@iamdrmarklee

Palliative Care Specialist for 25 years. All views expressed are my own.

Newcastle upon Tyne
Joined November 2011
The American Medical Association ethics code says "as a member of a profession dedicated to preserving life when there is hope of doing so, a physician must not participate in a legally authorized execution." With AD 'in play', it feels like they 'dancing on the head of a pin'
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Strange day yesterday: leading advocate of assisted suicide dies peacefully surrounded by her family while in the US we find that lethal drugs are not necessarily effective and can lead to a painful non-death, possibly involving brain damage.
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I wrote about the uncertainties surrounding assisted dying (and lethal injection) drugs that still exist to this day. Some research desperately needed that will test ethics committees to the limit. archive.is/SSk7k and spectator.com/article/the-un…
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Dignitas use the same drug. They produce no data, reports or research. No regulatory authority anywhere in the world has evaluated assisted dying methods. Safe? Really?
Another botched lethal injection. Pentobarbital is the drug also used in Assisted Dying regimens: "..concerns raised by Ms Pike proved true: vein access, degraded pentobarbital, no emergency medical care available, under a protocol veiled in secrecy" bbc.co.uk/news/articles/cq8r…
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Another botched lethal injection. Pentobarbital is the drug also used in Assisted Dying regimens: "..concerns raised by Ms Pike proved true: vein access, degraded pentobarbital, no emergency medical care available, under a protocol veiled in secrecy" bbc.co.uk/news/articles/cq8r…
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Medical judgments of 'futility' often reflect ableist judgment about value of a person's life & quality of life. Studies document many physicians have negative view of quality of life of disabled people. And official reports document problematic cases spcare.bmj.com/content/16/2/…
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This tragic story shows why MAiD laws are extremely dangerous for vulnerable groups, such as the elderly and those in cognitive decline.   This woman allegedly did not even consent to end her life—but doctors proceeded to kill her anyway.   Medical professionals should administer care to their patients, not death. dailymail.com/news/article-1…
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Remarkable that this lengthy statement has not a single word to say about improving palliative and social care.
I have reflected at length about what happened in Parliament on Friday. Thank you to everyone who has contacted me with their heartbreaking personal stories and campaigned on this issue for far too long. I am so sorry. Please see my statement below. Many thanks, Kim
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Bad deaths are caused by bad care. The reality is that Every day >300 people in UK cannot access the specialist palliative care they desperately need. That is ❌Not choice ❌Not autonomy ❌Not compassion ✅Get the care right first.
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Replying to @LukeTryl
The real question is how a campaign group founded by a medical eugenicist in the 1930s managed to convince you — and a majority of Labour MPs — that the return of a proposal first rejected by Parliament nearly a century ago was somehow “progressive”. politicshome.com/thehouse/ar…
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This post is unacceptable 👇🏻 Wanting to protect our vulnerable from the pressure to die does not make me a demon who likes to see people in pain. In my lifetime I’ve watched many people deteriorating towards death. Pain was controlled. It’s time these activists who say they watched loved ones die in agony addressed why that happened rather than think, because it did, that we should all be committing suicide to avoid poor palliative care.
I detest people like you, who openly brag about being happy that people are suffering excruciating pain whilst waiting to die. I’m surprised you don’t stand at the side of their bed laughing, whilst they are clawing g at their face in pain, just like my father did.
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Tony Marra, who recently collaborated with Kim Leadbeater on a video promoting the AS bill, is now arguing that Britain has nothing to fear from a Canada-style MAID model. Is he right? One in 20 Canadian deaths comes at the hands of MAID, with a total of 60,000 between 2016 and 2023. The horror stories, at first shocking, have become almost routine: Roger Foley, a disabled man, was told by hospital staff that his care would cost $1,500 a day and did he want to discuss MAID? Sathya Dhara Kovac, who couldn’t afford home-care services, wrote that “ultimately it was not a genetic disease that took me out, it was a system.” Rosina Kamis told the assessing doctors that her suffering was physical, but confessed to her two dozen YouTube subscribers that her real motive was loneliness (“I think if more people cared about me, I might be able to handle the suffering.”) Then there’s the woman whose only condition was a hip fracture and was dismayed at what her last decade might look like. The depressed man whose qualifying medical condition was a hearing problem and whose family claim he was effectively “put to death” under pressure from medical staff. The anonymized “Ms. B,” who had a chronic illness but whose request for MAID was motivated by housing problems. The many patients who have had doctors or nurses, entirely out of the blue, ask them if they have considered making an early exit. Such stories make clear that MAID can be a substitute for care. Carla Qualtrough, a former disabilities minister in Canada’s Liberal party, remarked bluntly that in parts of the country “it’s easier to access MAID than it is to get a wheelchair.” Once, it was possible to claim that a few troubling cases had been exaggerated into a trend by sensationalist newspapers. That notion was exploded by the journalist Alexander Raikin, who obtained recordings of MAID doctors conducting seminars among themselves. Repeatedly, the doctors discussed the regular cases of (as one put it) “people who would opt to die, because the social supports are so poor.” Is that the future we want in the UK?
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One thing united everyone in the assisted dying debate – the need to address the appalling underfunding of palliative and social care which inflicts so much avoidable suffering on people with terminal illnesses. I’ve written this open letter to @andyburnham because every single day at work, I see how much more dignity, comfort, meaning and joy we could enable patients to experience at the end of their life, if only palliative and oscial care weren’t so appallingly underfunded. I know it is unlikely you will ever see or read this letter, Mr Burnham. But I had to write it anyway. Because a good death – with as little suffering and loss of dignity as possible – should surely be a basic human right for us all? The underfunding of palliative care is denying too many people that right. For far too long, dying people have simply not been a government priority. You have the power to change that. As a specialist in palliative medicine, I can only hope and beg you to do so.
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WATCH: @RosieDuffield1 warns MPs that the consequences of this Bill will be the responsibility of every single member who votes for it. MPs should not simply hope the safeguards will work but remember the real consequences will fall far beyond “this room.”
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Mark Lee retweeted
Thank you to MPs who listened to concerns about the unsafe assisted dying bill. This was a victory for expertise and science over fear and for protecting the most vulnerable @EmmaLewell @soniasodha @nmdacosta @marykfoy
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I hope that somewhere, at some point, assisted dying supporters come together, not to moan about ‘democracy’ but to consider and dissect where their multi-million pound, single-issue lobby group-led, celebrity-backed and expert-ignoring campaign went wrong.
"This has turned out to be... a bad day for democracy." Former Home Secretary Lord David Blunkett, a supporter of assisted dying, after MPs voted to reject it - saying there would now not be "a genuine debate" on a change in the law. #Newsnight
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Mark Lee retweeted
It was fashionable after last assisted dying debate that to say it showed the Commons at its best. I don't think it did - it showed *some* MPs at their best but some just recounting emotional stories with little analysis or evidence, including on safeguards. Being an MP is about more than emoting. Too many bill proponents don't seem to understand that.
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Well done Parliament and congrats to all campaigners who have worked so hard for so long in defence of the most vulnerable. Now let’s fix palliative care.
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The Bill has fallen. That's democracy. Thank you to those MPs who listened to the vulnerable and to those of us professionals who work with, care for, and support patients. Whatever side you are on, let's campaign together for better Palliative Care funding and provision.
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