Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️
Joined June 2014
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His lungs were clear, but a chest X-ray revealed something his family never expected.
In this preview of Building The Noise, Steve Van Wormer of PHAWARE shares how a substitute pediatrician discovered an enlarged heart in his son Lucas, setting the family on a pulmonary hypertension journey.
Full episode drops August 31.
Watch & subscribe: bit.ly/4fFIFIr
#PulmonaryHypertension #PHAware #PatientAdvocacy #BuildingTheNoise
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From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick on the tech that's changing everything. #phawareMD #CTEPH @rchannick @UCLAHealth phawarepodcast.libsyn.com/si…
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Aware I’m Rare: a breathtaking short film about pulmonary hypertension is now exclusively streaming in the Heart Works - phaware mobile app. Scan the QR code to get the app or visit: phaware.global/heartworksapp to learn more.
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Team PH is proud to welcome Eric “EB” Borstein as our new Board Chair! A PAH warrior, advocate, & walking 14,500+ miles of hope, EB brings unmatched passion to our mission. Join us in celebrating his commitment to the PH community. ⚡ bit.ly/3TrO5fx
#TeamPH #WhereIsEB
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The CRAVE Platform Trial: Addressing the lack of treatments for right heart failure in patients with pulmonary hypertension with Jason Weatherald, MD @phaware podcast episode 500 #phawareMD @PHACanada #HeartWorksApp link.medium.com/s5ASFRskzPb
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THE GENETICS OF PULMONARY HYPERTENSION - FREE Zoom Webinar presented by the PHriends of @PPHNet. Join Dr. Eric Austin, MD, Tuesday Dec 3rd 8pm ET. zoom.us/j/99197150219?pwd=P1… Please RSVP
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This #PHAwarenessMonth discover the essential role of clinical trials for those with Pulmonary Arterial Hypertension (PAH). We are honored to sponsor this clinical trial focused episode of “I’m Aware That I’m Rare: the @phaware podcast”: loom.ly/5ExQP7k #phaware
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I was so fortunate to work with our incredible Pediatric task force at #WSPH2024 and help pave the way for advances in pediatric pulmonary hypertension. @pphnet @DunbarIvy @RyanTedfordMD @UshaRaj51 @NidhyV @teamphhope @phaware @PHAssociation
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Share Your Rare Disease Expertise
Pulmonary Hypertension Medical Professionals, Pulmonologists, Cardiologists, Investigators, Nurses and Global Thought Leaders -- phaware® wants to highlight your PAH expertise on the @phaware® podcast. Learn More: phawarepodcast.com #ATS2024
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PH Families and PH Kiddos... Register to participate in focus groups and guide future Hank educational animations. Parents receive a 1 year membership to @phassociation. Patients receive a Hank the Heart Book signed by the author! Scan QR code or visit: redcap.research.cchmc.org/su…
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🌟 Join us in welcoming Dawn Clark, our newest ambassador at #PHACanada!
Dawn's diverse background and experiences make her a valuable addition to our team.
Learn more about Dawn at: ow.ly/LfYl50R64Np
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Heading home after a long but epic week at #PVRI2024 @PVRI in London.
For all the early career people working in #PulmonaryVascularDisease and #PulmonaryHypertension, if you don’t believe me, ask Taylor 👇.
#PHPeeps, DM me to let me know what PVRI can do to meet your needs.
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This summer inspire friendship and connection for your child at Camp del Corazon, a summer camp experience for children ages 7-17 with heart and lung diseases. Apply now for summer 2024 in-person or virtual sessions and learn more about camp activities. ow.ly/t8nQ50Qv31A
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Attention PH Kiddos ages 7 to 17!!
Camp del Corazon is a summer camp experience on Catalina Island for children ages 7-17 who are living with heart and/or lung disease.
Learn more at: ow.ly/1gfp50QtHqb
Learn more about the #Hearts4Lucas Fund: ow.ly/cHXo50QtHqe
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Peter Leary, MD on factors that might lead to over-treatment, under-treatment, or "just-right" treatment and why PH guidelines are important but there is no "one-size fits all" approach to treatment. phaware® podcast ep 443 @uwepidemiology #phawareMD
phaware.medium.com/im-aware-…
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phaware Mobile News App Update! The phaware® News app lets you Connect, Share and Help Raise Global Pulmonary Hypertension Awareness. Get it NOW on the Apple App Store & Google Play Store. Learn more: phaware.global/phaware-app
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I'm my own advocate. I can't ask anyone else to do this for me. I'm living like I'm dying each day and I just want to make sure that it's the most enjoyable day for myself. #pulmonaryhypertension patient, Uli Campbell @phaware podcast ep 415 phawarepodcast.libsyn.com/ep…
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WORLD PULMONARY HYPERTENSION DAY IS MAY 5TH. HELP MAKE THE WORLD #PHAWARE BY SHARING INFO ABOUT #PULMONARYHYPERTENSION, A RARE, LIFE-THREATENING DISEASE THAT AFFECTS THE ARTERIES OF THE LUNGS AND CAN LEAD TO RIGHT HEART FAILURE. #WORLDPHDAY2023 WWW.PHAWARE.GLOBAL
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Become #phaware in time for #WorldPHDay2023 - Get our @phaware podcast app in the app stores! Download NOW: phaware.global/podcast. Listen to RARE stories + Schedule YOUR interview directly from the app or at [email protected]
