A public awareness initiative by Sanofi (Specialty Care) India on #RareDisease issues. For India residents only. #EveryLifeIsPrecious https://xitter.cf/t.co/YH80r3SUFk
India
Joined June 2017
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It’s Rare Disease Day today!
A critical opportunity to bring together the rare community who feel under recognized & underrepresented.
Watch how Arvind is now Dr. Arvind Chhabra, thanks to early diagnosis & timely treatment.
Share & spread awareness.
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For more than 40 yrs, we’ve been global pioneers of science & innovation, rallying for our people and resources to help improve the lives of those living with rare diseases.
We’re proud of the progress made - but there's more to do.
And we're unstoppable!
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@sanofi globally joins hundreds of organizations to recognize Rare Disease Day, a milestone dedicated to raising awareness & the collective impact on patients, care partners & loved ones. We're embracing this through spotlighting authentic experiences.
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Diseases that are rare need much more care & Feb. (Rare Disease month) is apt to bring them to light. This week we pay tribute to the RD community by championing the need for equity for individuals affected. Lavanya's story proves that #EveryLifeIsPrecious tinyurl.com/5n8u24m5
Arvind was already used to living with heat intolerance, joint pain & exhaustion as a child.
He was used to living with #FabryDisease.
April is #FabryAwarenessMonth & is our opportunity to spread awareness, as #Fabry is hugely underdiagnosed in India.
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On World #RareDiseaseDay today, the need for equity permeates those living with RDs (Rare Diseases) the most.
With the broadest & widest portfolio of our RD therapies, we're driven by #EquityInInnovation to make our medicines available in India.
@OPPIIndia
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Millions with #RareDiseases go unnoticed for their needs.
~96mn live in India. By creating registries, building capacity like fellowship programs, setting up Centres of Excellence, we're committed to #EquityInSupport. Learn more. linkedin.com/posts/sanofi_de…
@OPPIIndia @anilraina1969
As we lead up to the commemoration of #RareDiseaseDay (29th February), watch Alka's story to see how #EquityinAccess can transform the lives of those living with these debilitating disorders.
Read more here: linkedin.com/posts/sanofi_wi…
@IndiaSanofi @OPPIIndia @anilraina1969
While there is no cure for #MultipleSclerosis (MS), existing treatment options can help slow its progression.
On #WorldMSDay today, see Avantika's story to know how much there is to be done still, to help improve the lives of those living with MS.
linkedin.com/posts/sanofi_av…
On #MPSAwarenessDay today, we celebrate 20-years of the 1st #EnzymeReplacementTherapy for #MPS I – over two decades of producing a definitive treatment for this disorder, which is the only therapy for MPS I as on date.
See how it transformed Akash's life.
linkedin.com/posts/sanofi_ak…
#MPSAwarenessDay is approaching.
It spreads awareness of #Mucopolysaccharidosis (MPS), a genetic #lysosomalstoragedisorder caused by the body’s inability to produce a specific enzyme.
The journey to its diagnosis is difficult, so let’s cut to the chase.
linkedin.com/posts/sanofi_la…
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On #InternationalPompeDay we stand by those courageous people who tell us their stories of living with Pompe, to help shape the way the world sees this disorder!
Early diagnosis & timely treatment can make a huge difference in their lives.
See 1 such story
linkedin.com/posts/sanofi_ma…
April is Pomp Awareness Month:
It is a rare, progressive illness that shares symptoms with other neuromuscular conditions. Because of this, delays in diagnosis are common. Increasing awareness & education on #Pompe disease is vital to accelerate diagnosis.
linkedin.com/posts/sanofi_po…
April is #FabryAwarenessMonth, a hugely underdiagnosed disease in India. See how Dr. Arvind battled #Fabry & how early diagnosis and timely treatment can help.
Read more here: sanofi.in/en/about-us/empowe…
See Dr. Arvind's story: linkedin.com/posts/sanofi_dr…
#RareDiseaseDay matters! RDs are life-threatening & require long-term, specialized mngt. Working with key decision makers, policy shapers & opinion leaders have set wheels-in-motion; but a 'Roar for Rare' is needed to make them a public health priority.
sanofi.in/en/about-us/empowe…
While science is bringing newer possibilities for people living with #RareDisease wish availability, accessibility and affordablilty becomes a reality soon. Also salute to patient organisations who have been putting relentless support in education and awareness
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Check out my latest article: We remain committed to delivering new options for people with rare diseases: Anil Raina, Sanofi linkedin.com/pulse/we-remain… via @LinkedIn
This month, Sanofi Specialty Care celebrates over 30-yrs of treating #GaucherDisease.
We stand together with the rare global community to commemorate 3 decades of brining hope to the lives of many; to reflect and recognize this important milestone.
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ALT #MAMC #IPGMER #instituteofchildhealth
"Prajwal now lives a happy and healthy life" – Vanitha
Over 3 decades since we launched the 1st Enzyme Replacement Therapy for #Gaucher.
Over 30 years of existence of our Humanitarian initiative.
Countless moments of feeling proud of being a Sanofian.
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ALT #MAMC #IPGMER #instituteofchildhealth
"I live a normal life!" - Deepesh
Over 3 decades back since @sanofi's 1st treatment for #Gaucher was approved by the USFDA in 1991, it has been years of tireless efforts to ensure we provide standard of care treatments to people with #GaucherDisease.
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ALT #instituteofchildhealth #MAMC #IPGMER