@echoukcharity

ECHO’s mission is to provide support for children and young people with heart conditions and their families, at every stage of their heart journey.

 London, England
linktr.ee/echoukcharity
Joined October 2013
  • Tweets2.6K
  • Following486
  • Followers1.1K
1.1KMedia
We are no longer on X Please follow ECHO on 📸 Instagram: instagram.com/echoukcharity 👍🏻 Facebook: facebook.com/share/1Bp6oK43L… 🔗 LinkedIn: linkedin.com/company/echo-uk… to continue receiving our latest news, support, stories and updates. See you there! 💙💚🩷
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We're moving our social media focus! From 24 August, this X account will no longer be updated. Please follow ECHO on Facebook, Instagram and LinkedIn to continue receiving our latest news, support, stories and updates. See you there! 💙 📸 Instagram: instagram.com/echoukcharity
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Thank you for being part of our community here on X. From 24 August, we'll be focusing our social media activity on Facebook, Instagram and LinkedIn. Follow us there to stay connected with ECHO and the support available for heart families. 💙 instagram.com/echoukcharity
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This account will become inactive from 24 August. You can still find all the latest ECHO updates, family support, news and resources on our Facebook, Instagram and LinkedIn channels. Come and join us there! 💙 linkedin.com/company/echo-uk…
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📢 From 24 August, this X account will no longer be updated. To keep up to date with the latest ECHO news, support, resources and community stories, please follow us on Facebook, Instagram and LinkedIn. We'd love to stay connected with you. 💙
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Ever wondered what goes on inside ECHO? For 43 years, we’ve worked alongside parents, patients and stakeholders to shape support that truly reflects the needs of our community. Every decision we make is co-produced with the people who matter most. #InsideECHO #43YearsOfECHO
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The new GALAXY clinic at Evelina London will soon officially open and it’s out of this world! Over 100 children shared their brilliant ideas, and now every clinic area has planets and space-themed names, making the space fun, welcoming, and designed with kids at the heart.
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We were lucky to have two wonderful volunteers in the office with us in April – Gemma and Ruby❤️ We truly couldn’t do our work without the dedication and kindness of our volunteers. We are so grateful for everything you do ✨
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3D printed hearts making a real difference 🫀 In February half term, our ECHO teens and their parents came together for an ECHO x Health Tech Research Centre event, they were amazing at learning and talking about research and seeing 3D heart printing up close
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Having a sibling with CHD can be incredibly special, but it can also be tough sometimes. We’re creating a storybook for younger children to help them feel seen, supported, and understood and we need YOUR help to create it! sign up now via this link - echo-uk.org/event/help-us-wr…
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A huge THANK YOU to our incredible 2026 ECHO running team! 🏃‍♀️🏃‍♂️ If you’re feeling inspired… the London Marathon ballot for 2027 is now open! londonmarathonevents.co.uk/b… and you can pre register your interest for the LLHM here -llhm.co.uk/pre-register-half
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Good luck to our amazing team of 14 runners taking on the London Landmarks Half Marathon today! 🏃‍♂️🏃‍♀️ If you’d still like to support the team and donate, you can do so here: justgiving.com/campaign/echo… Good luck everyone!
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Important DLA Update If your child has congenital heart disease, the DWP is reviewing DLA decisions made between Feb 2017 – Oct 2020. What this means: -You may be entitled to back payments -Your child’s award could increase -Reviews will NOT reduce your current award
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For families of children with complex heart conditions, hospital stays can be long, exhausting and overwhelming. That’s why small changes matter. By supporting the parents’ room, whether it’s providing a microwave or simply making time for a cup of tea - ECHO can help.
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Happy Easter from all of the ECHO team! 🐣🌷 Thank you to @fenchurchinsure , phlhydraulics, BMXLife & @KKB_Group for their generous donations of Easter eggs. A special thank you as well to Tommy from @statomgroupuk for giving up his time on Thursday to help deliver the eggs!
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Part 2 of Meeting the team behind the 7 wonders of ECHO!
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Part 1 of Meeting the team behind the 7 wonders of ECHO!
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Just 1 month to go until the London Marathon! 🏃‍♀️ A huge thank you to @statomgroupuk for sponsoring this year’s marathon-Money raised will make a huge impact. Wishing all our incredible runners the very best of luck as they head into the final stretch of training.
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If you’d like to support the team and be part of their journey, you can donate here: 2026tcslondonmarathon.enthus… Let’s get behind them all the way to the finish line! 🎉
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It’s the little things that often make a big difference – like our friend Pru the bee! Working with the Princess Royal Hospital (PRUH) an unmet need was identified and fulfilled through the Getting ready for clinic animation echo-uk.org/getting-ready-fo…
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