A positive and funny, yet honest & raw review on how to live life (well) with a chronic illness and disability

Ibiza
Joined February 2023
Hi! I’m Eline and in a wheelchair ♿️ since surgery leaving me with #CRPS and #FND 4,5 years ago. I’m advocating for disability rights in NL and sharing tips & tricks on how to live well with a chronic illness, on my blog thespooniescommunity.com. You can find my whole story there!
1
212
I have 4# hockey semi final tickets for evening game (India vs Germany) . looking to SWAP (NOT SELL) for the afternoon game (#Spain vs #Netherlands). @ParisTicketSwap #OlmpicGames #Paris2024    #ticketswap @paris2024
1
195
The Spoonies Community ~ Eline retweeted
Pijnlijk stukje met die animatie bij #Kassa gezien de geschiedenis van #MECVS (en nog dagelijkse realiteit) over dat artsen erachter komen dat opbouwtherapie niet helpt. En ze dat ze ‘snel’ achter kwamen. We mogen echt niet zo makkelijk over jarenlang leed heenstappen..
11
23
1
116
8,655
Days like #ValentinesDay can be so triggering for people with #chronicillness . Finding date ideas that are suitable even on low spoon days, the anticipation of a day like that when not sure if you’ll be able to make it. Do you get this as well?
0%Yes I do
0%Nope don’t have that
0 votes • Final results
1
14
Market research, help is much appreciated; - Is there something that you miss in your daily life due to chronic illness? Please let me know in the comments 🙏🏼 #ChronicIllness
9
M’n héle verhaal in detail met die lieve, warme Gwen. Dank je wel voor het creëren van een fijne en warme omgeving waarin ik dit kon en durfde te delen 🧡✨ . Ben heel benieuwd - vanuit alle kwetsbaarheid- wat jullie ervan vinden 🙏🏼 open.spotify.com/episode/5nM…
6
What’s your chronic illness ? Any of them listed below? 🌺 CRPS 🌺 FND 🌺 POTS 🌺 (h)EDS 🌺 ME/CFS 🌺 Asthma 🌺 Chron’s/UC/IBD/IBS 🌺 MS 🌺 Fibromyalgia 🌺 Endometriosis 🌺 PCOS Let me know in the comments 👇🏼 #crps #chronicillness #disability #disabled
73
5 years ago my whole life changed It feels strange, reaching this point, 5 years after my accident. How do we call it : an acciversary? An accidentersary? Feel free to give some love to below video. It’s my story. 🧡✨ happy new year everyone instagram.com/reel/C1hG6tgsG…
32
End of #2023 is here. Another year passed I wanna wish you a very lovely, magical, happy and above all healthy #2024 ✨ May it be filled with laughter and growth, gratitude and love 🧡 Thanks for being here with me on this little corner of the internet. Read more below 🧵👇🏼
1
28
I’m gonna be logging off as today is also my 5th accident anniversary which weighs a little heavier on me than I initially thought. See you on the other side lovelies 💋✨ #accident #anniversary #crps #chronicpain
32
That weeeeeeird moment between #Christmas and NYE where you don’t know who you are, what day of the week it is, what normal life looks like. Yep that’s me right now 👋🏽 Someone with me?!
12
Wide awake since 3am so let’s make a little thread out of #insomnia with #chronicillness Anything I’m missing, I’d love to know. Drop it in the comments! So what to do with insomnia? My own life hacks:
1
41
5. Too many things on your mind? Write them down! I always have a journal or little notebook next to my bed. Just the other day I wrote out my entire podcast ideas. Amazing 👍🏽
1
8
That was it! Right, im gonna follow my own advice, make myself a nice cup of tea, go to the living room and stop being on a screens if anyone has any other tips, sharing = caring! Lots of love and Merry Christmas
9
Will be starting to use the #daysy . Anyone experience with it and happy to share??? #daysyfertilitytracker #fertility
46