@ALFP_org

ALFP Mission: Improve the management of lymphedema and related disorders in the United States while contributing to global international advancement.

Joined September 2012
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New Action Alerts - EMAIL and/or TWEET Congress! Congress is beginning to work on the next #COVID19 response package! Contact them & ask that the #LymphedemaTreatmentAct be included! #lymphedema Email votervoice.net/LTA/Campaigns… Tweet votervoice.net/LTA/Campaigns…
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As lymphies, we're already hyper-aware of changes in our skin. Although more information is needed, here's another reason to keep an eye out for rashes or other dermatological symptoms. via @ClevelandClinic #COVID19 #coronavirus #dermatology consultqd.clevelandclinic.or…
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LE&RN honors Annerose Zorn-West with 2020 Impact Award. mailchi.mp/lymphaticnetwork/…
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During these unprecedented times of self-quarantine and #socialdistancing, it's important for all of us to take steps to ensure we stay healthy. Use these self-care resources to take care of yourself this weekend and beyond. #endcancer bit.ly/3cp1iOE

Patient & Visitor Safety

mdanderson.org
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Help us validating a QoL tool for greater understanding of how lymphoedema affects lifes of children and young people: English: surveymonkey.co.uk/r/LYMPHOQ… Danish: surveymonkey.co.uk/r/LYMPHOQ… German: surveymonkey.co.uk/r/LYMPHOQ… French: surveymonkey.co.uk/r/LYMPHOQ… Italian: surveymonkey.co.uk/r/LYMPHOQ…
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‼️Its more important THAN EVER in this #covid19 public health crisis, to pass the LTA to keep patients out if the hospitals, at home and healthy••🦋🇺🇸•• #lymphaticdrainage #covid #coronavirus #lymphedema… instagram.com/p/B-fHetXg4G8/…
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Something as simple as a small knock can turn into a non-healing wound or ulcer so look out for your legs! If you do knock your leg, keep a close eye on it and if it doesn’t heal as normal get in touch with your GP surgery #selfcare #legsmatter #protectourNHS
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Thank you so much for the sharing, @TheLymphieLife. Stay safe.
the Lymphie Life@TheLymphieLife13 Apr 2020
"We are all living with fear these days. Sure, there is a lot of variance in the kind and the level of fear we each face and are trying to manage [...] I am afraid too. I live with fear, yes. But do I live in fear? No." via @NancysPoint nancyspoint.com/keeping-fear…
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Lymphedema not only affects the patient's physical health, but their quality of life and psychological well-being, too. via @LymphedemaGuru #lymphedema #lymphoedema #QoL lymphedemablog.com/2020/04/1…
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Gordon Research Conference award winners. LE&RN recognizes researchers at GRC. mailchi.mp/lymphaticnetwork/…
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Even though we may be apart, wishing you and your loved ones a joyful springtime holiday season 🌷
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"We are all living with fear these days. Sure, there is a lot of variance in the kind and the level of fear we each face and are trying to manage [...] I am afraid too. I live with fear, yes. But do I live in fear? No." via @NancysPoint nancyspoint.com/keeping-fear…
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Made a bingo board for us lymphies - I was able to fill a few rows and columns myself! 😅 #lymphedema #lymphoedema
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"A cure for lymphedema would help restore my honor, give me my freedom back and a new future to look forward to," Kelly Bell. Read Kelly's story; submit your own. We will take them to Congress. #RemoteLymphLobby #VoicetoCongress #LERNadvocacy #NotInvisible lymphaticnetwork.org/congres…
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Today free online Symposium: "Managing LE Under COVID-19 Stay-At-Home Orders" with Kathleen Shillue. mailchi.mp/lymphaticnetwork/…
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LE&RN's advocacy efforts continue and we need your help. We need your story to continue the fight. mailchi.mp/lymphaticnetwork/…
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Make your home into your exercise zone! You don't need equipment or special space. A lot can be done in your chair. If walking is difficult, just move your feet around in circles, then up and down – you can do this sitting down #selfcare #legsmatter #protectourNHS
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miragenews.com/researchers-h…

Researchers Have 'Eureka' Moment When Studying Molecule's Role in Lymphedema

Discovery could lead to new treatments for previously untreatable lymphatic diseaseTamara Terzian, PhD, a dermatology professor and researcher in the

miragenews.com
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africanarguments.org/2020/03…

These diseases that affect 1.5 billion people affect one group the most | African Arguments

Among the poor communities affected by Neglected Tropical Diseases, one group suffers disproportionately: women and girls.  At first glance, Adzo Kouwonou looks just like any woman her age. You might...

africanarguments.org
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It all began with a curiosity about the molecular mechanisms of lymphatic anomalies in mice. “That’s how the journey started,” says Tamara Terzian, PhD. “Revealing this new and central role of p53 in #lymphedema is just amazing.” via @CUAnschutz news.cuanschutz.edu/news-sto…

Researchers Have ‘Eureka’ Moment When Studying Molecule’s Role in Lymphedema

Tamara Terzian says her team rather accidentally entered the world of lymphatic diseases while researching a tumor-suppressor molecule's role in cancer.

news.cuanschutz.edu
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