Janelle retweeted
For those in US, this is the equivalent of how big #AustralianFires are
Use our interactive #ausfires map to compare anywhere theguardian.com/australia-ne…
#bushfirecrisis #AustraliaBurns #AustralianBushfires #BushfireEmergency #bushfiresAustralia #AustraliaBurning #AustraliaFires
Janelle retweeted
Why “You don’t let your #disability stop you” is nonsense - via @smedian_network #Disabied #Spoonies #InvisibleIllness #ChronicPain lnk.xyz/SkErwv0pN?aduc=2OJDo…
Janelle retweeted
My piece for STAT about the Lightning Process study. Please leave comments on STAT after the article! statnews.com/2019/12/13/bmj-…
Janelle retweeted
I’d like the thank the #MECFS community for the overwhelmingly positive feedback to our recent pre-print on BioRxiv. We feel our findings completely support major & serious functional disruption in ME/CFS patients, who suffer greatly yet was neglected & dismissed for so long!
Janelle retweeted
Hey friends! @twitchyspoonie is only $650 from her fundraising goal! Teeth are ridiculously important & it's absurd that it's considered separate from other healthcare when dental issues can KILL YOU, but here we are! So please boost & donate if you can!
gofundme.com/f/jaleesa039s-d…
#PatientsAreNotFaking
Okay so let's talk about "fake respiratory distress".
Me, to immediate care center: I have a severe abdominal pain
Desk: Please wait
Me: Okay, np
Me: reads e-book
Me: starts to feel short of breath
Me: this is normal, reads some more
Facility: Ignores me for hours
Me: stops breathing two more times.
Sister: gets help when she sees my lips turn blue
Staff: panic over SPO2, give me oxygen
2nd Doc: writes a "prescription" for an OTC on an Rx pad, "diagnoses" something radiology ruled out.
#PatientsAreNotFaking
My complaint is answered by "according to your chart, everything is fine".
My chart says someone checked on my every 15 minutes (lie), my skin was pink all night (lie), and they gave me O2 only because of my sis (lie).
#PatientsAreNotFaking
Janelle retweeted
There is no such thing as being ‘deserving’ or ‘undeserving’ of medical attention, we should all be treated humanely.
#PatientsAreNotFaking
Janelle retweeted
I would encourage anyone working in healthcare to read the stories of #PatientsAreNotFaking. Our hidden curriculum in medicine often teaches us to discount patient symptoms. It’s dangerous and unethical. Listen to your patients.
Janelle retweeted
Jillian Wiese is someone who writes about cyborgs and she has a book of poetry out now, Cyborg Detective (the book cover is so fabulous) boaeditions.org/products/cyb…
Both Jillian & @ashleyshoo will be on my @DisVisibility podcast in a few weeks talking all about cyborgs too!
Janelle retweeted
If accessibility information is not available without having to make additional contact, it's not accessible.
If a Disabled person cannot access your services without enlisting a whole other human being to do it when it's unnecessary, it's not accessible.
#EverydayAbleism