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headsmatter (@headsmatter) profile picture

headsmatter

@headsmatter

headsmatter. Living with brain injury - campaigning for change.

 UK
headsmatter.com
Joined July 2013
  • Tweets19.1K
  • Following1.7K
  • Followers1.3K
129Media
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Replying to @RedPepperNutri @Covid_Rehab
Interesting that large numbers of #patients currently report receiving letters discharging them from dietitian services without discussion or review. @headsmatter @NeuroAlliance @NHSEngland @s9tmt @StrokeInfo1 #COVID19 – at Uppermill, England
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Replying to @BelgianBenny @RedPepperNutri @GMNeuroAlliance @covid_rehab @headsmatter @NeuroAlliance @NHSEngland @s9tmt
Maybe experienced stroke survivors should be consulted #justSaying
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Replying to @RedPepperNutri @BelgianBenny @covid_rehab @headsmatter @NeuroAlliance @NHSEngland @s9tmt @StrokeInfo1
So we abandon sick vulnerable people already reliant on help to save others? A better plan is to provide continuity so that they too don’t end up in A&E. We completely appreciate you have families but so do carers & patients who never clock off don’t have PPE or a decent wage
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Replying to @RedPepperNutri @BelgianBenny @covid_rehab @headsmatter @NeuroAlliance @NHSEngland @s9tmt @StrokeInfo1
GM wide and across departments no we won’t be recommending complaints but supporting people to challenge decisions and stay well
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headsmatter retweeted
Ben (@BelgianBenny) profile picture
Ben@BelgianBenny29 Apr 2020
Replying to @GMNeuroAlliance @RedPepperNutri @covid_rehab @headsmatter @NeuroAlliance @NHSEngland @s9tmt @StrokeInfo1
I didn’t file a complaint... I just try to change this for the good. But I am only a little survivor, who doesn’t get heard a lot.
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Replying to @BelgianBenny @RedPepperNutri @covid_rehab @headsmatter @NeuroAlliance @NHSEngland @s9tmt @StrokeInfo1
Complaints take too long and the process is designed to fail patients but you’re not alone and together we can fight bad service and delivery. We’re not asking for gold standard but we won’t accept bargain basement either. People deserve a quality of living even in a crisis.
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After seeing an idea from a doctor on Facebook Lucy Bates, Clinical Lead in Critical Care, decided to put out her own advert & donation box in her local Co-op for pairs of knitted hearts 💕 One heart is given to a patient in critical care & the other is given to a family member.
Image from Bolton NHS Foundation Trust (@boltonnhsft)
Image from Bolton NHS Foundation Trust (@boltonnhsft)
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headsmatter retweeted
R.A (@mypointsview) profile picture
R.A@mypointsview3 Apr 2020
#Epilepsy #Coronavirus Please think of others, in times such as this. Keep in touch with your dear family and friends. Ring them up regularly. Where needed go to the shops for them.
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We're so delighted to announce from 6 April 2020 our Helpline opening hours will be extended to five days a week. You can learn more about our service here bit.ly/2R24He2 We second Richard in thanking everyone who donated and our mystery donor for making this possible 💜
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headsmatter retweeted
headsmatter (@headsmatter) profile picture
headsmatter@headsmatter3 Mar 2020
This is very worrying
GMNeuro (@GMNeuroAlliance) profile pictureGMNeuro@GMNeuroAlliance2 Mar 2020
Very concerned to learn that councils including @OldhamCouncil are reviewing policy on allocating #disabledparkingspaces outside/near to people’s homes based on affordability? Is there not a duty of care to provide safe parking for people with #disabilities @s9tmt @DVLAgovuk
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This is very worrying
GMNeuro (@GMNeuroAlliance) profile pictureGMNeuro@GMNeuroAlliance2 Mar 2020
Very concerned to learn that councils including @OldhamCouncil are reviewing policy on allocating #disabledparkingspaces outside/near to people’s homes based on affordability? Is there not a duty of care to provide safe parking for people with #disabilities @s9tmt @DVLAgovuk
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Have you signed a DS1500 form for your #MND patients to help them access benefits? The DWP wants clinicians to feedback on the current rules for terminally ill patients. Complete the survey now before 29th Feb: bit.ly/2wpGln5
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The dangers for those #livingwithbraininjury who then use #alcohol or #drugs ⁦@s9tmt⁩ ⁦@headsmatter⁩ but what #support is there outside of #rehab apple.news/ARKBuWN2EQESYs1Ui…

Man found hanged in family shed 'after being told he wasn't allowed in house'

Craig Duckett, 32, became hooked on alcohol and drugs after a traumatic brain injury - hours before his death police were called twice to his parents' Banbury home over fears for his life

apple.news
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⁦@s9tmt⁩ ⁦@headsmatter⁩ apple.news/A9EeDnqPrQv6Ya0Nu…

Gary Rhodes cause of death: Celebrity chef died of head injury, family reveal

Celebrity chef Gary Rhodes collapsed at home from a fatal head injury, his family has said.

apple.news
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Humans put into suspended animation for first time ⁦@s9tmt⁩ theguardian.com/science/2019…
Humans put into suspended animation for first time

Humans put into suspended animation for first time

Groundbreaking trial in US rapidly cools trauma victims with catastrophic injury to buy more time for surgery

theguardian.com
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headsmatter retweeted
R.A (@mypointsview) profile picture
R.A@mypointsview20 Nov 2019
#Epilepsy Until a couple of few years ago, when asked the question ‘how are you today’ my immediate response was to go on about my epilepsy. One day one of my close friends said to me ‘it would be so nice to ask that question without you going on about yourself’
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UK #charities call for end to 'gagging law' in run-up to elections ⁦@s9tmt⁩ theguardian.com/society/2019…
UK charities call for end to 'gagging law' in run-up to elections

UK charities call for end to 'gagging law' in run-up to elections

NGO leaders say Lobbying Act stops them from representing the most vulnerable in society

theguardian.com
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Replying to @Prof_A_Bateman
<< secondary care & requiring much more input than if he had rcd appropriate #rehab & #communitysupport he’s 31 his family have lost their jobs & all hope that anyone cares this is reality for 100s YES it’s #timeforchange @s9tmt @headsmatter – at Uppermill, England
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The NHS is a precious thing. Try being ill in the US if you don’t believe this ⁦@GMNeuroAlliance⁩ ⁦@s9tmt⁩ theguardian.com/society/comm…
The NHS is a precious thing. Try being ill in the US if you don’t believe this | Mary O’Hara

The NHS is a precious thing. Try being ill in the US if you don’t believe this | Mary O’Hara

If we allow US ‘big pharma’ to get its hands on the NHS, drug costs will rocket and millions will be priced out of healthcare

theguardian.com
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The Tories can’t run away from the horrors of Food Bank Britain ⁦@GMNeuroAlliance⁩ ⁦@s9tmt⁩ theguardian.com/commentisfre…
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