Thank you to everyone who helped raise awareness and make this achievement possible. 💙
#AtaxiaAwareness #MoveAtaxiaForward
Ataxia Support retweeted
🎉 Congratulations to our 2026 #ExtremeHike team!
Through every mile, this team helped raise awareness of Ataxia and support our shared mission. Despite challenging conditions, they kept moving forward and made a meaningful impact for the Ataxia community. 💙
Ataxia Support retweeted
Helpful ideas often come from shared experiences. Check out this community-submitted tip from the Ataxia community. 👇
Share yours: ataxia.org/tips
Ataxia Support retweeted
Checkout our #fundraising page on the @localgiving platform
Please #Donate at
localgiving.org/charity/atax…
#Ataxia awareness
Ataxia Support retweeted
#DNA , the Code for #Life
Make the Future #Awesome
Are you #Ataxia aware ?
A #Rare #Health condition, a #RareDisease
#Patient Advocacy
#StrongerTogether
#Donate at
localgiving.org/fundraising/…
Ataxia Support retweeted
Diary Marker
International Scientific Meeting
#Cerebellum
#Neuroimaging
Symposium 2027
April 14–16, 2027
Wednesday–Friday
University of Campinas
Campinas, #Brazil
Ataxia Support retweeted
A day in the life with Ataxia!
Thank you very much to Kelly for sharing this with us! 💙 You can find her on YouTube here:
youtube.com/@exploretheunkno… and her TikTok here:
tiktok.com/@kelly_darkrose
#Ataxia #Awareness #RareDisease #Disabled #StrongerTogether
Ataxia Support retweeted
Checkout our #fundraising page on the @localgiving platform
Please #Donate at
localgiving.org/charity/atax…
#Ataxia awareness #Charity #StrongerTogether
Ataxia Support retweeted
Dont feel your 'up against, a brick wall'
Follow @ataxia_aware on #SocialMedia
#Website ataxia-aware.org
#Raredisease #Ataxia #Charity #Wales + Global
support us in raising Ataxia awareness at
localgiving.org/charity/atax…
Ataxia Support retweeted
Where is the #Cerebellum ?
the "Coordination Kingdom"
as depicted in our logo
#StrongerTogether and #Ataxia aware
Ataxia Support retweeted
Impulsivity, Compulsivity, Social Inappropriateness, and Other Neuropsychiatric Features in Cerebellar Histiocytosis
#Ataxia
@RoyCLinMD #Sheng-Han Kuo
Ataxia Support retweeted
Excellent, comprehensive, and highly educational presentation by Bart van de Warrenburg on treatable ataxias at #MDSCongress 2026 in Seoul! A practical, clinically useful approach to recognizing these disorders, guiding diagnostic workup, and identifying treatment opportunities.
Ataxia Support retweeted
What a fantastic plenary session on advances in ataxia at #MDSCongress 2026 in Seoul! Inspiring presentations led by world-renowned experts in the field. Truly exciting to see such rapid progress in #ataxia diagnosis and emerging therapies!
Ataxia Support retweeted
Efficacy and Safety of DL-3-n-Butylphthalide in Spinocerebellar Ataxia Type 3. NBP administration showed preliminary evidence of clinical benefit in SCA3
@MDJ_Journal
movementdisorders.onlinelibr…
Ataxia Support retweeted
A rare ATM variant in a Colombian family with chorea-ataxia syndrome: implications for an early diagnosis
link.springer.com/article/10…
Ataxia Support retweeted
Large-scale genetic profiling of hereditary ataxias in China: implications for a stepwise molecular diagnostic strategy
link.springer.com/article/10…
Ataxia Support retweeted
Recent Advances in Therapy for the Neurodegenerative Disorder Ataxia-Telangiectasia
mdpi.com/1422-0067/27/16/734…
