Interested in the impact on siblings of having a brother or sister with congenital heart disease @LizzieBichard
London, England
Joined February 2021
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- Following346
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ALPS - heArt sibLings ImPact Study retweeted
This #HeartWeek, please consider helping us on our mission to spread this potentially life-saving Think HEART message.
Knowing the signs of congenital heart disease (#CHD) could save a life. ❤
#tinytickersheartweek2025 #thinkheart #congenitalheartdisease #chdawareness
ALPS - heArt sibLings ImPact Study retweeted
Thanks to @CongenitalCNA for the opportunity to discuss the findings from the heart siblings impact study @AlpsHeart in Dublin @bcca_uk
Delighted to be an abstract winner but more importantly to fly the flag for siblings, we won't stop talking about it, watch this space!
ALPS - heArt sibLings ImPact Study retweeted
Congratulations to our abstract winners yesterday Helene Murchan for her poster and @LizzieBichard @AlpsHeart for her oral presentation @bcca_uk
ALPS - heArt sibLings ImPact Study retweeted
This afternoon starts with three abstract presentations - National audit of CYP cardiac nursing roles, children requiring sedation and experience of siblings @WalshForster @anna_annadi @Jenzer001 @LizzieBichard @AlpsHeart @CongenitalCNA @bcca_uk
ALPS - heArt sibLings ImPact Study retweeted
A huge thank you to all the fabulous YPF members, the Patient Safety Partners, GOSH Arts, and all who supported our successful Digital Inclusion workshop 🌟#GOSHYPF #PSPs #healthinequalities #GOSHArts @GoodThingsFdn @GOSHLearnAcad
A great session today, looking at how #digitalinclusion at @GreatOrmondSt can be improved with the #GOSHYPF & #patientsafetypartners
@GoodThingsFdn
#healthinequalities
ALPS - heArt sibLings ImPact Study retweeted
Presenting #patientpublicinvolvement #PPI from our @NIHRresearch feasibility grant to explore the feasibility of a #PedsICU platform @kerry_woolfall @pus27 @pic_pram @ICNARC @PaulMouncey @Doug_Gould1
@ESPNIC_Society #ESPNIC2024 Paper detailing all currently under review
ALPS - heArt sibLings ImPact Study retweeted
Great to see our paper has been published about dental advice for CYP with CHD @CongenitalCNA
@BJCardNursing Dental advice for children and young people with congenital heart disease: a survey of cardiac nurses
magonlinelibrary.com/doi/ful…
@GaskinKerry @CongenitalCNA
#CHD #ACHD
ALPS - heArt sibLings ImPact Study retweeted
It's my last day @gloshospitals today! Here's an overview of our achievements over 18 months of NMAHP research culture, capacity, capability building @100_m_p_h @CraigBradleyRN @suz_cro @SLovett81 @GHFT_Excellence @uow_TCSNM @teamCNO_ @drjoanne_cooper
ALPS - heArt sibLings ImPact Study retweeted
CHF are proud to be part of The Newborn Screening Collaborative and share 'A Rare Find'.
This film is just one part of a broader campaign to push the subject of screening and to work towards positive progress within the current UK screening programme.🩷
#NewbornScreening
ALPS - heArt sibLings ImPact Study retweeted
The Happiness Hub is a valuable resource where you can access all our online workshops, filled with insightful content and practical tips. 💙 For more information visit: bit.ly/3NDtumg
ALPS - heArt sibLings ImPact Study retweeted
World Mental Health Day
Join one of our steering groups to be part of our community. Your participation in a steering group will help us to monitor how well we are reaching our organisational aims.
Contact us now for more information on how to join.
#WorldMentalHealthDay23
ALPS - heArt sibLings ImPact Study retweeted
The September collection from @PICJournalWatch is now ready to view on this link picujournalwatch.com/journal… including AricleOfTheMonth: picujournalwatch.com/journal…. Range of #PARDS #Renal #Neurology #CICU & #Retrieval @Dr_Hari_Krishna @DrToyinOcholi #PCCS2023
ALPS - heArt sibLings ImPact Study retweeted
We are pleased that we could help 17 children with heart conditions receive their INR machines this year so far
CHF has been a major provider of INR machines to families that meet the referral criteria. If you experience difficulty obtaining an INR machine please let us know
ALPS - heArt sibLings ImPact Study retweeted
Great to see @LizzieBichard presenting her #PhD work on siblings of children with congenital heart disease @AlpsHeart at the International #PedsICU nursing science forum
ALPS - heArt sibLings ImPact Study retweeted
Fantastic piece of work! Congratulations team ❤️
Really great to see that the National Strategy to address the priorities for #CHD research has been published @CongenitalCNA @CHATool2 @alottalottos @LizzieBichard @jmenzies1
ALPS - heArt sibLings ImPact Study retweeted
Do you know a child with a heart condition who loves adventure and challenges? 🙋🚣♀️🧗♂️
Then you are invited to join CHF at @WhitemoorL 20th May for a Family Activity Day.
Scan the QR Code or visit our website to book
#CHF #FamilyActivityDay #chd
ALPS - heArt sibLings ImPact Study retweeted
Are you a parent of a child who has been in paediatric intensive care?
Do you experience intrusive memories (flashbacks) of this?
If you'd be interested in taking part in an intervention to reduce these please contact me or click bit.ly/33GZEcB (for people in UK/Ireland)
ALPS - heArt sibLings ImPact Study retweeted
We help thousands of families a year cope with (CHD) by providing advice and information by telephone, e-mail and through our website.
CHF have a total of 25 information sheets on Heart Conditions and Caring for Heart Children available on our website. #HeartMonth #CHDAwareness
