@webbaamy

Oncology Advanced Clinical Practitioner with a passion for ensuring early access to Palliative Medicine, and advocating for Advance Care Planning.

 Norwich, England
Joined June 2011
  • Tweets20
  • Following83
  • Followers16
We strongly support the recommendations of @AGoodDeath latest report. You can read the report in full here cdn.compassionindying.org.uk… #compassionindying #eolduk
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'Talking about dying won’t make it more likely. Death rates remain a stubborn 100% despite medical advances, a rate that looks unlikely to change'. Fab piece by @drkathrynmannix on new study of (over) investigation of pts who die <6mths later #Last1000Days theguardian.com/commentisfre…

In your final years, do you want your doctor to talk to you about death? Here’s how it can help |...

Working in palliative care, I’ve seen too many dying people subjected to invasive treatment in place of frank conversations, says retired palliative care doctor Kathryn Mannix

theguardian.com
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A fab article from @Telegraph today raising the importance of good #supportiveoncology 👇 digitaleditions.telegraph.co… @TheChristieNHS @CancerCareMASCC @RCRadiologists @RCPhysicians @DanielMonnery @drol007 @MattPalliative @ash375 @drjenscaife
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Dr Ollie Minton on shared decision making in emergency cancer presentations. 2/3 of these patients will die within a year. Plan for the best, prepare for the worse - gives patients the best of everything in a pragmatic and patient centred way. @OncologyForum
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Patterns of acute hospital & specialist palliative care (SPC) use among people with non-curative upper gastrointestinal cancer showed less likelihood of hospital re-admissions if patients were referred to the hospital SPC team⁦ @DrFlissMurtagh⁩ link.springer.com/article/10…

Patterns of acute hospital and specialist palliative care use among people with non-curative upper...

Supportive Care in Cancer - Upper gastrointestinal (GI) cancers contribute to 16.7% of UK cancer deaths. These patients make high use of acute hospital services, but detail about palliative care...

link.springer.com
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Crazy. If only hospices had proper investment and greater number of beds. Makes asking someone about their preferred place of dying a slightly pointless exercise.
Shaun Lintern@ShaunLintern9 Jun 2024
Another important and still very much live issue I wrote up for @thetimes Hospices face turning dying patients away as costs rise without NHS support. FREE to read today thetimes.com/uk/healthcare/a…

Inside one hospice as struggling sector faces turning the dying away

Hospices will be forced to turn dying patients away because they are struggling with steeply rising costs at a time when the NHS is not increasing funding. To f

thetimes.com
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New ASCO Guideline on Palliative Care for Patients with Cancer ascopubs.org/doi/full/10.120… 1. Early referral to SPECIALIZED PC leads to improved QOL, mood, higher likelihood of documenting EOL preferences 2. PC teams are fundamentally interdisciplinary 3. PC benefits caregivers emotionally/psychologically 4. Referral should be "timely" - do not wait until cessation of therapy 5. PC helps pts with hematologic malignancies and those on phase I trials

Palliative Care for Patients With Cancer: ASCO Guideline Update

ASCO Guidelines provide recommendations with comprehensive review and analyses of the relevant literature for each recommendation, following the guideline development process as outlined in the ASCO...

ascopubs.org
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What is a digital legacy and how can you manage yours? pilgrimshospices.org/news/di… @PilgrimsHospice #digitallegacy #hospice #hospiceeducation

What is a digital legacy and how can you manage yours?

James Norris, founder of the Digital Legacy Association, explores how we can plan for what happens to our digital life after we die.

pilgrimshospices.org
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What an amazing final message 💔
BBC Breakfast
@BBCBreakfast3 Jun 2024
'By the time that you watch this I will no longer be here' A poignant final message from the Leeds Rhinos legend and MND campaigner recorded before his death for a special BBC documentary 'There's Only One Rob Burrow' @BBCOne @BBCiPlayer
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For the people in the back. @ASCOPres says during presidential address that palliative and supportive care must be woven into all of cancer care. A first. Palliative care on the main stage. #hapc
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"It's people who change lives." @tommyNtour sends out a passionate rallying cry for the #WhatMattersToYou movement. @PalliativeNNUH #PalliativeCare #DMAW2024
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Beautiful explanation by @SammyWinemaker & @HSeowPhD - teaching everyone the skills to have a better illness experience. Unlocking the 7 keys waitingroomrevolution.com/ #DMAW24
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About how other clinicians refer (or not) to palliative care... The genius of @DrJRubenstein, animating a conversation of desperation we held a few weeks ago. I'm very proud of this one. 🔥if this sounds familiar ✋🏽if you plan to take this advice youtu.be/nkWrJeBq0hI?si=ZW7a…
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The fifth vital sign? Nurse worry predicts inpatient deterioration within 24 hours pubmed.ncbi.nlm.nih.gov/3202…

The fifth vital sign? Nurse worry predicts inpatient deterioration within 24 hours - PubMed

Nurses' pattern recognition and sense of worry can provide important information for the detection of acute physiological deterioration and should be included in the electronic medical record.

pubmed.ncbi.nlm.nih.gov
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I've written a piece on the relationship between end of life and the future of the NHS. Part of the #NHS2048 @reformscotland series on how the NHS can be sustained and improved.
Enlighten@enlighten_scot23 Apr 2024
“the NHS, like most western healthcare systems which were designed to treat and fix, retains an ambivalent relationship with incurable disease and dying” @Palliative_Scot writes for #NHS2048 ⬇️ reformscotland.com/nhs2048/h…

How doing end of life differently can help sustain the NHS

Mark Hazelwood, CEO of Scottish Partnership for Palliative Care & Good Life, Good Death, Good Grief writes for Reform Scotland's #NHS2048

enlighten.scot
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Great paper from @UHSussex @drol007 and team - ⬆⬆ unplanned ED use in last 90 days of life regardless of condition; 10 primary care contacts in last yr ⬇ likelihood of death in 🏥; palliative care registers don’t impact on dying in 🏥 but do ⬇ unplanned emergency admissions
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As doctors, we are failing to put patients’ needs first, causing harm at the end of life | Death and dying | The Guardian theguardian.com/society/2024…

As doctors, we are failing to put patients’ needs first, causing harm at the end of life | Letters

Letters: Doctors including Zachary Tait and Rupal Shah, and recently bereaved readers Jo Fisher and Rebecca Howling, respond to Adrian Chiles’s column on how his father spent two of the last days of...

theguardian.com
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Lovely to chat to @DrJRubenstein this week. Here's his breakthrough short video, ICYMI. How many times have you avoided a necessary palliative care conversation 'in case it upsets people'? youtu.be/BbNi_-wYXJE?si=ZzE9…
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So excited to be an event at the first UK National Advance Care Plan Day 2024 @ACPDay2024 still a few tickets left for the inperson conference and to livestreaming #AdvanceCarePlanning
Advance Care Plan Day 2027@ACPDay20279 Apr 2024
Attend the 'Getting Your House in Order - Advance Care Planning' Conference. 🗓️8th May, 2024 *The conference can be attended face to face or virtually. 😍 🎟️advancecareplanday.org/acp-c… #ACPDay2024 #AdvanceCarePlanning #whatmattersmost
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