I’m asking everyone to please pray for our baby. We need answers. He has had back to back flare ups. We just had IVIG on Tuesday and he has had a horrible day today. We were threw some new scary words at his appointment Tuesday, so we are currently waiting on genetic testing, another 48 hour EEG and trialing a new medicine. Unfortunately, I don’t think his little body is tolerating the new medicine well at all and has caused this current flare up. Please pray for rest for him, answers and calm nerves for Colby and me. I have to remind myself this is a marathon not a sprint, but I sure wish I could trade places with him.