community-led research & strategy coach, TO Joker, ALS caregiver and mom
Oakland
Joined October 2008
- Tweets270
- Following539
- Followers438
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My husband with ALS could not be understood by our daughter for 2 years. Now as a cyborg, he can be. Warning, you might cry. You might be inspired to help us keep our Casey alive. Give it a watch, and if you don't mind, please pass it on.
Help keep the world's first and still only fully functional #BCI Speech #Nueroprosthesis user alive! For #science, also for my family. Thanks in advance for considering a donation, and for sharing broadly. gofund.me/191af2666
levana saxon retweeted
Trump is holding all the nation’s hospitals and vital services hostage to seize power from Congress and hand it over to billionaires.
We must state the truth: this is a constitutional crisis. It’s a massive, illegal power grab that the House and Senate have a sworn duty to stop.
levana saxon retweeted
Sade is set to release her first song in years as part of a benefit album to support transgender awareness and spotlight trans and non-binary artists.
Her song on the album is titled ‘Young Lion’ and will be dedicated to her trans son Izaak.
Some raw background of some of the ways that losing speech impacts ALS families, our family - and what this device has done for us.
Hear the new brain-computer interface in action with Casey Harrell in the latest episode of "Intention to Treat," a podcast by the NEJM Group: nejm.org/doi/full/10.1056/NE…
#NeurosurgeryAwarenessMonth
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levana saxon retweeted
Our new study is out today in the New England Journal of Medicine! We demonstrate a speech neuroprosthesis that decodes the attempted speech of a man with ALS into text with 97.5% accuracy, enabling him to communicate with his family, friends, and colleagues in his own home. 1/9
Help keep this Black own business open that is making ground-breaking health care accessible gofund.me/f52032ef
levana saxon retweeted
I think the Queen would want us all to live the way she did, with free public housing, basic universal income, and full government health care.
levana saxon retweeted
Replacing virtually all of the world's CO2-emitting energy sources with clean power would pay for itself with energy savings in 6 years, according to @Stanford study: bit.ly/3NvgImJ @AKrauland @mzjacobson
levana saxon retweeted
🚨 BLKsbigproblem is currently @VanguardSOS in honor of a new global campaign launching TODAY! 🚨
#VanguardSOS is a network of NGOs, finance experts, and grassroots activists pushing @Vanguard_Group to chart a new course away from climate catastrophe at: vanguard-sos.org
levana saxon retweeted
BREAKING NEWS: #ACTforALS has just passed the Senate and is on it’s way to @POTUS. Hope is real for ALS patients thanks to you. The impossible is possible. #NeverGiveUp
My husband was diagnosed with a terminal illness, his fight to live involves fighting for the whole world to live. His fight to access currently existing life saving drugs is a fight for everyone with ALS to get these drugs. I love you @notoriousveg
So, this story came out today. @pgreenfielduk wrote about me, my campaigning and my fight against ALS. I am honored and I want to explain why this is important. A short thread:⬇️
theguardian.com/society/2021…
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Join me in supporting Haitian Bridge Alliance via @actblue secure.actblue.com/donate/su…
Our lives without home-based care are impossible. I’m an injured caregiver for my partially paralyzed husband with ALS. We have a 2 yr old. We need this!
nwmd.io/s/twitter/Zhc8ATXEHP…
levana saxon retweeted
We are the friends you need to coax to have plans even though it’s complicated. We are the friends you need to call even if we don’t pick up. We are the friends who just need the sign of friendship even if we can’t engage in the deeper practice. Thank you for being our friends.
levana saxon retweeted
Today, Brazil’s Supreme Court could define the future of Indigenous land demarcation. It's expected to rule on the “Marco Temporal,” or #TimeLimitTrick, an unconstitutional legal tool created by extractivist lobbies interested in exploiting Indigenous lands in Brazil.
levana saxon retweeted
Introducing Levana Saxon @levanta! Levana will be leading a workshop called "Showing all the Way Up; Pitfalls and Strategies for White Facilitators of Anti-Racist work." as part of the Empathic Facilitator Training! Sign up at tinyurl.com/empathicfacilita… #empathicfacilitator
Thanks to everyone and to @gofundme for supporting our family. Feeling optimistic that we can keep my husband alive
Of those diagnosed with ALS, 50% live less than 2.5 years & only 10% live longer than ten years.
You can help this father find the best treatment & fight the odds. gofundme.com/f/support-for-c…
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