@stevenspohni
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Speaker. Storyteller. Director @MountSinaiNYC, Philosopher. Writer. Aspiring Iron Man. Guy trying to make the world better. Views my own.
Pittsburgh, PA
Joined December 2008
- Tweets19.5K
- Following1.1K
- Followers72.8K
- Likes27.5K
As of Sept. 15th, I made 46. I’m grateful I get to say that. ❤️
There’s a funny disconnect between how people sometimes picture my life with a disability and a photo like this. They see the disability. I’m over here celebrating another birthday with my beautiful girlfriend, friends, cake, and emotional support chicken nuggets.
Yes, life can be hard, but there’s still so much of it to love.
Thank you for being here with me. For laughing with me, caring about me, and sticking around. You’ve made my life better, and I hope you know that.
We’re here. We get to celebrate. And I’m grateful as hell to share it with you.
My YT channel chronicles my relationship adventures with @librarydove as 2 disabled people in love has an Instagram! We'd be honored if you'd follow us there, too!
instagram.com/interdisabledi…
Steven Spohn (Spawn) retweeted
Fenix Down is hiring a project manager to join our team!
This role is perfect for a highly organized person that is experienced in the livestreaming or content creation space. Apply below 🥰
payroll.justworks.com/career…
Remember, friends: thanks to X's creator program, people like this loser farm rage over things that don't exist to pay the rent.
The orange triangle is an option in the accessibility menu that you can turn off, and to make it appear, you have to press R3. He is literally trying to make this look as bad as possible to make fun of it so people rage at Insomniac or respond by calling him out —either way, he makes money.
As an added bonus, you can see people in the comments making fun of accessibility. The more this happens, the more people are using accessibility to bash games.
The BEST thing you can do is block; it tells the algorithm that his content is not worth reposting, and the more people who block, the fewer people will see his content, and then he and the other rage farmers will have to figure out a productive way to make a living instead of making up reasons to shit on other people's creations.
I made it to 46. Not bad, considering doctors told my mom I’d never see 3.
Each birthday, I celebrate by asking one celebrity to help me make the world a little better. This year, I’m reaching out to @mcuban, and you can help by vouching.
Mark, as a fellow Pittsburgher, I think we both value two things: time and making a difference.
Time, I’m running a little low on.
I’ve spent 25 years working in disability technology, and today I direct Mount Sinai’s Back-to-Life Center.
Here’s the problem I can’t stop thinking about:
No one teaches disabled people how to be disabled.
The healthcare system can save your life, stabilize you, rehab you—and then, far too often, send you home to figure out the rest yourself.
How do I use technology to regain independence?
How do I work?
How do I date?
How do I travel?
How do I find the tools that make everyday life possible?
How do I build a life instead of simply surviving one?
The answers exist. The technology exists. The knowledge exists.
But there’s no real bridge connecting people to it.
So here’s my birthday ask:
Let me send you one email laying out how I think we can build that bridge.
No pitch deck. No ask for a check.
If you think there’s something there, point me toward one person, company, or organization you think I should be talking to.
That would be one hell of a 46th birthday present.
Probably $10–15 million.
24/7 nursing alone at current PA Medicaid rates can run roughly $520k–$720k a year, before ventilators, supplies, wheelchairs, doctors, and hospitals.
Since you've decided my life is an accounting exercise: I've also raised $3.5M+ for charity, built a career around helping disabled people, paid taxes, and generated decades of paid work for nurses and caregivers totaling 15m+.
Turns out disabled people participate in the economy too.
And I'm still alive.
That was the point.
What've you done, troll?
Replying to @stevenspohn @mcuban
Any how many fucking millions of tax payer dollars have been wasted keeping you alive ?
F Twitter hate. Support @insomniacgames because they support accessibility. Go buy Wolverine.
My 20-year career: I want every game to include as many toggleable options as possible so that as many disabled gamers as possible can play.
Dev: Hell yeah!
Gamers: LFG!
Twitter:
I truly don't believe that's true, Tony. Listen, I've been in that exact mindset. I've had friends tell me to accept anyone who comes along and shows any interest, and even that I should accept that whoever chooses to be with me probably needs to get what they can't get from me from another guy.
