@macdonj

All tweets discuss low protein foods to help children on low protein diets. All views are my own.

Joined April 2013
  • Tweets40.7K
  • Following628
  • Followers1.9K
11KMedia
Sepiapterin Enables Liberalisation of Natural Protein Intake While Improving Metabolic Control in Adolescents with Phenylketonuria mdpi.com/4136826 #mdpinutrients via @Nutrients_MDPI

Sepiapterin Enables Liberalisation of Natural Protein Intake While Improving Metabolic Control in...

Background: Sepiapterin is a synthetic precursor of tetrahydrobiopterin (BH4) that increases intracellular BH4 availability and has demonstrated greater phenylalanine-lowering efficacy than sapropt...

mdpi.com
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Breastfeeding infants with inherited metabolic disorders: review of current strategies and practical recommendations to overcome challenges pubmed.ncbi.nlm.nih.gov/4287…

Breastfeeding infants with inherited metabolic disorders: review of current strategies and practi...

Human milk feeding (HMF), through direct breastfeeding (BF) and expressed HM, is the optimal source of infant nutrition, yet practical guidance for inherited metabolic disorders (IMDs) remains...

pubmed.ncbi.nlm.nih.gov
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Development of a face-validated conceptual model structure for economic evaluation in phenylketonuria, through expert elicitation pubmed.ncbi.nlm.nih.gov/4221…

Development of a face-validated conceptual model structure for economic evaluation in phenylketon...

In this research, perspectives were elicited from medical experts in PKU to develop a clinically informed, face-validated conceptual model structure for CEA, and to identify associated parameters....

pubmed.ncbi.nlm.nih.gov
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The Economic and Humanistic Burden of Phenylketonuria Among Patients and Their Caregivers: A Systematic Literature Review pubmed.ncbi.nlm.nih.gov/4285…

The Economic and Humanistic Burden of Phenylketonuria Among Patients and Their Caregivers: A...

Findings underscore the substantial financial, time, and psychological burden of PKU, particularly in relation to dietary management.

pubmed.ncbi.nlm.nih.gov
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The Impact of Prescription Barriers to Special Low Protein Foods and Protein Substitutes on PKU Care: Findings from a National Survey of Metabolic Dietitians pubmed.ncbi.nlm.nih.gov/4279…

The Impact of Prescription Barriers to Special Low Protein Foods and Protein Substitutes on PKU...

Background/Objectives: Timely access to protein substitutes and special low-protein foods (SLPFs) is essential for effective dietary management of phenylketonuria (PKU). As key healthcare professio...

pubmed.ncbi.nlm.nih.gov
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Halloween cakes and protein exchanges amounts: 1g protein = 1 PKU exchange
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Low protein Halloween sweets
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Little ghostly lollipops
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HARIBO Bone Shakers Sharing Bag: low protein/exchange free
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M&S Monster Cake Balls: vary between 0.5 to 1 PKU exchange per cake ball
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Sainsbury's Watermelon Witches Sweets: low protein/exchange free
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Tesco Crispy Spiced Curry Puffs: 1 x 23g =1.2g protein (1 PKU exchange)
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Tesco potato baskets/cups: 1 x 17g =1g protein (1 PKU exchange)
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Kellogg's Rice Krispies Squares Marshmallow Snack Bars Multipack: 1 x 28g =0.8g protein (1 PKU exchange)
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Halloween baking ingredients and cake decorations
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Halloween treats: all low protein/exchange free
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Halloween low protein treat list now available
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Anita MacDonald retweeted
Alvaro Hermida
@Info_RaresOct 5
🙏🏻 Delighted and truly honoured to be part of #PKUCon2027, a leading international meeting connecting the global PKU community. Very grateful to the Organising Committee for their kind invitation. Looking forward to sharing, learning and meeting colleagues in Málaga! 🧬 🔗 mirrorsofmedicine.idloom.eve… #PKU #RareDiseases #MetabolicDisorders
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Nomo Bluey Creamy Advent: 1 x 2.9g choc drop = 0.1g protein. Exchange free if keep to 1 choc drop per day
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Moo Free Choccy Coins: 1 x 49g pack = 1 PKU exchange (0.8g protein)
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