@srfcure

America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.

 San Francisco, CA
srfcure.org
Joined April 2011
  • Tweets3.4K
  • Following1.6K
  • Followers3.3K
1.3KMedia
Diagnosing scleroderma takes time and multiple steps. Learn about how doctors approach it: bit.ly/45gjUw4
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Can scleroderma go into remission? Dr. Gordon breaks down how this concept applies to people living with scleroderma. Read the full column here: bit.ly/4yPtkNR
This is a promotional image for a column titled "Your Scleroderma Questions, Answered," focusing on scleroderma stabilization and navigating autoimmune disease. It features an individual smiling in a small circular inset against a blue background with a pattern, and includes the Scleroderma Research Foundation logo.

ALT This is a promotional image for a column titled "Your Scleroderma Questions, Answered," focusing on scleroderma stabilization and navigating autoimmune disease. It features an individual smiling in a small circular inset against a blue background with a pattern, and includes the Scleroderma Research Foundation logo.

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Cool Comedy • Hot Cuisine raises more than $1M to help end scleroderma! Last night, the Beverly Wilshire buzzed with energy and excitement as hundreds of people joined together for one purpose: to end scleroderma. Read more about this year's CCHC: bit.ly/4ypvuTt
A group of nine people is posing on a blue carpet at the Scleroderma Research Foundation event. They are dressed in formal attire. The backdrop features the foundation's logo.

ALT A group of nine people is posing on a blue carpet at the Scleroderma Research Foundation event. They are dressed in formal attire. The backdrop features the foundation's logo.

I'm sorry, I can't tell who this is based on the image alone.

ALT I'm sorry, I can't tell who this is based on the image alone.

I'm sorry, I cannot identify or describe the people in the image.

ALT I'm sorry, I cannot identify or describe the people in the image.

A person standing on stage gestures while speaking at a podium with "Scleroderma Research Foundation" displayed on the signage. The backdrop features large, partially visible text reading "Cool Comedy". The individual is wearing a blazer with colorful shorts and sneakers.

ALT A person standing on stage gestures while speaking at a podium with "Scleroderma Research Foundation" displayed on the signage. The backdrop features large, partially visible text reading "Cool Comedy". The individual is wearing a blazer with colorful shorts and sneakers.

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Scleroderma can affect tendons, joints, nerves, and other structures that impact mobility — leading to stiffness, pain, and in some cases, contractures. Learn more: bit.ly/4duxNx1
Image of X-ray scans overlaid with text: "How scleroderma can affect your joints." At the bottom, the logo of the Scleroderma Research Foundation is visible.

ALT Image of X-ray scans overlaid with text: "How scleroderma can affect your joints." At the bottom, the logo of the Scleroderma Research Foundation is visible.

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"He is a DIY guy with a degree in electric engineering, so there really wasn't anything he couldn't do! He was in the peak of health and felt incredible," says Naomi W. of her husband Stephen (dx 2025). Read their full story on our website: bit.ly/4hNcLLd
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Check out the latest research updates from the wider community last month: bit.ly/4yCElCc While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma.
A laboratory setting with two people conducting experiments. One looks into a microscope, and the other works in the background. The text on the image highlights "Last Month’s Scleroderma Research in the News." The Scleroderma Research Foundation logo is visible.

ALT A laboratory setting with two people conducting experiments. One looks into a microscope, and the other works in the background. The text on the image highlights "Last Month’s Scleroderma Research in the News." The Scleroderma Research Foundation logo is visible.

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Scleroderma renal crisis (SRC) is a serious but treatable complication—sudden high blood pressure (above 150/85mmHg) is the key warning sign. Early detection is critical. Learn more: bit.ly/4yCmn2E
A poster with text asking, "Do you know the warning signs of scleroderma renal crisis?" The Scleroderma Research Foundation logo is at the bottom.

ALT A poster with text asking, "Do you know the warning signs of scleroderma renal crisis?" The Scleroderma Research Foundation logo is at the bottom.

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Help advance scleroderma research through the CONQUER Registry 🔬 Learn more about how you can get involved on our website: bit.ly/3lLriy5
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Does scleroderma affect a transplanted lung? 🫁 After a lung transplant, the patient's scleroderma will not directly affect the new lungs. But that does not mean there are no concerns. Learn more: bit.ly/4z9i2UE
Text on a blue background reads: "How scleroderma can impact a transplanted lung." The Scleroderma Research Foundation logo appears at the bottom.

