Facilitator, democracy & innovation @InvolveUK @Sciencewise @Nuffbioethics @WWF_UK Learning to live with #MS https://xitter.cf/t.co/52JG6eZMMs @sburall@mastodon.social
UK
Joined July 2009
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1 year ago, I left for Mastodon; a low cost decision because I was ill and not posting. I'm coming back slowly now.
My network is largely still here, I need to keep contact. So I'll post on Mastodon first and here three days later. The sooner we can stop enabling Musk the better
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Checkout @BylineTimes . Their Editor @Hardeep_Matharu grwat speaker @unisouthampton today chaired by @JYDenham
Simon Burall retweeted
Send me the reference or a link for my newsletter? inhealthassociates.co.uk/pat…
Simon Burall retweeted
23 years since the Kennedy Inquiry that said engagement must be embedded in the NHS.
Yet still patients have no real say in policy or influence across systems or commissioning or within providers.
We are still in the dark ages when it comes to patient power.
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Perhaps an argument is re digital creating silos that limit ‘true visibility’ of whole patient. Digital essential but not at the expense of yes/no decision trees that limit real visibility. Things get missed. Resources wasted. Time taken allows patient deteriorate. Worse outcomes
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Really exciting set of masterclasses being coordinated by @_rmhart on public engagement, facilitation skills and equitable engagement
Advice:If you’re going to use awhtsap broadcast to update friends about health developments Ina stark way; remember yourchildren are in th group
Eltofo in episode2 of disenchanted series6-captures where where I am”it’s not The-loss of the my past memories” I’m mourning but the future I won’t see Dakota cartoon got there before me
1/It’s been a while since the last update, apologies. We’ve had some bad news to absorb; though I’m recovering slowly from the stroke, the oncologists think the #cancer isn’t treatable
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#WorldCancerDay2024
Close the Cancer Gap
Together we challenge those in Power
Equal care for all
Equal funding and research for all
Rare cancers need more
Stage 4 needs more
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Wandered along to the buffet car early evening and was struck, as I always am, but just how convivial this method of travelling is 😊
People stood up chatting, having a drink, enjoying themselves. You just can’t do this on a plane in the same way! 🍷
The view post the largely sucesful tumour debunking surgery I’d good but doesn’t make up for th post op stroke
I posted this about a @demparadox episode on Mastodon. It's a great episode and worth a listen buff.ly/47sMlak
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Chief AI scientist at Meta basically like: "Here, let me set fire to your home, fire fighters and the insurance company will surely help later, it's not really my problem, I just do the fire part."
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We need council committees to be open and transparent by default. How might decisions be different if they were made in full view of the public?
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I posted about the latest leg of my #cancer journey on Mastodon last week. Follow me there for up-to-date news! buff.ly/3NOReDY
"A short post on the next leg of my #Cancer journey, there's some clarity and I'm feeling more positive. buff.ly/41McdNk "
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There’s a timeline of Computer Weekly coverage here, going back almost 15 years: computerweekly.com/news/2525…
