Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️‍♀️ sleuth of ME/POTS/MCAS/SjD
Brisbane, Queensland
Joined February 2011
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Probably a good reminder in this place. 👇
Because a truth not accepted or asked for does not minimise its validity, credibility or soundness.
No much how much time passes, the truth does not expire…
There must be a name for this affliction. Leaf litter-ary? I too, find all the leaf details and changes mesmerising…even if less accomplished at capturing w my phone camera!
Yes, love the rain drops dance - casual phone shot from what’s flowering in Oz in wet wintery day today.
Excellent spinal CSF Leak paper.
To quantify the barriers to care spinal CSF leak patients face, the Foundation collaborated with @AndrewCallenMD and @DanielM737 on a patient survey and paper.
We are thrilled to share that it has been accepted by @TheAJNR!
Abstract here: ajnr.org/content/early/2026/…
And another embedded pic from German ME association - much more fitting for severity of this condition. Well done all round ABC for thorough reporting.
I think this may be the source of much misinformation- even grok is conflating PEM in other condition such as fatigue in cancer. Anyone know how to lodge corrections to AI?
Wow, they’re so delicate. These from SA also stunning both in flower and later as burgundy gum nuts. #wildflowerhour
Noting that levels of blood pooling varies - from bright purple/red lower legs & arms - to normal in my son with ME. So those who tested normal shld be retested on worse days.
Anecdote vs fact. First major shooting since stricter gun laws enacted in 1996. Some recommendations from then were never enacted - & will now be. Forbes - Aust has 60 times less chance of death by gun violence.
forbes.com/sites/zacharyfolk…