ALT Text on a blue background reads: "How scleroderma can impact a transplanted lung." The Scleroderma Research Foundation logo appears at the bottom.

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Offer your perspective directly to the researchers working on future treatments. 🌐 Program members may receive invitations to participate in patient advisory and focus groups, surveys, interviews, and other activities. Learn more and join: bit.ly/4y3HJFf
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“This new line of SRF merchandise has given me another way to spread the word," says Jane J. (dx 2008). Read her full story: srfcure.org/living-with-scle…
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People living with SSc-ILD will often be prescribed pulmonary rehabilitation. It combines walking or light cycling with simple strength exercises, plus breathing techniques like pursed-lip and belly breathing to help ease shortness of breath. Learn more: bit.ly/4epfHdQ
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See who's taking the stage at Cool Comedy • Hot Cuisine (CCHC) in Los Angeles on October 13! Help us end scleroderma. Sponsorships and tickets are available to purchase now, or make a donation. Register for CCHC: bit.ly/3Un7YrL
Cool Comedy Hot Cuisine - October 13, 2026- Benefiting the Scleroderma Research Foundation- featuring the incredible talents of Fortune Feimster, Matt Friend, Ron Funches, Jay Pharoah, Lisa Ann Walters, with host Jeff Ross, Bob Saget Legacy Award recipient John Stamos, co-auctioneer Seth Green, and special guest presenter Howie Mandel

ALT Cool Comedy Hot Cuisine - October 13, 2026- Benefiting the Scleroderma Research Foundation- featuring the incredible talents of Fortune Feimster, Matt Friend, Ron Funches, Jay Pharoah, Lisa Ann Walters, with host Jeff Ross, Bob Saget Legacy Award recipient John Stamos, co-auctioneer Seth Green, and special guest presenter Howie Mandel

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Missed Tuesday's webinar? You can now watch the full scleroderma-ILD session recording on YouTube 🎥 Watch the scleroderma-ILD session recording now: bit.ly/470Jk3k
Watch now: ILD webinar recording is now available on YouTube

ALT Watch now: ILD webinar recording is now available on YouTube

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Today is ILD Day, and we want you to join us in raising awareness about interstitial lung disease (ILD)—one of the most common and serious complications of scleroderma. Learn more and take action for ILD Day: pulmonaryfibrosis.org/get-in…
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TODAY is the last day to take the Scleroderma Health and Resources Survey 🕐 This survey gathers critical insight into the everyday realities of living with scleroderma to help shape research around what matters most to this community. Take the survey: bit.ly/4vDKgVc—
Survey Closing Today - Your lived experience is knowledge researchers can't get anywhere else.

ALT Survey Closing Today - Your lived experience is knowledge researchers can't get anywhere else.

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Happening TOMORROW!! 🫁 It's your last chance to register for this FREE webinar, led by scleroderma expert Toby Maher, MD, PhD. Everyone who registers will receive the full event recording straight to their inbox. Register now: bit.ly/45kXyuY
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We want to give a huge thank you to the more than 650 community members who have taken the Scleroderma Health and Resources Survey. Take the survey—closing on September 15: bit.ly/4vDKgVc
Your experiences can help build a fuller picture of scleroderma

ALT Your experiences can help build a fuller picture of scleroderma

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Only 1️⃣ week until our FREE webinar on scleroderma-associated interstitial lung disease (SSc-ILD)—sign up today! 🫁 Register for our SSc-ILD focused webinar on September 15: bit.ly/45kXyuY
1 week left - Staying Ahead of Scleroderma ILD Understanding Treatment and Progression - September 15, 2026 • 9 AM PT / 12 PM ET

ALT 1 week left - Staying Ahead of Scleroderma ILD Understanding Treatment and Progression - September 15, 2026 • 9 AM PT / 12 PM ET

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"I didn't start to notice symptoms until some time after being diagnosed," says Lisa A. (dx 2017). "I attributed some shortness of breath when climbing steps and such as a lack of activity." Read her full story: bit.ly/3Tc66SA
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