@WellcomeTrust #OrphanDrugs: High prices, access to medicines and the transformation of #biopharmaceutical #innovation @sheffielduni @ihumansheff #raredisease
University of Sheffield
Joined March 2021
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DrugOrphanisation retweeted
Just a few minutes after the Online Safety Act went into effect last night, Proton VPN signups originating in the UK surged by more than 1,400%.
Unlike previous surges, this one is sustained, and is significantly higher than when France lost access to adult content.
DrugOrphanisation retweeted
I can't because it's not true - certainly not universally. For many Uni is the best option, and will both boost their earning power, and give unique exposures to outlooks & opportunities.
What I have written though, many times, is with the increased payback, it is more important than ever for people to assess if Uni is specifically right for them, and look at alternatives. Doing it by default as you've no other ideas is certainly a bad way to do it.
Our Paul Martin presenting the project work (mostly from @Jin13518907's work package) on the changing ophan drug market #nordicsts2023 #sts #medicalsociology @sheffielduni @SocStudiesShef @iHumanSheff
DrugOrphanisation retweeted
Last call! If you are a #qualitative researcher (academic or industry) with concerns about how the move to #openaccess / #openscience fits with interpretivist modes of inquiry, then please do take part!
Survey: docs.google.com/forms/d/e/1F…
Project details:
sheffield.ac.uk/ihuman/our-w…
Getting ready for our own Prof. Paul Martin to present the project to @VIVEviden - 'Are we seeing fundamental changes in the development, government. And use of medicine? @sheffielduni @SocStudiesShef @iHumanSheff
Lovely to see Dan O'connor from MHRA discuss the need for regulators to adapt, and for the importance of patient voice #reactcongress #irdirc
Fantastic talk by Tim Buckinx (Epihunter) at the @irdirc Conference today. Sony's PS6 and next-gen wearables will have EEG sensors to grant emotion data. Great for real-world data for absent seizures @react_community #rwd #RareDisease
Looking forward to day 1 of the @react_community and @irdirc - Martina Cornel opening
On our way to attend the @react_community Congress / @irdirc Conference in #Berlin react-congress.org/about/ - Very excited and keen to network - expect updates! @SocStudiesShef @iHumanSheff @wellcometrust #orphandrugs #RareDiseaseDay #socialscience
Some great discussions today at the @SPIN_rare Conference
We've covered RWE and pricing, also the use of patient-reported outcomes, and what frameworks are needed #RareDisease
Some of our team having g a look around the brand new @SheffSocScience building.
Great to see our own Dr. Jin Ding presenting the @ResEngland participatory research project (associated with the wider @orphanisation project) at the @prntuos launch ent today #RareDisease
