Synapticure retweeted
Eight years with ALS has taught me a lot.
Some things have changed. Others stay the same. Joy looks different now, but it's still there. In my girls. In Sandra. In a great pair of socks and a mountain I wasn't supposed to be able to ski.
Synapticure retweeted
On Friday I hit a wall (figuratively, relax). Thankfully I had the energy to attend a few sessions, hug a couple of superstars and hear @NEALSConsortium present on EAP04 of CNM-Au8 which I have been taking for almost 3 months completely virtual through @synapticure
Synapticure retweeted
Granulin loss of function in human mature brain organoids implicates astrocytes in TDP-43 pathology
@MartinadeMajo, @UllianLab, @HuangLab, @KampmannLab, @synapticure, @AlectorTx and others
hubs.li/Q02WXzL_0
Top-cited paper from @stemcellreports
@ISSCR @martinperaJAX
Synapticure retweeted
Synapticure Secures $25M To Scale Virtual Care for Neurodegenerative Diseases medcitynews.com/2024/11/syna…
Synapticure retweeted
After @sabrevaya's husband @bsw5020 was diagnosed with terminal ALS, they built @synapticure to help patients access neurodegenerative treatments — "Families want someone to provide the right testing and thoughtful guidance on their treatment plan."
bit.ly/48Uj3DO
Synapticure retweeted
Hi Caregiver friends, If can't find the care we need, let's build it. 💪
@synapticure
Alzheimer's, Parkinson's, ALS
Our CEO & co-founder @sabrevaya was named @Entrepreneur's Top 20 Innovative Leaders of 2024 building one of the fastest-growing #NeuroCare platforms and showing how caregivers can lead and shape the future of healthcare.
Read her interview:
entrepreneur.com/leadership/…
Synapticure retweeted
Thank you, @bsw5020 for using your voice in this space as well 🙏
For all those living with Alzheimers or other dementias, this blog is very helpful in explaining the difference between the different dementias and helping you find the right clinical trial.
synapticure.com/blog/synapti…
Synapticure retweeted
In my happy place at Vanderbilt’s @VUMChealth #Huntingtonsdisease Southeast Symposium!! #LetsTalkAboutHD @HD_Genetics @BJsView @HDSA @synapticure – at Nashville, TN
Synapticure retweeted
What is the new government program for dementia? The @synapticure team breaks it down in simple, accessible language so that everyone can understand what it is and how it can help you.
synapticure.com/for-patients…
Synapticure retweeted
We’re excited to announce our partnership with @synapticure to deliver #Medicare's Guiding an Improved Dementia Experience (GUIDE) model to Traditional Medicare beneficiaries aligned with Pearl’s provider partners: pearlhealth.com/blog/news/sy…
Synapticure retweeted
We all deserve the best care no matter where we live. @synapticure will give you the best care possible all from the comfort of your home.
At Synapticure, we’re here to help you manage every aspect of #Parkinson’s disease. Here’s how:
🧠 Movement disorder specialists
🧬 Personalized Care Plans
💙 Mental Health Support
💊 Medication Management
💪 Access to wrap-around services
📞 Call (855) 255-5917 to learn more!
Synapticure retweeted
An amazing new interview of @sabrevaya and I came out on @npratc. We talked about our lives and all of the work that we are doing now.
A huge thank you to the team at All Things Considered for leading with your hearts. I will always be grateful to you.
npr.org/2024/06/05/nx-s1-495…
Synapticure retweeted
Discover how our speech-language pathologist helps patients with ALS, Parkinson's, and Alzheimer's enhance communication and manage swallowing difficulties to improve overall quality of life for themselves, their caregivers, and loved ones.
Read more: vist.ly/39z4a
Synapticure retweeted
Working alongside @bsw5020 and @sabrevaya as well as the whole @synapticure team is an honour and a privilege.
This film will make you laugh out loud, cry and will show you what can be achieved with determination and passion. Thank me later!
“For Love & Life: No Ordinary Campaign” is now on @PrimeVideo!
For those who have been diagnosed with a neurodegenerative disease, you are not alone. Support and resources are available. This film and our co-founders' journey are real reasons for hope: forloveandlifefilm.com/
Synapticure retweeted
For Love & Life: No Ordinary Campaign is now on @PrimeVideo
This isn’t just a film—it’s a powerful movement making a real difference in the fight against ALS.
Explore more about the film at forloveandlifefilm.com and the amazing efforts of @iamalsorg
Synapticure retweeted
When Brian Wallach was diagnosed with ALS, he was given six months to live. @bsw5020 and @sabrevaya’s film, For Love & Life: No Ordinary Campaign, chronicles their incredible journey, and proves that all of us are far more powerful than we know. I hope you’ll watch it on Prime Video and get involved with their work to find a cure for ALS at IAmALS.org.
Synapticure retweeted
Their company, @synapticure, has made such a difference in the lives of PALS and CALS.🙏🏻
Synapticure retweeted
$CLNN ‘s NIH-funded #ActEAP for #CNMAu8 in #ALS is dosing its first patient in June.
With 80% more capacity, we aim to enroll 180 patients, partnering with @Columbia and @Synapticure for expanded real-world data collection.
Learn more: bit.ly/3wGpVq4
#EndALS #EAP
Synapticure retweeted
ICYMI I wanted to share the amazing @TODAYshow interview of me and @sabrevaya and all of the things that we have been up to. Thank you @jacobsoboroff and @mollymhunter for the chance to share our story with the world!
Brian Wallach @bsw5020 and Sandra Abrevaya @sabrevaya sat down with @jacobsoboroff to talk about their @PrimeVideo documentary called “For Love & Life: No Ordinary Campaign,” executive produced by @katiecouric, their journey with ALS, @iamalsorg and more.


































