Homeschooling Mom, Photographer & Musician. Cancer Survivor & Fighter. Covid & disABILITY awareness. 💉💉💉đŸ‡ș🇾🏮󠁧󠁱󠁳󠁣󠁮󠁿đŸ‡șđŸ‡ŠđŸ‡«đŸ‡·đŸ‘©â€đŸ‘ŠđŸŒŽđŸŽ—âš–ïžđŸ·đŸŽžđŸŽŹ

Ailleurs
Joined March 2012
MAIS COMMENT PEUT-ON DIRE UNE TELLE CHOSE!!!đŸ€ŹđŸ€ąđŸ„ș #SecurisezNosEcoles #Swarm #SafeEdForAll #BlanquerTUE #ProtegezNosEnfants #Rentree2021
Tout va bien alors, nous voilĂ  rassurĂ©s... 😡 Je vous laisse deviner qui osĂ© dire ça, avec son cynisme habituel.
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No. #LongCovid is not just another term for post-viral fatigue syndrome. LC covers the broad sequelae of SARS-CoV-2 infection, which span all body systems ME/CFS is also a disabling condition with multi-system manifestations. It's misleading to highlight only post-viral fatigue
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Vaccin anti-grippal fait ✅ Covid dans 3 mois, aprĂšs mon infection de mi-septembre (merci la rentrĂ©e, merci l’inaction sur la qualitĂ© de l’air intĂ©rieur en milieu scolaire 🙄).
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â€ŒïžđŸššNous sommes en 2026, en pleine remontĂ©e de #Covid. En 15 mn dans le TGV Rennes-Paris, un‱e de nos membres nous rapporte un niveau de PPM qui dĂ©passe : 1) la norme pour les humains, mais aussi 2) celle lĂ©gale fixĂ©e pour les transports d’animaux @GroupeSNCF @SNCFVoyageurs
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We warned everyone 20 years ago - SARS is carcinogenic, neuroinvasive and destroys the immune system. Death of SARS Survivors occured 5-10 yrs after the #MECFS stage due to early onset of; strokes, AD, PD, MS or cancer. #LongCOVID is #AirborneAIDS so #WearN95
Replying to @RealCheckMarker
We already have the historical warning signs. Long-term longitudinal studies on 2003 SARS Survivors tracked cohorts for years. The data revealed that metabolic disorders, chronic fatigue, and distinct immune anomalies simply failed to ever return to a pre-infection baseline. 10/
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#JusticeMalade “On a une vraie culture en France du maintien du lien, du “ça reste ton parent” (
) La justice n’a eu de cesse de cumuler les erreurs". Je le confirme, je l’ai vĂ©cu et le vis en tant qu’enfant, et maman maintenant. C’est de la violence banale, banalisĂ©e mais ça reste inacceptable. Surtout que dans certains cas ces violences Ă©voluent et quand la Ă©niĂšme ligne rouge incluant cette fois l’aspect sexuel, est franchie, il est mille fois trop tard et mĂȘme lĂ , la #Justice ne rĂ©agit toujours pas! 8 ans de procĂ©dures seulement pour maintenir une emprise sur MOI (dĂ©montrĂ© a chaque fois mais malheureusement les plaintes pour violences sont classĂ©es sans suites!). @GDarmanin #JAF Les dysfonctionnements dĂ©marrent aussi avec la #police #gendarmerie qui certes manque de moyens et de formation mais pas seulement! De volontĂ© aussi tristement (confirmĂ© par d’autres acteurs professionnels accompagnant notamment les victimes!).
Inceste : "On a une vraie culture en France du maintien du lien, du “ça reste ton parent” (
) La justice n’a eu de cesse de cumuler les erreurs". @steffyalxnd, invitĂ©e de @AureCasse dans #cdanslair.
