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Launched in Berlin at #EAPC2019, travelling now around the world!
How can you use the Primary Palliative Care Toolkit in your country? Cc @scottamurrayed @EAPCvzw @WoncaWorld
EAPC Primary Care Toolkit front-page news in October issue of WONCA Global Family Doctor newsletter. View the article bit.ly/34C4R02 & download toolkit now! EAPC Reference Group on Primary Care bit.ly/2NUe39c @scottamurrayed @s_moine
#PrimaryPalliativeCare
Sébastien Moine retweeted
This is very wise. Danny, how I wish I had known of you before. I am merely a doctor who works with terminally ill pts on a daily basis. An incorrigible atheist (irrelevant, but also a bit inconvenient to black&white thinkers, I know, I know), with my petty concerns about aspects that may affect the many people I see. I just wish I had you on stand-by. You who work so extensively with social workers, in prisons, with people who want to end their own lives after experiencing complex grief, you who are often found in homeless shelters prescribing Fentanyl patches to the drug user who also has an advanced head and neck cancer, you who deals daily with cancer pain, with breathlessness, with people who have no money to even plan where their next meal will come from. You, who are an advocate for the pregnant lady diagnosed with stage IV breast cancer (she is also 26 wks pregnant) and wishes to end it all, where no one is that keen to challenge her motivation, and everyone knows there is a coercive husband who will complain/sue if there is any hint of a challenge. You who never closes his eyes to the plight of those with less of a voice, whose right to die may become a bit of a duty, old boy. You, who I will be able to phone when oncall at 3am, when a call comes in to me (from a paramedic) as an expert on seizures when someone's assisted suicide has gone completely wrong and they need advice on airway and seizure management, and the family are screaming in terror at what was promised to be a dignified death. I can tell you one thing, I can never have quite enough of people just like you.
This is very wise. I also think it will prove very difficult. I have been struck by the vehemence of opponents of assisted dying, who seem certain it will produce coercive deaths and are not much moved by the terrible stories of pain and suffering which motivate supporters. Nor reassured by any safeguards put in place. They think our position shameful and a dialogue has proven hard. But Luke is totally right. This is a very difficult subject and there are strong arguments, as well as feelings, on both sides. We should try and listen respectfully to each other. And I am determined to do that even when it isn’t reciprocated.
Sébastien Moine retweeted
Replying to @HelenMagi
The concern is they know about structural and systemic inequalities. The MPs I’ve spoken to advocate for these issues all the time, but for some reason think it’s ok if someone is assumed to have less than 6 months to live.
It’s not an either/or.
You can support the legalisation of assisted dying AND insist that those who it will shift risk to must also be protected sufficiently.
If the @RCPhysicians @rcpsych @GeriSoc @APMPostTweets are ALL saying they do not think the safeguards go far enough-surely it should make MPs take a step back.
Sébastien Moine retweeted
Is assisted dying a treatment?
A lot hinges on this, not least doctors’ duty to inform patients about treatment options.
The TIA Bill is silent on this.
The @rcpsych is not.
If the situation wasn’t so bleak, it would be almost comical to see how the very factors that prevent most disadvantaged groups (those with the poorest health) from accessing care seem to have been selected to streamline these same groups towards assisted suicide.
Cc @soniasodha
The same factors contribute to ‘missingness’ in primary care, one of the most blatant manifestations of health inequalities and obstacles to access to care… These mechanisms are components of the #inversecarelaw
bmcmedicine.biomedcentral.co…
Apparently ‘Poor Economics’ is not part of the reading list of the Assisted Dying Bill Committee…
@kimleadbeater
Well, this would be the whole difference between *Common* subscribers and *Premium+* subscribers in a dystopian world, no?
But we don’t live in such a world, do we?
Cc @ProfMarkTaubert
Sébastien Moine retweeted
Couldn't miss the tragic irony of this advert going home. The #assisteddyingbill allows the terminally ill to request an assisted death because of poverty or feeling obsolete. @UKLabour, assisted suicide mustn't be the solution to health inequality -will this be your legacy?
Sébastien Moine retweeted
Important thread on domestic abuse, coercion and the dangers of not getting #AssistedDying right. Playing into thr hands of sadists and abusers. 👇
Replying to @jessphillips
@jessphillips I hope you can flag this too as the Minister for Safeguarding and violence against women 🙏🏽
I’ve spoken to 18 women who hv experienced dom abuse about the #AssistedDyingBill -they all say coercion into #AssistedDying is a REAL concern. 1/n
Sébastien Moine retweeted
Nearly 30% of Track 2 #AssistedDying cases involved individuals living in poverty & 61% were women. Research shows that women are disproportionately affected by intimate partner violence, frequently receive inadequate medical care& are twice as likely to attempt suicide as men
@Humanists_UK @womensaid
A Canadian #AssistedDying case reviewer speaks out:
Discrimination-driven deaths - Analysing Ontario Coroner Reports on Euthanasia and Assisted Suicide - go.shr.lc/4gdtuWh
Sébastien Moine retweeted
Call to fix palliative care before assisted dying bbc.com/news/articles/cn9x00…
Sébastien Moine retweeted
I voted against the Assisted Dying legislation in Parliament today.
We should be helping people to live comfortable pain-free lives, on their own terms, before we think about making it easier for them to die.
Freedom in death is only possible if you've had freedom in life.
Solve the social gradient of health, the inverse care law, and stop austerity as default policy and then we’ll start to talk about eligibility.
‘The eligibility criteria include that the person has […] reached this decision voluntarily, without coercion or pressure’
Sébastien Moine retweeted
“I’m shocked a Labour government would do this…and make this one of the first things they do.”
“Do you blame the Prime Minister for that?”
“Of course…”
Christian Fraser speaks to actor and campaigner Liz Carr in the moments after MPs backed proposals to legalise assisted dying.
#Newsnight
“You do touch on the slippery slope argument, which is the potential for cost savings if people choose to opt for assisted dying rather than stay in the care of the care providers or the NHS,” he said in answer to a question.
theguardian.com/politics/202…
“The right to die, for some, will – inexorably and inevitably – become the duty to die for others. And that is why I will be voting against this bill.”
theguardian.com/society/2024…
Coercion is internalised and it’s called ‘living in poverty’ in a society harshly hit by austerity
I took part in a discussion with Charlie Falconer on assisted dying in today’s Observer. I think the bill’s proposed safeguards will be ineffective, and as it stands would result in people being coerced into killing themselves with medical assistance.
theguardian.com/society/2024…
‘Unbearable suffering’ is not only caused by the physical sensation of pain, but also by the emotional/ psychological/ social/ existential burden associated with this sensation…
























