Now retired in the Outer Hebrides, love walks, runs, art, felting, sea swims, wild nature - still passionate about dementia justice, voice, autonomy
Joined January 2010
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Philly Hare retweeted
(and a cheeky 3, whether you now actively encourage dementia being described as a 'living death' by communicators, journalists etc?)
Philly Hare retweeted
our #AGoodLifeWithDementia course was observed by @UoY_SBS - a course FOR ppl w dementia designed and developed locally BY ppl w dementia. #transferability #hope #recoverymodel
📢 Recent findings from the Good Life with Dementia evaluation, highlights how a course run by people with dementia, for people with dementia, can provide support, friendship and hope after a diagnosis.
Read more key messages 👇 york.ac.uk/business-society/…
ALT Older people sat around a table talking. Text reads: Good life with dementia. A key message from the findings shows that people with dementia value the safe space a peer-led course provides, to be able to share their experiences and support each other, together.
Philly Hare retweeted
'People with dementia at the heart of research' is a ground-breaking new book by @phillyhare and Rachael Litherland. 📖
Topics include giving up driving, GP dementia reviews, living alone with dementia and using artificial intelligence (AI) platforms: uk.jkp.com/products/people-w…
ALT Green and white poster. Text reads: People with dementia at the heart of research. Black, yellow, red, and cream abstract shapes that look like people are at the bottom of the poster.
Philly Hare retweeted
Really great new #ReadingWell list for people with #dementia and #carers We've been delighted to be part of this process by running a #coproduction group of people with dementia and carers to shape the new list.
We're excited to announce the launch of our new #ReadingWell for dementia booklist this #DementiaActionWeek! 🎉
The expert-endorsed list is designed to support people living with dementia, their families and carers. 📚
Browse the full booklist at 👉️ reading-well.org.uk
ALT Reading Well for dementia programme title surrounded by illustrations of open books. Text reads: Recommended books chosen by people living with dementia, carers and health professionals, www.reading-well.org.uk Logos for The Reading Agency, Arts Council England and Libraries Connected are displayed.
Philly Hare retweeted
EVERY week is #DementiaActionWeek and the tutors creating the next #AGoodLifeWithDementia course in Bridlington @East_Riding are honing their messages to share. #peerlearning A course FOR ppl w dementia BY ppl w dementia @elhijodevera @GWStorr
Philly Hare retweeted
.@pollykaiser - sorry miss you off this important list!
"Let's talk about death shall we?"
In #DyingMattersWeek it's a good time to revisit this fabulous resource co-created with #peoplewithdementia from @OldhamDementia with @JacquiBingham @tonyhusband1 @dementiaunited @PennineCareNHS and many others bit.ly/4dtxTmJ
Philly Hare retweeted
The way we talk about dying matters.
#DyingMattersWeek
Listen to the experts - dying people, and their closest loved ones.
In the end, it's about giving them an opportunity to control the conversation - listening, respecting, supporting.
Thanks @DyingMatters
Dying Matters Awareness Week starts today 💛
Patricia, Mumtaz & Lucy add their voices to this @dyingmatters animation exploring the power of language at the end of someone’s life.
👉 Please help share this post. Thank you.
#DMAW24 #TheWayWeTalkAboutDyingMatters @NLondonHospice
Philly Hare retweeted
What difference does it make when people with dementia lead their own research? Watch our short film here bit.ly/3WCH8Lg and find out more in our new book about #DementiaEnquirers available from @JKPDementia uk.jkp.com/products/people-w…
Philly Hare retweeted
I confess, I felt like an imposter at #adi2024 today. I'm just a 3rd Yr PhD student surrounded by amazing people. Everyone appeared to have come with someone. I felt alone, overwhelmed & desperate to have confidence to speak to others more. But, I learned a lot from the speakers.
Philly Hare retweeted
Do you want to know how to meaningfully engage people with lived experience of #dementia in #training, #education and #research? We can help! Join our Experts by Experience Lead, Clare Mason, on our short course next month. Email: dementia@bradford.ac.uk
Philly Hare retweeted
Fantastic! Welcome I suggest @Jennife10651535 @drjenunwin @kathryndykes1 @natashadlord @FPOPofficial @GMOPN1 @GMAgeingHub just for staters. Will think & add
It's #FridayFollow Day again... and I've recently set up my own personal Twitter account.
If you value following me, please repost this tweet and recommend to your own followers so I can build up my account.
Many thanks .. and happy Friday!
Philly Hare retweeted
We remain super proud of our #Dementiaenquirers project dementiaenquirers.org.uk/pro… the pros,cons & particular needs of those living alone and those with a care partner @Innov_Dementia @elhijodevera
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Philly Hare retweeted
It's publication day @JKPBooks! So excited (& Honey is too-honestly!) for our new book about the wonderful #DementiaEnquirers prog with @phillyhare Enormous thanks to @TNLComFund for their belief &funding. To order: bit.ly/3W3sRqH or check Waterstones & Amazon
Philly Hare retweeted
On 25th April we launch the independent report into the #DementiaVoices prog funded by @TNLComFund
@TommyShakes shares his findings & recommendations
The Evaluation Advisory Group of ppl w dementia share how they led the process from recruitment to approving the report
book here
.@1adass @LGAcomms @DisRightsUK @elhijodevera @PathwaysBfd @alzheimerssoc @alzheimersocirl @CQCProf @JDementiaCare @CapperColin Thursday 25th April 11am via Zoom we launch the evaluation of the Dementia Voices programme. Book you place here eventbrite.co.uk/e/the-launc… @Eventbrite
Philly Hare retweeted
An important opportunity 👇
The Care Quality Commission (CQC) has announced that it is beginning the development of a dementia strategy.
Read more here:
journalofdementiacare.co.uk/…
@CQCProf
Philly Hare retweeted
3 days until publication day. Order details pinned at the top of our page. Visit dementiaenquirers.org.uk for loads of other resources including this lovely film youtu.be/b0YOgiGZjZw
Philly Hare retweeted
A wonderful achievement by #SUNshiners @kmptnhs and @DrRAshworth - people with dementia in the driving seat of research #DementiaEnquirers with thanks for funding from @TNLComFund
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Philly Hare retweeted
We only need around 90 signatures to make the total 1500
We can then present the petition to
Stop negative and inaccurate dementia publicity. Show the hopeful, creative possibilities. - Sign the Petition! Please chng.it/JTc4LbS6 via @UKChange
Philly Hare retweeted
Latest edition of Our #DEEP News winging its way to 1000 people in groups. Special tribute edition to @WendyPMitchell Can't wait? You can read the PDF here bit.ly/3JbONs2
Philly Hare retweeted
"A complete lack of safeguarding" & "Sexist"
Thank you @LoreleiKing for such powerful & articulate response to that ad & also to @alzheimerssoc 's response
all 3 vids in the thread are very worth a listen
#StillAlive #respect #dignity #MeetMeWhereIAm #DoNoHarm #Listen
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