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#Avengers: #Doomsday is reportedly costing around $700 million between production and marketing, the most expensive bet in #Marvel's history, and it's riding on audiences (like myself and my son!) accepting @RobertDowneyJr as a villain just one film after killing off Tony Stark (that we’re still mourning like the guy was a husband, a father - RDJ was too good, one can’t help😂!). As a lifelong fan, I'm not convinced, and I'm not alone. Was this gamble worth it, not sure
 What are your thoughts? Thanks god they bring back Thor, SR, Loki but no Barton, no Dr Strange either. Plus I personally find it hard to connect with the 4 fantastic joining a team (I mean especially in this context), that in my opinion can’t no longer be called “Avengers”. I really hope @MarvelStudios didn’t screw it up but honestly, even the teasers feel like the end of an era rather than a revival. My only hope resides in an ultimate multiverse plot twist (V.Doom apparently being the mirroring villain version of Stark and the #Loki show having set the groundwork for such a “variant” narrative). For once that a genius actor such as #RDJr isn’t either fed up of a franchise or simply too busy with other projects, I really can’t explain this risky bet, especially given the huge attachment that grew over 15 years and many #movies. Besides they should have deleted killing off TS’character as we didn’t get enough of him finally being a true couple with P.P AND becoming himself a dad, a side narrative which has a huge importance (regarding Tony’s own dad and on). I wish I was anxious to watch the movie, instead I’m
 simply anxious (as in the French meaning )!😱 ps: however I’m so happy for @DavidKHarbour and #FlorencePugh to joining the gang. And though I have the deepest respect for #IanMcKellen, the loss of several Avengers could have been sorta balanced by bringing in @JamesMcavoyJr21 and #MichaelFassbender but that’s only my humble take, right 😉 @allocine @PremiereFR @IMDb @THR @Variety_Film @RottenTomatoes
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It’s hard to believe, but for a malignant narcissist, the ultimate “win” is seeing a victim pushed to the point of suicide. It’s not just about control—it’s about total domination over someone else’s reality. They get a perverse thrill from knowing they’ve broken a person so completely that they’ve erased their sense of self. It’s also about the story they get to tell afterward. If the victim dies by suicide, the narcissist can spin it as proof that the victim was “troubled”, “crazy,” and that they “did everything they could”, cementing themselves as untouchable while erasing the victim’s voice entirely. For them, it’s the ultimate confirmation that they can manipulate, destroy, and rewrite reality to suit their narrative. It’s horrifying, but this is why protecting mental health and raising awareness about these people isn’t just important—it’s a matter of humanity and survival
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RareCancerGirlx2 retweeted
no, there is a virus tho that burrows deep into our gut tissues and the immune system can’t clear it so we have longterm colorectal inflammation over years and dysbiosis (bad bacteria proliferation demonstrated in 90% of colon cancers). It’s covid.
I’m like 50% sure the rise in colon cancer is bc of the protein craze
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RareCancerGirlx2 retweeted
1/3 Depuis le 1er septembre vous voyez passer ici chaque jour des articles sur l’ASE et les enfants placĂ©s. Ce n’est pas une succession de faits divers. C’est une violence massive, rĂ©pĂ©tĂ©e, documentĂ©e. À force de revenir, elle finit par sembler normale. Elle ne l’est pas.
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Zorry, I live in France und I have never seen anything such az indoor air quality effort! It as rare as finding a French with a decent English accent, only the latest doesn’t kill!! @EmmanuelMacron La France est submergĂ©e de #CovidLong en dĂ©tresse et on se souviendra de tout de que vous n’avez PAS fait! #Covid @Solidarite_gouv @Sante_Gouv
In a display of remarkable audacity, France’s Health Ministry representative recently claimed (UN indoor air event) that the nation leads global indoor air quality efforts. This lie demands correction. Reality is: CO2 levels in France public spaces are still skyrocketing 1/13
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C'est toujours la mĂȘme pandĂ©mie depuis 6 ans, d'un virus qui circule toute l'annĂ©e. Mais si @franceinfo et @SantePubliqueFr (dont un reprĂ©sentant est interviewĂ©) voulaient rĂ©ellement informer le public, ça se saurait. @Arcom_fr la dĂ©sinformation tue, d'oĂč qu'elle vienne.