It *is* incredibly difficult, and I got all the way into my forties before I found my person; I started looking in my teens. That's a long time, and believe me, I kissed a lot of frogs in the meantime. That said, with the amount of people out there, and the numerous examples of people like myself who are very physically disabled but yet somehow have found a significant other they love very much, it's not impossible anymore.
And when you're feeling bad about something, having someone tell you that it's possible doesn't always feel great either, because your brain is going to go, "Yeah, okay, whatever." But I'm telling you. So many people around me kept telling me to give up. And there were so many times that my brain was screaming at me that they were right.
In the end, they weren't. I'm glad I didn't give up. And I hope you don't either.
Even if your mental health is not in a headspace where you can do it right now. Tomorrow is another day.
Replying to @stevenspohn
Man I love you but what happened for you is not going to happen for the vast majority of us with significant disabilities. Finding someone that is going to love us for who we are is already incredibly difficult and my health is more important than the up and down of dating.
Spot the difference. You can't. Confidence comes from finding your source of power. For me, it was the unexplainable connection I found with this woman. From Hollywood to people in my face, I've been told all my life people like me don't get the happily-ever-after. People like me can't win at the game of love.
Ever been told that?
Ever thought that?
F@#! that!
I won. So can you.
You can find YOUR power source. You can do what others say is IMPOSSIBLE. Just don't give up on YOU.
Happiness is determination. Be unrelenting. Be stubborn. Be unwavering in the face of your obstacles.
Everyone said my life today was impossible. They said I'd never be happy with my life. They were wrong. So why the hell can't you be happy, too? Prove your haters wrong.
Huh. Wonder why I'm getting so many death threa... oh.
I love Twitter. This wrong tweet got twice as many likes as my op. Proving my point. Haters ignore what MIGHT help others.
Anyways: Yellow paint and glowing trails can serve as accessibility aids by identifying usable objects, marking routes, and reducing the need to search or memorize. There is no exhaustive diagnosis list, but these disabilities and impairments may benefit:
• Low vision or reduced contrast sensitivity: contrasting markers can make routes and objects easier to see.
• Cerebral or cortical visual impairment (CVI): distinctive colors can help some players identify important objects amid visual clutter.
• ADHD: persistent cues can help players refocus after distraction.
• Autism: explicit guidance can help players with relevant processing or planning difficulties.
• Intellectual disabilities: clear next steps can simplify navigation.
• Dyslexia: visual guidance reduces reliance on written directions.
• Dyspraxia or developmental coordination disorder (DCD): cues can support spatial reasoning, planning, or memory difficulties.
• Traumatic or acquired brain injury, including stroke: guidance can support impaired attention, memory, or planning.
• Memory impairments, including dementia: marked routes reduce the need to memorize navigation paths.
• ME/CFS and Long COVID with brain fog: clear guidance can reduce mental effort.
• Depression, anxiety, or PTSD: visual cues may help when symptoms impair concentration or information processing.
• Motor disabilities can benefit indirectly because less searching and backtracking may mean fewer difficult, painful, or tiring inputs. Examples include some players with cerebral palsy, muscular dystrophy, spinal cord injuries, Parkinson’s disease, or arthritis.
• Deafness, hearing loss, and auditory processing disorder: visual routes help when directions would otherwise depend on sound.
• Color blindness: cues should use distinguishable contrast, shapes, patterns, or other redundant signals. Simply making something yellow or blue does not guarantee accessibility.
Degenerative eye disease, etc., etc.
Benefits vary by person and design. Microsoft accessibility guidance: learn.microsoft.com/en-us/xb…
Replying to @stevenspohn
There is absolutely no disability that would require this trail as an accessibility feature.
I hear you, bro. I do. That said, I have a tube; I'm an Ambassador. Twitch & their upper-ups are wrong here, but the people in it do support us. Hell, I built a following full of great people with big hearts; anyone with a tube can too! Don't give up.
Replying to @stevenspohn @Twitch
Here's the thing: she gets people talking.
If someone like one of us becomes an ambassador, would most people listen to us? No. It's because of some built-in prejudice that needs to be undone.
Say what you want, but people want to see a pretty face over someone with tubes on our face.