@timbuckinx
Joined July 2009
  • Tweets673
  • Following483
  • Followers198
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Big news ! 💥We've teamed up with @BrightMindsBio to bring our real-time seizure detection tech to their phase 2 trial for drug-resistant #epilepsy. Making invisible seizures visible → right from home 📱🧠💡 #digitalhealth #EEG #clinicaltrials 🔗 hubs.la/Q03tk5xR0
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Tim Buckinx retweeted
Ring20UK@Ring20UK10 Dec 2024
Replying to @Dr_Rhys
@Dr_Rhys's poster attracted a lot of visitors yesterday. 🙏for sparking conversations & new interest in r(20) #epilepsy. Together with @timbuckinx,Trustee, Margaret, r(20) family member rep Ring20 USA & Kentaro Tokumoto (SAB member fm 🇯🇵) r(20) is breaking new ground at #AES2024
Rhys Thomas@Dr_Rhys9 Dec 2024
Are you interested in Ring Chromosome 20? Come and find me at lunch in the poster session - poster 306 Thanks to Arun Soma and @Ring20UK #AES2024
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How can breathing, sound & music can promote #BrainHealth and combat brain disorders? 🎶🧠 The #BIDays attendees experience firsthand the effects of breathing, sound and music in their bodies.
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What a great first day already!
Brain Innovation Days@BrainDays13 Nov 2024
Replying to @BrainDays @paolazaratin @Balabancheto @EHA_President @npisociety @aism_nazionale @lisa_toni_burke @trroos @PRIME_H2020 @EU_HaDEA @ADHD_Europe @IntDiabetesFed @EANeurology @Euro_Psychiatry @PatientInnov @InstitutCerveau @UKDRI @MissionLucidity @KU_Leuven @KeriPeter71 @GAMIAN_Europe @timbuckinx @wrepihunter
🥂After an exciting first day, we break for the evening to celebrate the 4th edition of #BIDays. Join us and unwind at our networking cocktail reception and walking dinner in the Innovation Hall!
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🌍 On November 13-14, join us in Brussels for the #BIDays!✨ Speakers from all over Europe & beyond will cover all kinds of exciting topics within the general theme "Navigating the Brain Across a Lifetime". Check out the programme and register now 👉 braininnovationdays.eu/progr…
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Extremely excited to be speaking at the #Brain #Innovation Days about the pioneering @wrepihunter DTx strategy using auditory neuromodulation. Sound as the medicine for brain disorders! 🗓️ 13-14 Nov. 2024 📌 Brussels, Belgium #BIDays Register now: 👉 braininnovationdays.eu/
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Tim Buckinx retweeted
Ring20UK@Ring20UK9 Sep 2024
Big audience for #EEC2024 session on genetic testing. @SarahWeckhuysen very explicitly speaking about the need to do karyotyping if r(20) syndrome is suspected as it is frequently mosaic. #epilepsy #diagnostics #karyotype is still important!
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Happy to participate in the great conversations for this important and insightful work!
European Brain Council@EU_Brain28 Jun 2024
📅Today is International Phenylketonuria Day! EBC has released Study Insights on "The Value of Education: Digital Care Pathways for Rare Brain Diseases research project – The Case of Phenylketonuria" #PKUDAY2024 #adultPKUawareness 🔍Read the report here: bit.ly/4eL8aqv
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📅Today is International Phenylketonuria Day! EBC has released Study Insights on "The Value of Education: Digital Care Pathways for Rare Brain Diseases research project – The Case of Phenylketonuria" #PKUDAY2024 #adultPKUawareness 🔍Read the report here: bit.ly/4eL8aqv
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It’s so important for companies to understand why people with epilepsy need specific considerations in the workplace. Tragic losses like these should never happen. With a little knowledge, this would’ve been avoided. Make sure you don’t fail your employees epilepsy.org.uk/training

Epilepsy training - Epilepsy Action

We offer specialist epilepsy training and profession specific e-learning to help you support people with epilepsy in your workplace.

epilepsy.org.uk
Epilepsy Action@epilepsyaction23 May 2024
Supermarket @Morrisons has lost its appeal to overturn convictions following the death of an employee with epilepsy. This highlights the importance of safety for staff with epilepsy. We have contacted Morrisons to offer first aid training as a result. epilepsy.org.uk/morrisons-lo…
A shop front to a Morrisons store

