Kim Eagle retweeted
We recently convened researchers and clinicians from around the world in Barcelona for Science in Spain. 🔬
Meet Emily Bramel, one of a small group of early-career researchers selected to receive a scholarship to attend the four-day conference in Barcelona. She found that a gene that drives inflammation may make the aortic root especially vulnerable to aneurysm in Loeys-Dietz syndrome.
Learn more: marfan.org/2026/09/28/meet-t…
Research is unlocking new possibilities for people living with Marfan and related conditions. 💜 Help move that work forward at marfan.org/impact
#ScienceinSpain #LoeysDietz #LoeysDietzSyndromeFoundation #TheMarfanFoundation #Research&Education
Kim Eagle retweeted
In this week’s #EaglesEyeView, @keaglemd discusses continued #HealthDisparities in CV clinical trials, left SGB & a reduced incidence of postoperative #AFib in patients undergoing #cvCABG, managing resistant #Hypertension, & more.
🎧 Tune in here: bit.ly/3TBrW2g
Kim Eagle retweeted
Tune in to this week’s #EaglesEyeView as Dr. @keaglemd looks at:
✅ ACC/AHA Joint Perioperative Guidelines
✅ Atenolol and MACE Risk
✅ Yoga and VPCs
✅ DECIPHER & CMR
🎙️ bit.ly/47Mtt8Q #CardioX
Kim Eagle retweeted
Instead of starting things off on a negative foot, try a "Thank you" instead of an "I'm sorry". It can change the whole paradigm. @ProjectHealthySchools
ALT A person sits in a meditation pose at the end of a wooden dock overlooking a calm lake surrounded by trees. The image includes a quote: "Replace 'sorry's' with 'thank you's'. Instead of 'sorry I'm late', try 'thank you for waiting for me'. Change your mindset."
Kim Eagle retweeted
It's Stickler Syndrome Awareness Week, and we're proud to continue welcoming more and more members of the Stickler community to the Marfan Foundation family.
Meet Lissa, whose son Leo lives with Stickler syndrome. “This news was a complete blow at the time,” she said. “This syndrome was not hereditary for us. So, I just dove right into the only thing I could control at that time: researching relentlessly and getting him every possible support. ‘Mama lion mode’ was activated!”
Read more of the family's story: marfan.org/blog/stickler-syn…
#SticklerSyndrome #Stickler #SticklerAwarenessWeek
Kim Eagle retweeted
Dr. @keaglemd looks at how higher whole-grain intake was associated with improvements in multiple cardiometabolic risk factors in a meta-analysis of randomized trials.
Hear more insights in this week’s #EaglesEyeView podcast. 🎧 Listen now: bit.ly/46Yyye0 #CardioX
Kim Eagle retweeted
During the first days of this VEDS Action Month, watch on demand Dr. Hal Dietz's recent VEDS research update. #TheVMatters #VEDS #TheVEDSMovement #VEDSActionMonth
youtube.com/watch?v=AwN8hR_k…
Kim Eagle retweeted
Our Marfan Foundation family lives in every corner of the globe. That's why we brought our mission to Barcelona, Spain today with our first-ever patient community symposium there--connecting community members with experts and fostering local friendships.
Read more: marfan.org/2026/10/03/keys-t…
#Marfan #LoeysDietz #VEDS #Barcelona #Spain #TheMarfanFoundation
Kim Eagle retweeted
Science in Spain starts in a few days! Meet Andrea Vosberg, one of a small group of early-career researchers selected to receive a scholarship to attend the four-day conference in Barcelona. She is exploring the Impact of Attention Deficit Disorder (ADHD) Among Children with Marfan Syndrome: A Multicenter Study from CLARITY.
Learn more: marfan.org/2026/09/28/meet-t…
Research is changing what we know—and what’s possible—for people living with Marfan and related conditions. 💜
If you'd like to support research, visit marfan.org/impact
#Marfan #Marfans #MarfanSyndrome #ADHS #CLARITY #Research #ResearchScience
Kim Eagle retweeted
Did you know that scientists from around the world - and in all stages of their careers - are working tirelessly to find new treatments and ultimately cures for Marfan, Loeys-Dietz, VEDS and related conditions?
