Project FAVA: nonprofit working to drive medical research to treat the painful fibro adipose vascular anomaly, a rare disease connected to the PIK3CA mutation.
Joined July 2019
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Project FAVA retweeted
Fantastic news today for patients with PIK3CA related disorders (PROS)! Alpelisib obtained FDA approval. This is for us a fantastic achievement. We started in 2016, identified alpelisib (BYL719) has a promising compound and developed a mouse model. 1/n
fda.gov/drugs/resources-info…
Project FAVA retweeted
Sirolimus Leads to Rapid Improvement in Fibroadipose Vascular Anomalies @ISSVA_org #FAVA
Project FAVA retweeted
NORD is proud to announce the launch of the COVID-19 Critical Relief Program for #raredisease community impacted by #COVID19. The program supports patients & families facing financial challenges & helps with essential non-medical expenses. Read more: rarediseases.org/nord-launch…