Father of 2 beautiful boys and husband to the strongest woman I know. Raising awareness of children’s brain tumours and giving thanks to LGI #RouxsArmy

Hull
Joined February 2009
Home and happy. I thought writing about the last few months would help with dealing with what’s happened to our little family. It’s not over yet but we’ve come a long way: toneo11.wordpress.com/2020/0…
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PM Andy Burnham has responded to Archie Goodburn and asked to meet and hear from him directly.
Archie Goodburn has made an emotional plea to the prime minister. The Scottish 50m breaststroke record holder was diagnosed with brain cancer two years ago.
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Noah’s big brother is completing an incredible challenge today by walking the 9 Edges for @OscarsCharity . Unbelievably proud daddy today. #RouxsArmy justgiving.com/fundraising/N…
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1/6 Not the best update on Roux’s eye. Roux was seen by 3 different people in Leeds on Monday and There was a lot of information to process. In short, Roux’s left eye has filled with blood and blood clots. The purple tinge we’ve been able to see in his iris is actually blood.
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5/6 We’ve been told the clots should eventually disperse naturally, but as they do his eye will lose its form and soften, which carries a risk of him losing his eye. It feels like choosing the lesser of two evils and yet another awful decision 💔
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6/6 The only positive is Roux isn’t showing any signs of pain or discomfort. We’ve started the steroids and are hoping they can keep things under control. We just wish we could take all of this away for him – it often feels like one battle after another. #BrainTumourAwareness
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Replying to @Argos_Online
@Argos_Online @ArgosHelpers what a joke. Due delivery of a bed this morning. Given a 7am-9am slot, doesn’t arrive. Wait until 11.30am. Contact you myself to be told the delivery has failed. How on earth does that happen? Wasted my Sunday morning. Paid a set day and slot …/1
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@Argos_Online @ArgosHelpers and ruined my Sunday morning waiting. How on earth is that acceptable. Then telling me on live chat the next slot is 6th November. Not good enough. I’ve got no bed!!! Joke of a company and service appalling.
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Antony Owen retweeted
Class act 🧡 #hcafc
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6 today! Roux, what a milestone. You’ve come so far and we are incredibly lucky to have you as our son. Love you ❤️💙
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Antony Owen retweeted
Fantastic from Brighton, this. A massively important message delivered very well.
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Replying to @toneo
What a beautiful video this is. Not just the sound of Rouxs incredible laugh, but also yours too
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Daddy being silly after a tough week. Roux proving you just have to laugh it off. Sound on 🔉 🤣#RouxsArmy
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Excuse the mismatch pyjamas. We have to pair long sleeved tops with shorts. Short sleeves means he can get the heart rate monitor off his arm 🤣
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Replying to @MotabilityOps
@MotabilityOps @Motability some of the worst service for the most vulnerable. Would appreciate any sharing please from Roux’s Army. A thread: 🧵 middle of August our Motability car broke down on the motorway, 5 hours at the side of the M62 waiting for recovery, then given a ../1
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A company you would think has compassion, clearly does not. Over the last 2 hours, I’ve dealt with RAC, AA, Europcar, KwikFit. @MotabilityOps @Motability should be making life as easy as possible for families like ours and instead they are dismissive and unsupportive
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I am absolutely disgusted by this service and feel isolated. At the end of the day the one that suffers is our 5 year old disabled son, Roux. #RouxsArmy
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