Advocate, Writer, Songwriter & Cyber Security Student Cal State Long Beach

Los Angeles, CA
Joined July 2009
Programs like IHSS and hcba waivers help keep me living in my home in this great country. @realDonaldTrump @SecKennedy @HHSGov please keep it that way #savemedicaid
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Everyday I'm grateful that I'm in a country that gives me the freedom as a disabled woman to access my independence. @realDonaldTrump @SecKennedy please #savemedicaid
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Join #MDA's #Neuromuscular #Advocacy Collaborative (#NMAC) on 12/12 to support the Accelerating Kids’ Access to Care Act (#AKAC). NMAC includes 30+ NMD-focused organizations supporting advocacy. Help ensure kids living w/ NMD get the care they deserve! votervoice.net/MDA/Campaigns…
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With the swipe of a pen? Sounds more like a power trip not justice or effort towards the best interest of the welfare of a child education
One of the most brutal ads you’ve ever seen against a politician. Wow. Just watch. 🔥🔥🔥 xitter.cf/MAHAalliance/status/18…
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YEAH BABY!!!💙
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As of 2023, a mere 0.02 percent of models with visible disabilities are featured in fashion campaigns, especially during NYFW. The number of Black models that exist in that demographic has yet to be documented. In an effort to combat the lack of disabled inclusion in the fashion industry, The Runway of Dreams Foundation (RoDF) was formed in 2014.
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#MDA Ambassador Rodrigo Duran, who lives with congenital #MuscularDystrophy (#CMD) and epilepsy, is the @PracticalNeuro Cover Artist featuring his work: Rock Island. Check out his beautiful work here as we celebrate #WorldArtDay! practicalneurology.com/
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California is expanding opportunities to work for the state. @CalHR_gov has removed college degree requirements for 169 types of jobs so far—opening pathways to careers and helping Californians find meaningful work. Apply for a state job today: calcareers.ca.gov
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True Heroes
From major legislative & regulatory progress on crucial issues to our in-person #MDA #HillDay in #DC, 2023 has been a landmark year for our advocates. Together, we should be proud of our many accomplishments this year. Let’s take a look back:mdaquest.org/celebrating-our… @MDA_Advocacy
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Calling all artists 📣 MDA moderator @Pyra_Sydannia is hosting the first @MDALetsPlay virtual art show on December 28 at 7 pm ET. Submissions are open to #MDA members who would like to share their talents here: docs.google.com/forms/d/e/1F…
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#GivingTuesday is 1 week away! #DYK MDA not only supports research for effective treatments, but also connects families with vital services? This #GivingTuesday, let's come together and push the boundaries of what's possible! Support #MDA: MDA.org/HOLIDAY #LightOfHope
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Congress: Stop Punishing People For Working votervoice.net/Shares/BNKe4A…
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.@SenAlexPadilla @LaphonzaB We need the HCBS Relief Act NOW for people with disabilities, their families, and the direct care workforce! #CareCantWait
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MDA thanks @SenatorRounds for his support to boost severely outdated SSI asset limits that trap people with disabilities in poverty. Empower millions of folks with disabilities to earn/save more + #UpdateSSI with the SSI Savings Penalty Elimination Act. #DemolishDisabledPoverty
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Kudos to @SelmaBlair @IsaacMizrahi & @QVC for launching an #accessible clothing collection. 30 yrs+ after passing #ADA, still barriers for those with #disabilities including access to equal and #accessible #healthcare. msn.com/en-us/lifestyle/wedd…
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This looks promising. I do hope they have added housing for the disabled to their conversation
Join us tomorrow at 1 for the next #LACAHSA board meeting 🫡 We’ll collectively discuss ways to make housing more affordable through stronger tenant protections and more funding for low-income housing. More info: LACAHSA.la @OurFuture_LA
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#ICYMI: We at @MDAorg continue to hear troubling accounts of insurance denials of #FDA-approved treatments. The latest are denials of Elevidys for #Duchenne and Qalsody for #ALS. This. Has. To. Stop! Read our latest statement for more: votervoice.net/MDA/BlogPosts…
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Registration for the 2024 #MDAconference is open! While this is a technical conference geared toward medical and scientific professionals, people in the neuromuscular community registered with MDA may attend virtually at no cost. Learn more in #Quest: mdaquest.org/registration-fo…
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