Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Longford, Ireland
Joined March 2009
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Can we give #longford @GardaTraffic @gardainfo massive love (Gerry & Aidan) who escorted me in record time for my #kidneytransplant. There are #angels & #heroes all around us #transplant #recovery #beaumonthospital #kidneytransplant #dublin #organdonation #becomeadonor – at Dublin City, Ireland
My mam was told I wouldn’t survive more than 4-5 years & here I am at 50. Emotional as my moma isn’t here to see this huge milestone, her hard work & dedication got me here, but she was definitely present….there were signs. Take that 💪 #cysticfibrosis #defyingtheodds #50th
So grateful to @SimonHarrisTD for ensuring we got the best deal. @VertexPharma modulators have been life changing
So heartened reading this article and with huge gratitude to Jillian McNulty for her incredible advocacy.
We had worked so hard to secure these medicines for Irish patients. Amazing to see the difference it has made for so many CF patients
independent.ie/irish-news/qu…
If you’re around Co #Sligo on May 11th please join us on this beautiful walk in memory of mam, weather is set to be glorious, if you can’t join us anything you can spare would be appreciated gofund.me/59604649 #loughtalt #cysticfibrosis #hospice #charitywalk
Charity walk in Sligo county May 11th dedicated to my precious Mam RIP All funds to Cystic Fibrosis & Hospice. Please share #hospice #cysticfibrosis #sligo #loughtalt #walk #charity
First #MothersDay Day without you moma 😭 but Derek & Gary have you for their first in decades 💔 Hugs your mammies extra tight everyone #grief #heaven #mammy #bestmammy
Thank you Prof Gallagher
A legacy of excellence in CF Care 💙
Today, we celebrate Prof Charles Gallagher, who retires after nearly 3 decades of dedication to CF patients, research & education at #SVUH. His impact is immeasurable & his legacy will live on
Thank you, Prof. Gallagher! 👏 #cysticfibrosis
My best friend, my rock, my dearest moma went home to be with her darling sons Derek & Gary at 1.05 last night, my heart is broken into a million pieces. My mammy was the strongest bravest fighter right until the end for just 16 days. I love you, I’ll miss you forever 💕
Candle lit for the very special person that saved my life, my 3rd Christmas with my new kidney. Thinking of them and their broken hearted family this Christmas. Make the most of this Christmas everyone, if you haven’t already please #becomeanorgandonor Merry Christmas💕
🎉🎉🎉🎉💒💒💒💒 such a great weekend @franmcnulty & @doireannoh 💕
The absolute best day, full of immense love, happiness & laughter my brother @franmcnulty marrying his whole world @doireannoh I’ve officially gained such an amazing sister in law #family #weddingday
Can someone in @svuh please tell me why you have an appointment system for #phlebotomy when you are told to sit outside as there’s people in queue before you, I stressed my appointment is in 5 mins to be told it doesn’t matter sit outside so those without an appt are seen first?
Just a normal Friday afternoon in #Longford #bankholidayweekend #october #friday #halloween #ghosts @jessicadotie
#AuroraBorealis living life & fulfilling my bucket list thanks to my precious #donor who saved my life #forevergrateful #becomeadonor #organdonation
Who’s ready for what’s supposed to be the strongest #aurora in years, it may even top May (pictured below in #Easkey) This is the stuff dreams are made of. Incredibly grateful to my precious #donor to be #alive to fulfil my biggest #bucketlist item yet again #organdonation
