❤️ Our family-focused #Haemcast series with #LFWBD explores what it's really like to live with a bleeding disorder. From treatment choices and challenges, through being the partner of a person with a bleeding disorder, to the support that parents need, there's much to explore — and more coming soon. 🎧 Available across #podcast platforms and via link 🔗 loom.ly/A4UWu6M #bleedingdisorders #haemophilia #vonWillebranddisease#GlanzmannThrombasthenia #families

The#WorldMentalHealthDay theme "Lived experiences heard: Real voices, real change" speaks to us. In our research, people impacted by #bleedingdisorders tell us they need more #mentalhealth support. #Livedexperience can inform positive change in policies, services & care, and helping make the patient voice heard is a core part of why we do what we do. So, who's listening?

💙 10 October is Factor X Deficiency Awareness Day #HXFD is an extremely rare #bleedingdisorder. Diagnosis can be difficult, but early diagnosis and treatment are essential for achieving the best outcomes. We're joining the call to improve diagnosis and ensure global treatment access. Bleeding Disorders: Care & Practice (formerly The Journal of Haemophilia Practice) has published a number of articles on HXFD and its treatment, most recently case studies from India and the Philippines. Find out more here: doi.org/10.2478/jhp-2023-001… #FactorX

We're proud to share the news that Dr Kate Khair has joined the board of bleeding disorders charity Save One Life. She shares some of what has brought her there on the Haemnet blog. loom.ly/fYr3h78 #bleedingdisorders #sponsorship #blog

Results from our FVIID 360 study are now published in Haemophilia journal. FVIID 360 explored the lived experience of Factor VII deficiency, focusing in particular on psychosocial wellbeing and quality of life. With thanks to all those impacted by Factor VII deficiency who participated in the study. loom.ly/IxmOCAU #FactorVII #FVIID #research #Haemnet

💜 Immune Thrombocytopenia or #ITP is a rare autoimmune disease that causes low platelet counts, which means it's harder for the blood to clot. This can lead to easy bruising, bleeding, and fatigue, and we've learned in our research about the day-to-day impacts this can have. 💜 21-27 September is Global ITP Awareness Week, and we're joining the ITP community worldwide to advocate for education, research, and support to help improve life for people living with ITP. #Global4ITP #ITPawareness #Purple4Platelets

🚴‍♂️ Physical activity can have positive benefits for people living with a bleeding disorder. So, on UK National Fitness Day on 16 September, we’re thinking about exercise. But as the Fitness Day tagline says, it's all "Powered by You". 🏋️ Haemnet’s Project GYM resources provide guidance on exercising safely, along with expert tips on strengthening and building muscles, and advice for personal trainers. ➡️ For more on Project GYM and our exercise resources, visit loom.ly/QtJpNKs #FitnessDay #bleedingdisorders #haemophilia #exercise

💡All new articles published in Bleeding Disorders: Care & Practice now include a plain language summary, making it easier for everyone to find out about the latest bleeding disorders research. 🔗loom.ly/uIXcNF8 #BDCP #bleedingdisorders #research #haemophilia #pharmacokinetics #mentalhealth #prophylaxis #emicizumab #surgery #inhibitors

Do you have a bleeding disorder? Ever considered taking part in research? Haemnet has new #research studies starting soon – and we’re particularly interested in hearing from people with #haemophiliaB living in the UK. 🔍 To find out more about participating in our studies, get in touch: loom.ly/vkd8zoE #bleedingdisorders #livedexperience #Haemnet

For more on living with a bleeding disorder, why not explore our archives? Haemcast is available across podcast platforms, or you can tune in here: loom.ly/A4UWu6M #Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast

Does your child have a bleeding disorder? Have you ever considered taking part in research? 🌟 We have new research studies starting soon and are particularly interested in hearing from people with haemophilia B and their carers, living in the UK. 🔍 To find out more about participating in our studies, get in touch: loom.ly/vkd8zoE #bleedingdisorders #research #haemophiliaB #livedexperience

🙏 Everything we do around bleeding disorders ultimately comes down to the people who live with them and their families. A huge thank you to everyone who shares their experiences with us in research studies, blogs, #Haemcast and beyond. If you'd like to find out more about how your story can help our research, get in touch. #livedexperience #bleedingdisorders #research #podcast

The #Haemcast #podcast is taking a summer break, but you can still catch up with all episodes so far in our special collaboration with #LFWBD 🎧 Available across #podcast platforms, or listen here: loom.ly/A4UWu6M #haemophilia #VWD #vonWillebrandDisease #BleedingDisorders#families

New and forthcoming in Bleeding Disorders: Care & Practice… 🇦🇪 Khanani et al. on real-world treatment patterns and outcomes of switching to efanescotocog alfa in children with haemophilia A 🇪🇸 Benitez Hidalgo et al. on real-world pharmacokinetics of albutrepenonacog alfa (rFIX-FP) in haemophilia B 📖 Plus, Dr Kate Khair and Dr Maria E Santaella on the history and future of #BDCP 👀 loom.ly/mXo6ubE #haemophilia #RealWorldEvidence #pharmacokinetics #bleedingdisorders

New #Haemcast episode out today, focusing on what makes parents of children with #haemophilia feel supported — and when they don't. Part of our special family-focused collaboration with #LFWBD. Available widely or at loom.ly/Ye0KIjo #bleedingdisorders #podcast #families

300 million people globally live with #hepatitis, and hepatitis B & C kill over 1.3 million each year. This includes people impacted by contaminated blood. We're joining the #WorldHepatitisDay 2026 call to break down barriers that slow the global response to hepatitis. Inequities in access to healthcare, racial inequality, discrimination against women, low awareness, misinformation and stigma... Let's break it down. #WorldHepatitisDay

We're excited to hear about the new #TheBleedingEdge #podcast from @bloodstreammedia.bsky.social, which focuses on the lived experience of #GlanzmannThrombasthenia. 🎧 Episode 1 here: loom.ly/D36jz3A

We're excited to extend a warm welcome to new members of the Editorial Board of Bleeding Disorders: Care & Practice: Khalid Al Habaybia, Kara Burge, Samantha Carlson, Cyrus Njuguna Githinji, Keri Norris, Lauren Phillips, Dawn Rotellini, Kelly Tickle. #BDCP #bleedingdisorders #haemophilia #research bdcpjournal.com

More from our posters on display at #ISTH2026 🇫🇷 🔵 PB 3294: Insights from a wide cohort of adults with #haemophilia who participated in our Learning 2 Live study 🔴 PB 2738 & 2743: More results from GT360, on the impact of living with #GlanzmannThrombasthenia #ISTHCongress