Caring for family with Dementia at home. #Carer 2009-15 #RemoteCarer 2022 - March 2023 🕊️ Service Research/ Family Carer Experience… journal/point to gather.

Leeds | Yorkshire | UK
Joined October 2010
Caring for my Dad in his last chapter was such a privilege and I learned so much. Family care is hidden. Sometimes that isolation then makes things more distressing. #community and #familycarers need to see life with #dementia in the open, so we can all help each other. #connect
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The Dementia Research Centre and Rare Dementia Support teams are asking current and former carers of people with dementia to participate in a short survey about the impact that caring for their loved one has had on their quality of life. There is a need for more evidence in this area and in particular, on how the impact on carers changes as dementia progresses from the early to later stages of the disease. We hope that this survey will help in starting to address this evidence gap. At Alzheimer’s Society we know the significant impact on unpaid carers and we want to make sure this is properly recognised by NICE. The Dementia Research Centre and Rare Dementia Support teams intend to share the findings from this survey with NICE (the National Institute for Health and Care Excellence) who are currently giving further consideration to their assessment of the impact of dementia on unpaid carers, as part of their appraisals of the first two disease modifying treatments for Alzheimer’s disease. The findings will also be useful for future appraisals of new treatments. You can take part in the survey by by 11:59pm Sunday 26 April at: spkl.io/6019AfTWf
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#AlzChat Our canary Captain Custard brought so much joy. Initially a friend and distraction for person with dementia. Then a help and laughter for everyone caring. Canary at Home Care Plan! And then even more years being a friend to grieve with. 🐥❤️
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🚨 Just received: a treasure trove of caregiving wisdom from @AlzAuthors — a heartfelt collection of books that are changing the way we support families living with dementia. 📚💜 Lance A. Slatton (@Lanceaslatton), "The Senior Care Influencer", and All Home Care Matters are honored to partner with AlzAuthors to amplify this mission of hope, strength, and real stories that empower caregivers everywhere. 🌟🫶 Each book is packed with genuine caregiver experiences, practical advice, and deep compassion — lighting the path for families and organizations navigating Alzheimer’s and dementia. We’re here to ensure no caregiver walks this journey alone. Together, we stand stronger. 💪❤️ From awareness to action, education to empathy, this collection fuels our fight to uplift every caregiving heart. 🙌 To family caregivers, organizations, and advocates — these stories belong to you. Let’s share them, honor them, and build a supportive community that lasts. 🌍🌈 Thank you, AlzAuthors, for trusting Lance and All Home Care Matters with this incredible resource to inspire, educate, and support caregivers worldwide. 💙📖 #care #dementia #dementiaawareness #endalz #stopalz #alzheimers #caregiver #caregiving #caregivers #resources #help #healthcare #memorycare #support #resources
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Kathryn Grace retweeted
Caring Beyond the Diagnosis: Music, Incontinence, and Whole-Person Wellness youtu.be/nVUFQaf3ab8?si=yjTm… @clinic_memory @AlzSpksRadio
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Falls are not an inevitable result of ageing, but the risk of falls increases with age. You can manage your risk of falls through: 🏃 Physical activity and exercise 🥗 Health and lifestyle 💡 Aids and adaptations in your home Find out more 🔗 leedsdirectory.org/falls-pre…
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RIP Captain Custard 💛✨
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Some of you will remember my regular tweets during 2009-2015 when I was a family dementia carer. A key character in our circle of care was my Dad’s canary. He was due to live 6/7 years… he made it to 14.5! Sadly he fell asleep on Saturday for the last time… a job well done 💛
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Looking for things to do this weekend? 🎨☕ Check out community events near you: bit.ly/Activities-Calendar-L…
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Kathryn Grace retweeted
#dementia As a person's progresses, we must learn to adapt the friendship rather than allow it to wither. #Alzheimers #quote
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Kathryn Grace retweeted
Whether and how a society cares for its elders is a revealing measure of its integrity and values. #Alzheimers #dementia #quote
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So this is your chance everyone… patients, carers, paramedics, doctors, nurses, medical teams, carer teams, pharmacists, volunteers, charities, community groups, local government, entrepreneurs… all of us to share our thoughts, experiences, insights, wisdom #InThisTogether #NHS
Have your say and share the ideas you have for change. Help us shape the future of the NHS. ➡️ change.nhs.uk
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#AlzChat Reminiscing: Can be as therapeutic for you as a carer as it is for the person you care for. As a daughter I loved finding things out from the past that I wasn’t around for. It was good for calming my Dad down or distracting him if we were waiting at the hospital.
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Kathryn Grace retweeted
Reminisce with cooking as a form of storytelling…. lifestyle.livemint.com/food/… #alzchat
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Wrote & produced a booklet with my mum about her life before she married my dad, and while she could still remember details of her childhood & youth. Included old b&w photos. Gave copy to her nursing home & staff really appreciated the chance to get to know her better #AlzChat
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We love getting feedback postcards from recipients of our brand boxes! Our completely free, letterbox sized boxes encourage reminiscence and emotional connection for people living with dementia. Email [email protected] to request your own box to keep and share.
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