We raise awareness, fund research and provide support. Lewy body dementia is the most common type of dementia you have never heard of. https://xitter.cf/t.co/g6v8Pci4Q2

England,Wales,N.Irel,Scotland
Joined April 2013
Lewy Body Society retweeted
50th birthday today. Good day off. Done loads. But - I made sure I went to see a Main man in John Mills to show him we made the local paper @rotherhamtiser about @MainMaltby’s awareness and fundraising for @lbsorg. maltbymainfc.co.uk/news/1002…
2
3
7
896
Want to join our research group? If you are a carer for someone with #dementia or live with #dementia, and live in the North West of England, join our #Equadem network as 1 of 2 Public Advisor Researchers for 4 years! my.corehr.com/pls/ulivrecrui…
9
3
461
Lewy Body Society retweeted
Today is National Lewy Body Dementia Day—and unlike many "National Days," this is not one anyone wants to celebrate. Lewy Body Dementia is a little-understood yet common form of dementia. It often affects younger people but can strike at any age. Tragically, its symptoms progress more rapidly than other forms of dementia, making it a particularly devastating diagnosis for those affected and their families. If you’ve encountered Lewy Body Dementia, you’ll know just how life-changing it can be. My father-in-law Jon, is currently suffering from LBD. It's been a difficult time for everyone. No more so than for Jon. Currently, there is no cure. However, there is hope. There is a community offering vital support, and at the forefront is @lbsorg. Last week, the Society delivered a petition to Parliament urging the government to provide greater support for families navigating this incredibly challenging journey. Based on my own experience, I can’t stress enough the importance of early diagnosis and equipping yourself with as much information as possible. A book that particularly helped me understand the illness better was 'Living With Lewy Body Dementia' (linked below), and I highly recommend it for anyone seeking understanding and practical advice. Supporting the charity was one of three reasons behind my December 2025 ocean rowing challenge: 3,000 miles across the Atlantic in an attempt raise £100,000 for The Lewy Body Society. It’s a tough journey, but one that pales in comparison to the daily battles faced by those living with this condition and their loved ones. We’ve made a start, but there’s still a way to go. If you’d like to support this cause, you can find my GiveStar link in the comments. Finally, if you or someone you know is struggling, please know that help is available. Reach out to The Lewy Body Society—they’re there to guide you and offer the support you need. Together, let’s raise awareness, offer hope, and make a difference.
2
4
9
663
With its global release on #WorldLewyBodyDay, students from UCA reveal a pro-bono charity commercial made in collaboration with @sonyproeurope and @cookeoptics for the @lbsorg Read more and watch the final commercial 👉bit.ly/40y6Jpg #WLDB2025 #Dementia #StudentFilm #CharityCommercial #Advert #FilmProduction #Charity #Creativity #Innovation
1
1
1
455
Merci Catherine for your support to @a2mcl and everyone affected by #LewyBodyDementia RIP ❤️
1
3
176
'On the 2nd annual #WLBD2025, promoting a better global understanding around this little-known condition continues to be a priority worldwide. #WLBD represents an opportunity to devote resources towards bridging the awareness gap and to improve lives' Jacqui Kerr - Network Mgr
4
5
289
On #WLBD2025, we want to raise awareness of our clinical trial for people with #lewybodydementia taking place in Lothian and Glasgow hospitals ⬇️⬇️ Sign up to be considered ➡️bit.ly/4fz3yng
2
2
230
Want to find out more about the European INTEREST network and the work on social health and inequalities in dementia across Europe? Join us on the 6th of February for our next #LiverpoolDementia webinar! @SaraLBartels eventbrite.co.uk/e/liverpool…
6
1
5
517
Lewy Body Society retweeted
Dr @ClarissaGiebel for the development of a new National Dementia Strategy. A co-produced plan can improve care, research, and workforce support. Join the petition to prioritise this public health challenge. Learn more and sign here ➡️🖋️ tinyurl.com/2956996j
8
10
537
A new taking part opportunity. PhD student, Ziyue, is looking forward to hearing about your 'Social Health' whilst living with Young onset dementia dementiavoices.org.uk/deep-g… @YoungDemNetwork @elhijodevera - click the link above or go via the QR code on the poster below
1
2
3
4
1,111
Lewy Body Society retweeted
3 years is fa too long for those of us living with dementia. I may not be around in 3 years it’s now I need social care. Shameful and yet no one does anything about it! Why?
"There is no solution to the crisis in the NHS that doesn’t include a solution for social care." Dismayed to see @wesstreeting acknowledge this - yet kick the issue into long grass with a commission that won't report until 2028. What hope for the NHS & those needing care now?
2
1
11
1,102
Pre-Christmas funding news for our first 2️⃣ funded projects in our NWC Living Lab in Ageing & Dementia, starting in January! Developed with some of our #socialcare members, we'll be looking at unsafe hospital discharges and impact of Dementia Village! @ReadmanRose @MeganPolden
1
6
10
407
Lewy Body Society retweeted
Obviously, I am totally biased but this is a terrific paper covering how the field of #Dementia with #LewyBodies is moving forwards rdcu.be/d3qOQ @carlaabdelnour @LBDPIA @LewyBodyLab @NextGenDlb
1
6
1
17
754
The @lbsorg has celebrated five years of funding Rachel Thompson’s @raheli01 role as the UK’s first Consultant Admiral Nurse for Lewy body dementia. Read More: journalofdementiacare.co.uk/… #dementia #dementiacare
1
210
We have a fascinating conversation booked in for January. Free to join? Click here to register - emmasmith561.clickmeeting.co… #dementia #art #caring #caregiver #family #photography @dementiaunited @GMOPN1 @GM_ICP @Innov_Dementia @LBUdementia @lbsorg @WiganLeighCarer
3
2
275