ALT A shop front to a Morrisons store

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Excited to join @aparitohealth for their upcoming webinar where our CEO @timbuckinx will share insights and perspectives from our work at @wrepihunter ! #dailylifeimpact #epilepsy
This Post is from an account that no longer exists. Learn more
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With @BBCStoryWorks 📹 & @medtecheurope 🧠 🇪🇺 I share my excitement re #MedTech, its possibilities, the need for managing it well, & how it can and already is leading to improving people’s quality of life 👇🏻. linkedin.com/feed/update/urn… Examples of people and company’s leading when it comes to MedTech and the epilepsies, include: - @SBeniczky, @FiladelfiaGene1, @AllanBayat, @Elegardella, @NazaninAzarine1, at @Filadelfia_DK 🇩🇰 - @krispmelb from the @UNSW 🇦🇺 - @UNEEG_medical 🇩🇰 - @epilepsy_london team from @KingsIoPPN 🇬🇧 - @BenHBrinkmann & @jsirven from @MayoClinic 🇺🇸 - @timbuckinx & the @wrepihunter team 🇧🇪 - @JNys86, @hdanneels & the @byteflies team 🇧🇪 - @SeerMedical 🇦🇺 - Daniel Goldenholz from @bethisraellahey 🇺🇸 - Christine Maher from the @Sydney_Uni 🇦🇺 …& so many more! #epilepsy #neurology #mentalhealth #psychiatry
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Replying to @EU_Brain @brainteaser2020 @Kympouropoulos @MagdaEfpia @EFPIA @BrusselsDC @wrepihunter @eurordis @timbuckinx @AlexionPharma @AmylyxPharma @AtaxiaUK @Bham_Childrens @ScuolaSantAnna @VincianeQ
It’s a wrap! After an open discussion on unmet needs engaging Michelangelo Mancuso (@EANeurology), Anna Jansen (@EPNSnews) and the audience, the concluding remarks from Frédéric Destrebecq bring the event on a rare brain disease ecosystem to a close.
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Replying to @EU_Brain @brainteaser2020 @Kympouropoulos @MagdaEfpia @EFPIA @BrusselsDC
We turn the focus to patients and caregiver priorities, with a personal testimony from Tim Buckinx (@wrepihunter) and interventions from Matt Bolz-Johnson (@eurordis) on #MentalHealth and rare conditions and Orla Galvin (@EUneurology) on rare #neurology.
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Tim Buckinx retweeted
Anna Jansen@jansen_ac29 Feb 2024
Super powerful testimony of @timbuckinx at @EU_Brain ‘Towards a Rare Brain Disease Ecosystem’ Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families #RareDiseaseAwareness
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The main purpose of #RareDiseasesDay is to raise awareness about rare diseases and their impact on the lives of those affected. Discover the programme & register now 👉 braincouncil.eu/event/toward…
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On the occasion of the #RareDiseasesDay, join us to explore what can be done to improve the lives of people living with a rare disease! 📅 29 February 2024 🕙 10:00-14:00 📍 Brussels & Online Discover the programme & register now 👉 braincouncil.eu/event/toward…
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🌟 Exciting news! 🌟 Our phase 3 prospective study for absence seizures is featured in the Epilepsia journal Special Issue! 🎉📚 So thankful about the world's leading journal of original scientific research and commentary in epileptology. 🌍💡 🔗 hubs.la/Q02gzZz90

3rd International Congress on Mobile Devices and Seizure Detection in Epilepsy. Guest editors:...

Epilepsia is the leading journal for innovative clinical and basic science research for all aspects of epilepsy and seizures, aiming to improve diagnosis and treatment.

onlinelibrary.wiley.com
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Pain: the common factor in touching music and health entrepreneurship linkedin.com/pulse/pain-comm… via @LinkedIn

Pain: the common factor in touching music and health entrepreneurship

The music that resonates in our hearts isn't born out of a flawless life. Instead, it comes from the pain endured by an artist.

linkedin.com
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What a great event avoiding the typical needle in the haystack inefficiencies! Indeed great conversations!
Ring20UK@Ring20UK17 Nov 2023
What a team! Pitching to companies at Rare Neurology-CNS partnering event to advance the science in chromosome disorders assoc with refractory #epilepsy. Some exciting opportunities to follow up for both @Ring20 and #UKRET 🙏@ronijort and team #speeddating
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