Providing education and support for those suffering from Primary Biliary Cholangitis and other autoimmune liver diseases.
Greece, NY
Joined May 2014
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- Following194
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Results From the Voice of PBC Patient Survey youtu.be/pS5tCpzNq98?si=CmO6… via @YouTube
Celebrate PBC Awareness Month in Niagara Falls - join us for lunch on September 19th!
eventbrite.com/e/annual-cros…
One word. Infinite stories.
We are asking people living with Primary Biliary Cholangitis (PBC) to describe their experience in a single word. Together, their answers paint a picture of a disease that's as complex as the people living with it.
Today marks the start of PBC Awareness Month, and we're kicking off our Voices of PBC campaign. All month long, we'll be sharing real patient voices, unveiling results from our recent nationwide patient survey, and shining a light on what everyone should know about this often
invisible, misunderstood disease.
Read about the survey results in our press release:
globenewswire.com/news-relea…
PBCers Organization retweeted
Rounding out our nomination ceremony is an award dear to our hearts. Presented in partnership with @BlackinGastro, here are the Patient Voice award nominees:
💚@PeggyFund
💚@PBCers
💚@FightCRC
💚@CuredFoundation
💚@liverUSA
💚@BeyondCeliac
Vote here: vist.ly/5bddk
Here's a quick sneak peek at our event and sessions whova.com/portal/registratio…
vimeo.com/1188657644/dcb8404…
PBCers Organization retweeted
February marks Rare Liver Disease Month, an important moment to reflect on the patients and families who inspire our work every day.
This month is a time to elevate awareness, deepen understanding, and stand alongside the global rare liver disease community. For us at Mirum, this work isn’t limited to a single day or month. It defines who we are and why we exist.
#RareLiverDiseaseMonth #RareDiseaseCommunity
PBCers Organization retweeted
It’s Rare Disease Month 💜 Awareness matters. Support patients with rare liver diseases such as PBC and PSC—and help drive research toward effective treatments and a cure. #RareDisease #PBC #PSC
PBCers Speciality Pharmacy Webinar invprtnership with Orsini - Have you been prescribed a 2nd line treatment for PBC and need to understand how a Specialty Pharmacy works? Watch this video.
youtu.be/jBjK95Orw1Y?si=5uvv… via @YouTube #pbcers
PBCers Organization retweeted
#RareDiseaseDay unites the global #RareDisease community each February to raise awareness and support.
Join #NORD on Nov. 20 at 12 p.m. ET for the official 2026 RDD kickoff webinar, where you'll learn how to take part in the celebration! Register today: bit.ly/43O47G6
ALT Promotional poster for a webinar titled 'Countdown to Rare Disease Day 2026' scheduled for November 20 at 12 PM ET, featuring the logo of NORD (National Organization for Rare Disorders). The image includes four smiling individuals holding signs related to rare disease awareness, set against a vibrant background with a blend of pink and blue colors.
PBCers Organization retweeted
👏 The nominees for the Patient Voice Award are: @CCAlliance, @PBCers, @ibdgirls, @GutlessGlamour, @CrohnsColitisFn, @PeggyFund
PBC Research Foundation and PBCers Form the PBC North American Alliance to Advance Advocacy, and Research in PBC einpresswire.com/article/858… via @ein_news
Reminder join us this Wednesday at 7 PM ET
The PBCers have partnered with Northeast Liver Alliance on 10/15 at 7 PM to present a webinar for patients dealing with the loss of Ocaliva. #ocawithdrawal #intercept #PBCers #pbcawareness #Ocaliva #NortheastOhioLiverAlliance #NEOLA app.etapestry.com/onlineform…
PBCers Organization retweeted
👩⚕️👨⚕️ Your patients may be dealing with unexplained fatigue, itching, or brain fog.
Have they heard of PBC?
Share this webisode featuring real patients sharing the signs they missed.
📺 cmeo.me/PE-015
@pbcfoundation @pbcers @draliyamd @monicatincopa @alysonr1224
#LiverDisease #PBC #AutoimmuneDisease #PatientEducation
Today is the last day of PBC Awareness month. We have shared a patient quote each day of the month. Here is the collection of all of them. Remember to share to increase awareness! facebook.com/share/v/1CyKgFZ…