Ringing the bell after a child's last chemo infusion is one of the most anticipated moments a family can have. It is also, as one NF mom recently reminded us, not the end of the story. nfnetwork.org/pages-news/aft…

Happy #ThrowbackThursday! We are looking back at last year's Memphis Walk for NF. It's not too late to sign up for the 15th Annual NF Strong 5K for Neurofibromatosis on Sunday, November 8th raceroster.com/events/2026/1…

October is Breast Cancer Awareness Month, an essential period for individuals to focus on their health, especially those diagnosed with NF1. Read more: nfnetwork.org/news/network-n…

Join Us for a Special Day in Coral Gables! Saturday, November 14, 2026 Biltmore Tennis Center Outdoor Courts 1150 Anastasia Ave, Coral Gables, FL 33134 Register: weblink.donorperfect.com/NFM…

Reminder: Early bird pricing ends Sunday! Memphis Walk for NF: Sunday, November 8th Registration and Check-In at 9:00 am | Walk starts at 10:00 am Overton Park, East Parkway Pavilion, Memphis, TN raceroster.com/events/2026/1…

We had an amazing educational and recreational event at @topgolf in Atlanta this past weekend! Thank you to everyone who came out! Also, thank you to @alexionpharmaus for sponsoring the educational portion!

For Breast Cancer Awareness Month, we wanted to bring back this infographic created by RARE Revolution Magazine for Childhood Tumour Trust and adapted for our region. nfnetwork.org/data/uploads/n…

Happy #ThrowbackThursday! We are looking back at last year's Memphis Walk for NF. Sign up by October 11 for early-bird pricing for the 15th Annual NF Strong 5K Walk on November 8th! raceroster.com/events/2026/1…

It's the last day of September! Tomorrow marks the start of Breast Cancer Awareness Month. Women with NF1 have a 2-3 times higher risk of breast cancer compared to the general population. nfnetwork.org/pages-news/inc…

Join us on Sunday, October 4, 2026, from 11:45 am to 2:30 pm at TopGolf in Atlanta, GA for a day filled with learning and fun! Register now: weblink.donorperfect.com/GAT…

Free Webinar Next Week! The Brains Behind the Diagnosis 🎟️ Free to attend — registration required. 👉 RSVP: us02web.zoom.us/webinar/regi…

NF Central Plains will be at Shawnee Town's Historical Hauntings! To RSVP, email [email protected] to make sure they have enough treats for everyone!

Happy #ThrowbackThursday! Today, we are looking back at our Miami Day with the Docs event last year. Are you signed up for this year's event? It's not too late! weblink.donorperfect.com/NFM… #NFNetwork #neurofibromatosis #PickleballFun #CoralGablesEvents

15th Annual NF Strong 5K for NF Sunday, November 8th Overton Park, East Parkway Pavilion, Memphis, TN Sign up here for early-bird pricing by October 11: raceroster.com/events/2026/1…

iNForm Carolina is coming to Charleston, SC, this October. Educational Event — Saturday, October 24, 2026 | 8:00 AM–4:30 PM Family Fun Day — Sunday, October 25, 2026 | 10:00 AM–12:30 PM ✅ Register at nfsc.s.gy/iNFormSC #iNFormCarolina #Neurofibromatosis

People with NF1 are at risk of developing benign and MPNSTs. The overall lifetime risk of MPNST is estimated at 8%- 13%, with increased risk associated with specific germline mutations and a larger benign tumor burden. Read more: nfnetwork.org/pages-news/mpn…

McKinnon Galloway was diagnosed with NF2-SWN at 16 after a routine MRI for a volleyball concussion revealed two brain tumors. Read more: nfnetwork.org/pages-news/fou…

Join NF families at TopGolf Atlanta on Sun, Oct 4 for a family relationships talk with Samantha Blain (11:45 AM) followed by TopGolf fun (12:30–2:30 PM). NF patients & families play FREE. All abilities welcome! Register: weblink.donorperfect.com/GAT…

From our 5K in Memphis to a glitzy concert in Vegas to a day of pickleball in Miami, there are plenty of ways to show up, connect, and help move us closer to effective treatments for NF! nfnetwork.org/pages-news/fal…