Don't miss Experiencing Grief While Managing a Chronic Illness/Brain Tumor Diagnosis! This workshop will explore the ways individuals can experience grief when diagnosed with a brain tumor or chronic illness, & how to process them. October 21st, 7pm EST zurl.co/CIIK4

Meet our newest speaker for HOPE Austin! Marci Serota, RAWF Board Member and Author of Hungry for Solutions: A Mother’s Quest to Defeat Hypothalamic and Childhood Obesity When: Nov 8 10:00-2:00 Where: Courtyard Marriott Downtown Austin Register Now: zurl.co/Ego6I

Meet Bob, one of our dancers for the DC's Dancing Stars Gala! Bob is honored to bring his energy in support of the Raymond A. Wood Foundation and its mission to improve the lives of brain tumor survivors and their caregivers. Donate to vote for Bob! pages.donately.com/dcsdancin…

Join Rhythm for a webinar on Understanding Acquired Hypothalamic Obesity: Disease Education and Treatment Options. This program is designed for patients and families in the U.S. October 19th at 7pm To register, please scan the QR code or visit: bit.ly/4xwv6mi

Meet our speaker for HOPE Austin! Vincent Horne, MD, MS from Texas Children’s Hospital | Baylor College of Medicine Dr. Horne will share his expertise on HO and answer questions from families during an interactive Q&A. Registration is FREE: zurl.co/Ego6I

Don't miss our upcoming workshop Experiencing Grief While Managing a Chronic Illness/Brain Tumor Diagnosis, hosted by Grief Support Specialist and Grief Coach Holly Gainsboro. Register FOR FREE on Eventbrite! zurl.co/68tGJ

Registration is now open for HOPE Austin, a free half-day gathering for individuals and families affected by hypothalamic obesity. When: November 8, 2026, 10:00 AM - 2:00 PM Where: Courtyard Marriott Downtown Austin Registration is FREE: zurl.co/DzXwf

October is here! Join us for some of our monthly events. Email [email protected] for more information or registration details!

It's not too late to join Team RAWF for the Philadelphia Marathon Series November 20–22! We have limited spots remaining to join the race with us, so opt for either the 8K or the Half Marathon. To learn more, email [email protected].

Don't miss our upcoming workshop, Experiencing Grief While Managing a Chronic Illness/Brain Tumor Diagnosis, featuring Grief Support Specialist and Grief Coach Holly Gainsboro. October 21st, 7pm EST zurl.co/2GfnA

Join Rhythm Pharmaceuticals for a webinar on Understanding Acquired Hypothalamic Obesity: Disease Education and Treatment Options. This program is designed for patients and families in the U.S. September 30th 7pm EST To register, please visit: zurl.co/qmdCp

Join us for our Caregiver Support group tonight at 8pm EST, hosted by caregiver and RAWF board member Eugenie Hsu! Email [email protected] to join

Save the date for HOPE Austin, our first ever Regional Family Summit, sponsored by Rhythm Pharmaceuticals! This half-day summit will focus on living with acquired hypothalamic obesity (aHO). November 8th in Austin, Texas Stay tuned for more information and how to register!

These are the last few days to take our AVP-D survey! The survey is available in English and Spanish. Please log in to your registry account, or create one if you haven’t already, and complete our latest AVP-D survey I zurl.co/qwFxH

Join us for our Survivor Support Group, hosted by brain tumor survivor Jason Burris! Email [email protected] to join

Join us for an interactive workshop exploring the various ways individuals can experience grief when diagnosed with a brain tumor and how to process them. Featuring Holly Gainsboro, Grief Support Specialist and Grief Coach. October 21st, 7pm EST zurl.co/0UTKc

We conquered New York, now we're on the way to Philadelphia! Join Team RAWF fo have limited spots remaining to join the race with us! The registration deadline to register is approaching, so don't miss out! To learn more, email [email protected].

Providing info to your child's teachers and administrators is essential, but remember to keep it brief! One sheets w concise, easy to understand information are better than big binders full of details. Stream the full video with more tips on Uscreen! zurl.co/PFD3B

In case you missed the opportunity, our AVP-D survey has been extended! Every response helps move this work forward. Please log in to your registry account, or create one if you haven’t already, and complete our latest AVP-D survey zurl.co/gAZF9

September is here! Don't miss some of our new and ongoing monthly events!