Primary Immunodeficiency Support (IPIA) supports patients & parents affected by a #primaryimmunodeficiency in Ireland. #PI #rarediseases #PID
Ireland
Joined May 2014
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@Baxalta @HSElive @irishexaminer @Irish_health #PID #PI patients in Ireland need Medical Card/Right to home Therapy
Our newsletter is out now "IPIA Newsletter: Mental Health Support" — catch up on today’s updates here: [insert link] #Newsletter #Updates #News #IPIA #ipopi #mentalhealth #mentalhealthmatters Ihttps://mailchi.mp/130969ffd675/ipia-newsletter-world-pi-week-2026-begins-10343762
Explore the toolkit here: ipiainfo.org/toolkit Thank you for supporting World PI Week and helping us share the IPIA Patients Toolkit, Together, we can raise awareness, support one another, and grow a stronger PID community in Ireland. #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA
Become part of the IPIA community: ipiainfo.org/toolkit No one should face primary immunodeficiency alone. This World PI Week, we’re highlighting the importance of connection, support, and belonging through the IPIA Toolkit #WorldPIWeek #IPOPI #IPIA #PIDCommunity #JoinIPIA
Explore the toolkit and help grow IPIA: ipiainfo.org/toolkit Getting a diagnosis and understanding treatment can be overwhelming, Patients Toolkit, helps patients and families learn more about testing, diagnosis, and treatment options.#WorldPIWeek #IPOPI #IPIA #PatientRights
Living with PID ipiainfo.org/i-control-the-i… can affect everyday life, practical support is so important. IPIA Toolkit, shares guidance. join IPIA to support our work #WorldPIWeek #IPOPI #IPIA #PID #PatientSupport #JoinIPIA
During #WorldPIWeek, IPIA celebrates St James’s Hospital milestones! ANP Aoife rep the team at IPOPI’s PID Forum in Brussels on "Growing Older with PID." Plus, their #Immunodeficiency Service earned QPIDS accreditation—first outside the UK! #StJamessHospital #IPIA #IPOPI #PID
Join IPIA today to connect, advocate, and build strength together! ipiainfo.org/toolkit This World PI Week 2026 Patients Toolkit – your guide to understanding PID, daily support, diagnosis, treatment, advocacy, research and much more #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA
World PI Week is here, and we’re delighted to launch the IPIA Patients Toolkit that brings together trusted information and practical support for people living #PID Explore the toolkit and join IPIA #WorldPIWeek #IPOPI #IPIA #JoinIPIA ipiainfo.org/toolkit
World PID Week starts today! introducing the new IPIA Tool Kit — trusted information, practical support and community resources for PID.
Read here: mailchi.mp/f9ea5562e549/ipia…
#WorldPIDWeek #PIDAwareness #PrimaryImmunodeficiency #IPIA #ToolKit #RareDiseaseAwareness #IPOPI
“I control the illness — not the other way around.”
A powerful member story about resilience, courage, and living fully with PID. Read more here: #IPIA #PID #WorldPIWeek #WeCantWait #IPOPI #CVID #PatientStory #PIDAwareness ipiainfo.org/i-control-the-i…
Primary Immunodeficiency Support (IPIA) retweeted
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
Calling all PID Patients and supporters!
Every story counts — let’s make sure the Government hears ours. 💪 #PIDawareness #InvisibleIllness #DisabilityRights #Ireland #IPOPI #HSE #healthministry
Have your say here:
gov.ie/en/department-of-soci…
👉 Take the survey here: ec.europa.eu/eusurvey/runner…
Let’s make sure the Irish patient voice is heard across Europe! 🇮🇪💙#IPIA #PrimaryImmunodeficiency #PatientVoice #RITA #RareDiseases
Thank you @stjamesdublin for making this possible and supporting IPIA #worldPIweek
Today members of the Immunology Team met with patients and staff to mark #WorldPrimaryImmunodeficiencyWeek 🏥
The team celebrated the occasion and raised awareness of Primary Immunodeficiency🩺
#WorldPIWeek2025 #SeeTheUnseen
