Today, November 11th, marks what would be our daughter Sybil's 7th birthday. It has been nearly 2 years since she passed and not a day goes by without thinking of her and missing her smile, her curls, her bright light. We’ve spent the past two years focusing on family, processing our grief, and reconnecting with our community. After some time and space, we began re-engaging with the research community in May and traveled as a family to our first DIPG conference in Ann Arbor. It felt meaningful to spend time with doctors and scientists who are working tirelessly on research and clinical trials to find a cure for DIPG. While at the conference, we met other families who have lost a child to DIPG and although it was difficult to hear their stories, we were grateful to spend time with families who had been through a journey similar to ours. Thanks to your generosity and our 1:1 match, we’ve raised $2.56M for the Sybil Sugarman Memorial Fund to date. We’ve been in dialogue with several research institutions, speaking with experts in DIPG and the broader cancer research, immunotherapy, and drug discovery fields. We plan to make an initial donation to UCSF, where Sybil was treated, in honor of her birthday this month. Finding a cure is complicated and will likely require interdisciplinary collaboration and solutions. We plan to make initial commitments, get to know the teams and spaces, and decide where it makes the most sense to invest more heavily. As we look ahead, we aim to raise awareness and funds for DIPG research and remain strongly committed to a cure for families dealing with this diagnosis. We’ll reach out annually around Sybil’s birthday in November to provide an update on our family, share memories of Sybil, and ask you to join us in donating to her fund. As always, we thank you for the many ways in which you have shown our family support, love, and kindness. It is truly appreciated and words cannot express our gratitude to you. Please join us in creating a legacy for Sybil by working together to find a cure for DIPG. Kindly consider a donation to The Sybil Sugarman Memorial Fund(link below in comments) today, in honor of her 7th birthday. We will continue to match your donations. All our Love, Chloe & Mark Sugarman sybilsugarman.org/ 📷

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Direct link to Sybil Sugarman Memorial Fund: sybilsugarman.org/memorial-f…