We're bringing together that group during Science in Spain, beginning in Barcelona this weekend for collaboration that advances hope for our community. And, we'd like you to meet the newest generation of researchers who will take part: marfan.org/2026/09/28/meet-t…
These early-career scientists received scholarships to travel to Spain and present their work before experts for feedback - thanks to the generosity of Marfan Foundation donors. Your gifts fuel the next big breakthrough.
We'll be featuring these next-gen researchers individually in the days ahead.
#ScienceinSpain #Marfan #LoeysDietz #VEDS #Research #ResearchScientists #GeneticAortic #AortaEd #Barcelona
Kim Eagle retweeted
Medical monitoring is essential to reducing risk of aortic dissection in Marfan syndrome - it can also be hard to access.
Sisters Danielle Sullivan and Cacharel Davis are sharing Cacharel's story in an effort to spread Marfan awareness and save lives. nj.com/healthfit/2026/09/nob…
Kim Eagle retweeted
Extreme heat exposure was associated with modest acute reductions in blood pressure among adults receiving care at community health centers.
Hear Dr. @keaglemd on the #EaglesEyeView podcast for more insights ➡️ bit.ly/46DckOB #CardioX
Kim Eagle retweeted
🏕️ Last call for Camp Victory Family Camp in California!
Think cozy nights by the fire, outdoor adventures, and plenty of time to connect with other families who get it. 💜
Our final Family Camp of the year is October 23–25 in the beautiful San Bernardino Mountains — and registration closes in just two days!
If you’ve been thinking about joining us, now’s the time.
Register by September 25: marfan.org/campvictory
#CampVictory #FamilyCamp #MarfanFoundation #Marfan #LoeysDietz #VEDS #KnowConnectThrive 💜
Kim Eagle retweeted
#EaglesEyeView: @keaglemd explores the prospective SAMCRO trial which evaluates lifestyle intervention in addition to medical therapy in patients with invasively confirmed angina with no obstructive coronary artery disease (ANOCA).
Tune in for more ➡️ bit.ly/4hDKIQ9
Kim Eagle retweeted
ICYMI: Our Loeys-Dietz Syndrome Foundation newsletter is packed with "need to know" info about the updated LDS Primer, a memorial cornhole tournament that made a big impact, a LDSF Steering Committee update, a novel featuring an LDS storyline and more.
Don't miss it: ow.ly/ICJu50ZOyFn
Kim Eagle retweeted
We call on lawmakers to fund aortic dissection research. We call on everyone to know the signs of aortic dissection and act STAT to save lives. We call for a focus on family history and genetic testing. And most of all, we stand with survivors and the loved ones of those lost.
Take action. Share the op-ed: marfan.org/2026/09/13/the-ti…
Kim Eagle retweeted
💜 Today is Aortic Dissection Awareness Day. Early recognition saves lives. Help spread awareness and support those affected. #AorticHope #ThinkAorta #AorticDissectionAwarenessDay #aortaEd photo credit Sarah Coupland
Kim Eagle retweeted
September is Aortic Disease Awareness Month & knowing the signs can save a life. Aortic dissection often strikes without warning and is frequently misdiagnosed. Awareness saves lives. @DrBRhoadesCNS @gmartineznp #aortaEd blogs.bcm.edu/2026/09/17/aor…
Kim Eagle retweeted
Do you have child transitioning into middle school? Check out the graphic for 7 ways that you can help your child do so in a healthy manner. @ProjectHealthySchools
ALT A list titled "7 Ways to Help Your Child Transition to Middle School" includes: 1. Show them how to choose "good" friends. 2. Encourage healthy risk taking. 3. Shift academic accountability to their shoulders. 4. Let them fail. 5. Get them organized. 6. Teach them time management. 7. Take advantage of orientation opportunities.