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RareCancerGirlx2 retweeted
AprÚs 6 ans de lutte administrative et bientÎt 7 de maladie , j ai été déboutée au tribunal de la cour d appel de ma demande d' ALD déposée en 2021 et condamnée aux dépens. Le fameux quoiqu il en coûte de Monsieur Macron . #ecoeurement #covidlong #apresj20 @winslow_la @apresj20
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Dans nos combats de fins de vie, #SoinsPalliatifs (si on a de la chance et sommes “assez profitables”), en plus de la cruautĂ© de la situation, nous rencontrons des violences indicibles. En plus de la cruautĂ© de la situation pour nous et nos proches, du #Lobby mĂ©dical, de l’errance, il y a un vraiment changement chez les professionnels. Une humanitĂ© qui disparaĂźt, des vocations qui se rarĂ©fient et des micro-violences quotidiennes. Ce matin j’appelle le cabinet de mon MG pour lui dire que je risque de ne pas pouvoir me dĂ©placer pour mon RDV de renouvellement mensuel d’antalgiques (#Oxycodone, #Fentanyl, Valium, cortisone Ă  hautes doses etc et le mec n’a pas sorti son stĂ©thoscope une seule fois je crois-consultation 5mn max, salutations et passage de la carte vitales incluses) car j’ai une infection pulmonaire sĂ©vĂšre et je suis trop faible. Étant dans un dĂ©sert mĂ©dical 1) je renonce Ă  aller aux urgences par peur de la maltraitance qui y rĂšgne (en 6 infections j’ai appelĂ© le 15 une seule fois qd j’ai desaturĂ© Ă  88 et ne tenait plus debout) 2) mon MG fait 9h-17, ne se dĂ©place pas, et n’a pas de nouveau crĂ©neau de 5m avant le 18 octobre
 Et la secrĂ©taire de rĂ©pliquer “ah mais oui madame C, mais il va falloir faire un petit effort parce que lĂ  on a la contrainte de votre traitement et pas de place avant 15 jrs !” Sans blague, tout arrĂȘt brutal de ces mĂ©dicaments peut entraĂźner de graves consĂ©quences sans parler de la douleurïżŒ! J’ai balbutiĂ© entre 2 quintes d’une toux crĂ©pitante Ă  faire trembler les murs “trĂšs bien je serai là” en m’excusant presque. Et demain je prendrai donc ma voiture avec une tension Ă  7/5 pour effectuer un AR plus long que le RDV lui-mĂȘme (attente incluse) et me mettrai et mettrai potentiellement les autres en danger parce qu’il n’y a pas de solutions, que je suis fatiguĂ©e de me battre et ai simplement abdiquĂ©. Dans quel monde vitïżŒïżŒïżŒ-on?😰 J’ai passĂ© 35 ans Ă  la merci du systĂšme de soins. J’ai fait de trĂšs belles rencontres mais j’y ai aussi vu la mĂ©diocritĂ©, la mĂ©chancetĂ© gratuite (insultĂ©e pdt mon accouchement!). J’ai malheureusement plus de mauvaises anecdotes que de bonnes alors que je suis la patiente idĂ©ale. À ceux qui ont trouvĂ© la sĂ©rie #Hyppocrate exagĂ©rĂ©e ; par chez nous c’est tout Ă  fait rĂ©aliste, la seule chose qui ne l’est pas c’est d’avoir autant de mĂ©decins dĂ©vouĂ©s en 1 seul hĂŽpital! D’ailleurs en parlant d’Hyppocrate
 elle devrait avoir valeur juridique! conseil-national.medecin.fr/

Replying to @BFMTV
Tragique 😱Son tĂ©moignage est prĂ©cieux et exprime le ressenti de bcp de français face Ă  la toute puissance du lobby mĂ©dical, Ă  l"errance mĂ©dicale, la perte de confiance dans nos mĂ©decins. Qu'il repose en paix dĂ©livrĂ© de ces souffrances qu"il n'aurait jamais dĂ» subir. #ArnaudDenis
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RareCancerGirlx2 retweeted
đŸŽ—ïž #ChildhoodCancer đŸŽ—ïž
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đŸŽ—ïžHey @X @elonmusk given the #hashtags I used and the people tagged, how come, in the middle of the #childhood #Cancer #childhoodCancer #ChildhoodCancerAwarenes #PediatricCancer month awareness, ALL my #EwingSarcoma #CancerSurvivor TWEETS and REPLIES get so little Views!?!! The society already works hard to invisible us, this feels like another slap in the face! So please, do your part as a father, business and philanthropist and fix this. Btw as a long term severe #ChronicPain, given the progress made through @neuralink, any thoughts about neurological pain management? There’s a lot you could be doing for millions of #KidsWithCancer while still achieving your dreams. I’d rather use my little time and energy left to work on mine (have a better piano, take some Drums lessons and take my son to visit the US for which I learned the language) but we’re on our own and sick to see that the US protocol that saved my life in 1991 is still
