Official Twitter account of the National Alliance for Sickle Cell Centers. Providing support to centers around the nation in the pursuit of equitable treatment.
Joined February 2021
- Tweets138
- Following136
- Followers427
- Likes135
National Alliance of Sickle Cell Centers retweeted
Trump’s executive order is NOT legislation. Though the executive order promotes more misinformation about vaccines, nothing has changed about the availability of childhood vaccines. For evidence-based guidance, please follow American Academy of Pediatrics recommendations.
National Alliance of Sickle Cell Centers retweeted
Serial assessments for neurodevelopmental disorders should take place earlier and more often for people with #SickleCellDisease, according to new standards and recommendations released by @nascc_org.
@IDinChildren
vist.ly/5e8iu
National Alliance of Sickle Cell Centers retweeted
ASH, alongside partners, is raising the visibility of the critical role the CDC’s Division of Blood Disorders and Public Health Genomics plays in providing the technical expertise, data, and public health leadership across hematology. ow.ly/KlR550ZhmTc
#Fight4Hematology
I cannot say enough about the amazing time we spent with @ololhealth last week in a #SCDWorkshop to improve outcomes and management for people living with #sicklecelldisease #SCD The BEST attendance and engagement of anywhere in 2026 (so far)!
National Alliance of Sickle Cell Centers retweeted
NIH is leading the way in advancing research for sickle cell disease.
Dr. Griffin P. Rodgers’ pioneering research helped establish hydroxyurea as the first FDA-approved treatment for sickle cell disease, reducing pain crises, hospitalizations, and mortality worldwide.
An innovative stem cell transplant regiment, developed by Dr. Rodgers and collaborators at NIH, has reversed sickle cell disease in many patients. Meanwhile, his colleagues’ innovative work in gene therapy is advancing a possible cure for the disease.
We’re proud to celebrate Dr. Rodger’s receipt of the John Phillips Memorial Award for Outstanding Work in Clinical Medicine. bit.ly/4mL9v56
ALT Dr. Griffin Rodgers is pictured against a background of red blood cells. Text reads: "Pioneering Progress in Sickle Cell Disease Treatment. Dr. Griffin P. Rodgers, NIDDK Director. Recipient of the John Phillips Memorial Award for Outstanding Work in Clinical Medicine." NIH and HHS logos are present.
AUNT study of people living with #sicklecelltrait #SCT making waves at #ASH25. NASCC thanks @BeamTx for funding support.
National Alliance of Sickle Cell Centers retweeted
@seethal_jacobmd was featured on Cheat Codes: A Sickle Cell Podcast during a live panel at the @nascc_org along with @PayalDesaiMD @PTMcGann @Andy_Ellner
Listen to the episode, here: go.iu.edu/8vUL
ALT Listen to: Cheat Codes: A Sickle Cell Podcast
National Alliance of Sickle Cell Centers retweeted
Courtney Lawrence (@CLawrenceMD): Honored to Team Up with BET on Blood at @AABB 2025
@RedCross |@BCAbloodcenters | @nascc_org | @terumobct
hemostasistoday.com/insight/…
#AABB2025 #BleedingDisorders #Blood #Health #Hematology #Hemostasis #HemostasisToday #Medicine #Thrombosis #MedEd #MedX
Excited to be with Dr. Jenkins @SCDAAorg discussing the national recommendations for management of acute pain in #sicklecelldisease
#sicklecellmatters #individualizedcareplans
We must TREAT pain in #sicklecelldisease quickly and aggressively. We must STOP measuring pain. We need to measure causes of pain (inflammation, hemolysis, adhesion) to measure the effect of new tx. @US_FDA it’s time to use a new endpoint. #TogetherWeCan
pfizer.com/news/announcement…
National Alliance of Sickle Cell Centers retweeted
@nascc_org and so excited to see a full room of amazing people working to improve outcomes and care for #sicklecell because #sicklecellmatters
So excited to see the rooms full of people from #sicklecellcenters working to improve outcomes in #sicklecell. #Nascc2025 #sicklecellmatters
National Alliance of Sickle Cell Centers retweeted
The room is full here at the @nascc_org meeting in Stowe, Vermont. Over 300 people in attendance to discuss topics related to Sickle Cell Disease. Looking forward to an exciting week ahead. #NASCC2025 #sicklecellmatters #sicklecellcenters2025
We are excited about our partnership w/ #Quilthealth. They share our commitment to reimagining how people access healthcare. Our missions align in putting people first, removing barriers, & using technology to drive real change. #peoplefirst #sicklecell #accesstocare
National Alliance of Sickle Cell Centers retweeted
Big news from @QuiltHealth: We raised $6 M in seed funding (led by @MaCVentureCapital) & partnering with @nascc_org to launch a platform that:
🧪 Expands trial access
📈 Boosts patient/provider insights
🧩 Tackles care disparities
Read more: newswire.com/news/digital-he…
#EHA2025
Multidisciplinary care is key to improving outcomes in #sicklecelldisease @pfizer symposium
#SCD #HealthCareAccess and #sicklecellcenters are key
We have to improve #accesstocare by increasing #sicklecellcenters so people living with #sicklecelldisease have #healthcare and #healthopportunies for better #healthoutcomes
