National PKU News provides support & resources to the PKU community. Phenylketonuria (PKU) is a rare genetic metabolic disorder that requires a low-protein diet

Montclair, NJ
Joined June 2015
PKU News@howmuchpheJul 21
Oops, @Ice_Breakers, need your help: someone who can鈥檛 have aspartame due to #pku accidentally ate some of your mints. Can you tell us how much *aspartame* there is per mint? Thanks!
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PKU News@howmuchphe31 Dec 2023
馃帀 Celebrate PKU News' transformation to @flokhealth and our community's future with a gift to flok in 2023. All gifts will be matched 馃挭 Amplify your impact and uplift our community by supporting flok today! flok.org/takeflight 馃殌
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PKU News@howmuchphe13 Sep 2023
Exciting news this #NewbornScreening Month! In Oct, National PKU News becomes flok, focusing on #PKU + more inherited metabolic disorders. We're going data-driven & staying community-led. Learn more & get updates at flok.org! #raredisease #patientledresearch
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PKU News@howmuchphe24 Aug 2023
Camp was amazing and we cannot wait for next year! Announcement: In-person Camp will be May 30 - June 2nd, 2024! Thank you to everyone who made camp possible, especially YOU campers! #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
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PKU News@howmuchphe11 Aug 2023
LAST CHANCE, VIRTUAL CAMP IS TOMORROW! It's not too late to make connections with the people who get you. Register before 8pm Pacific Time at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
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PKU News@howmuchphe7 Aug 2023
Emails are out, boxes are shipped, Virtual Camp is THIS SATURDAY!! On the fence? Act Fast! Register before 8pm Pacific Time at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
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PKU News@howmuchphe2 Aug 2023
A great team of volunteers spent last weekend packing more than 215 camp kits! Haven't registered yet? You can still join the fun on 8/12 and it's only $5 at pkunews.org/camp! #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
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PKU News@howmuchphe24 Jul 2023
The Low-Phe Life is an animated series that explores the lighter side of metabolic living! Catch the season 2 PREMIERE on August 12th! Register today at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok
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PKU News@howmuchphe13 Jul 2023
Learn a delicious new recipe and enjoy a live Q&A with Chef Brenda Winiarski as well as meal planning for *all* tolerances with Jenn Beazer RDN. Register today at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok
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PKU News@howmuchphe5 Jul 2023
Join more than 500 members of the metabolic community for VIRTUAL FAMILY CAMP on August 12th! Register now: pkunews.org/camp 馃審International 馃應 All Ages #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok
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