 the SAME!! 35 years later NOTHING has changed when one can send space shuttles in space! That’s why our voices must be heard! For our #kids
 Lilly đŸŽ—ïžđŸ™đŸŒ
This is the month of #ChildhoodCancer AWARENESS! đŸŽ—ïžđŸŽ—ïžđŸŽ—ïž Yet, i don’t even got a single like (aside of my Mom, which is often the case if you through my posts). Even among 20 views and while replying to @2StefanMoore, a fiercely, amazing advocating Dad who lost a child to #PediatricCancer. Yes my post is hard to swallow, not a nice ending #CancerSurvivor story, but that’s precisely why this illness is a terrible beast, and apparently I’m also denied to share, advocate on behalf of those who lost the battle, those who are currently in surgery, hooked at a respiratory machine, under chemo or radiation etc
 Your silence is a slap in our already way to mature faces. But we are warriors, resilience and resourceful, so we believe YOU can like, share, quote any of the đŸŽ—ïžposts. Never forget that: it doesn’t only happen to others
sadly. Ps: please support @BubbasRide, one of this super warrior who needs prayers or good vibes and inspired me to get back in the fight, even though I should be resting as my system has been fighting for 35 years and current 💊 keep destroying my body. @AmericanCancer @laliguecancer @CancerSocietyUS @IntChildCancer @ChildhoodMa @cancerchildren
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RareCancerGirlx2 retweeted
Hi. I survived an #Askin #Tumor at the age of 7 yo. I went under chemo and a “lethal dose” or #radiotherapy, from which I’m now slowly, painfully dying (thx #ORNC!). If your a longtime Askin survivor too, I’d like to hear about your story cos there are no known treatments to 1/x
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RareCancerGirlx2 retweeted
Children are dying from cancer & survivors are dealing with long term side effects from treatments. #ChildhoodCancer should be trending, especially during Childhood Cancer Awareness Month but it’s not. @elonmusk
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RareCancerGirlx2 retweeted
Articles and studies detailing the long lasting after effects of covid infections have been published in: Nature Medicine, The Lancet, The Lancet Infectious Diseases, The Lancet Respiratory Medicine, The Lancet Psychiatry, The Lancet Neurology, The Lancet Child & Adolescent Health, The Lancet Healthy Longevity, The New England Journal of Medicine, JAMA, JAMA Internal Medicine, JAMA Neurology, JAMA Psychiatry, JAMA Pediatrics, JAMA Cardiology, JAMA Network Open, BMJ, BMJ Medicine, Annals of Internal Medicine, PLOS Medicine, eClinicalMedicine, eBioMedicine, Science, Science Translational Medicine, Science Advances, Cell, Cell Host & Microbe, Immunity, Nature, Nature Communications, Nature Neuroscience, Nature Cardiovascular Research, Nature Immunology, Nature Aging, Nature Mental Health, Nature Microbiology, European Heart Journal, Circulation, Circulation Research, Journal of the American College of Cardiology, European Respiratory Journal, American Journal of Respiratory and Critical Care Medicine, Thorax, Brain, Neurology, Journal of Neurology, Neurosurgery & Psychiatry, Alzheimer's & Dementia, Kidney International, Journal of the American Society of Nephrology, Clinical Infectious Diseases, Journal of Infectious Diseases, Emerging Infectious Diseases, Clinical Microbiology and Infection, Diabetes Care, Gut, Gastroenterology, Blood, Arthritis & Rheumatology, Rheumatology, Pediatrics, Pediatric Research, Obstetrics & Gynecology, British Journal of Sports Medicine, Journal of Clinical Investigation, Proceedings of the National Academy of Sciences, and Scientific Reports. This is not quackery. It's not low quality. It's not junk science. It's not debated. It's detailed, exhaustive, thoroughly researched science: Covid infections increase your risk of a vast range of health problems. Vaccinations do not prevent that increase in risk. Having had Covid before does not prevent that increase in risk. The only thing that prevents the increase in risk is to *not catch Covid*. There's a wave now, so mask up.
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