@gregmryan

Advocate for all born IA/ARM. Author of “A Secret Life - Surviving a Rare Congenital Condition” & “Rare and Resilient: ONE in 5000 Anthology.”

 Melbourne
onein5000foundation.org
Joined May 2013
  • Tweets503
  • Following1.3K
  • Followers361
32Media
The long-term follow-up outcomes and transition rates across seven representative pediatric congenital surgical conditions: disease severity drives follow-up retention #some4pedsurg link.springer.com/article/10…

The long-term follow-up outcomes and transition rates across seven representative pediatric...

Pediatric Surgery International - Patients with congenital surgical conditions require lifelong follow-up. However, the transition from pediatric to adult care remains poorly established. This...

link.springer.com
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Today is a very special day as @ONEin5000 Foundation is proud to celebrate today, 20th March, as the inaugural “International Anorectal Malformations Day (ARM). This important milestone has been made possible through the collaboration of worldwide IA/ARM patient organisations🧡💙
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#anorectalmalformation #imperforateanus #vacterl #incontinence #stoma #colorectal #pedscolorectal #stigma #poo #poop #mentalhealth #internationalARMday #fyp
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#OTD, 45 years ago, Dr. Alberto Peña created the Posterior Sagittal Approach to repair Anorectal Malformations. We thank him for his creativity, sincere interest in improving the life of patients, as well as his continuous dedication to teaching other surgeons.
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Anorectal Malformations are frequently referred to as an Imperforate Anus. In reality, a true imperforate anus (blind ending rectum) is a rare anomaly that only happens in 5% of cases. youtu.be/iLwIVYDwGCY
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For those diehard #shinboners, here is a story on our beloved @NMFCOfficial #joininthechorus #kangas theme song 🦘🤍💙
North Melbourne FC@NMFCOfficial18 Jun 2025
We have a particularly special song, with two verses sung before the version played over the loudspeakers, but which is its 'true' last line? Club historian Greg Ryan investigates. #Kangas

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Are you an adult colorectal surgeon treating a patient with Anorectal Malformation and rectal prolapse? This article is for you. ✅ Patients with ARM do not have an anal canal. Perineal approaches, which are the best option in this population, need some modification. 🧵
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🚨 New EU Guidelines for Anorectal Malformation (ARM)! ✅ Prenatal detection via US/MRI ✅ Newborn screening for spinal/urological anomalies ✅ Structured long-term follow-up 📌 Standardized diagnostics = earlier, better care! thieme-connect.com/products/…
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Labor has cut funding for the Paediatric Colorectal and Pelvic Reconstruction Centre which was treating children born with debilitating conditions. Put simply, this is a heartless decision. Read my OpEd which appeared in today’s @theheraldsun here👇 michaelmccormack.com.au/medi…
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Very important piece titled “how cuts will hurt kids”written by former Australian Deputy PM @M_McCormackMP on the cruel closure of colorectal service at @RCHMelbourne @AlboMP @PeterDutton_MP @BevMcArthurMP @JacintaAllanMP @MaryAnneThomas @gedkearney michaelmccormack.com.au/medi…
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Greg Ryan OAM retweeted
Sergey Minaev
@sminaev201525 Mar 2025
Anorectal Malformations Associated with Hirschsprung Disease: Insights from a Large Cohort of 2341 ARM Patients in a Single-Center Retrospective Study #some4pedsurg #some4surgery #sminaev #ARM thieme-connect.com/products/…
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Families fight to Save Renowned Children’s Bowel Clinic from Closure at @RCHMelbourne Thanks to @MarcLevittMD for advocating and supporting the Colorectal & Pelvic Reconstruction Service in #Melbourne #Australia chng.it/VvzbNbpgDn via @ChangeAUS

Families fight to Save Renowned Children’s Bowel Clinic from Closure

Please click the attached link to the lead story on Channel 10 Melbourne news on Monday 10th March 2025. It’s great to get mainstream coverage as we continue to get the Royal Children’s Hospital...

change.org
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Rectal prolapse in Anorectal Malformation: - more common in patients with poor prognosis for bowel control - surgery should only be offered when interfering with the quality of life (excessive mucous production, bleeding, or discomfort) #SoMe4PedSurg #pedscolorectal
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Greg Ryan OAM retweeted
ERN eUROGEN@ERN_eUROGEN28 Feb 2025
🧩 New resources for #AnorectalMalformations! This #RareDiseaseDay, we’re highlighting guidelines, patient information materials & a sexual support website—all to enhance care & outcomes for ARM patients. Learn more: bit.ly/3D862Lw 💙 #EUfunded #EU4Health #SoMe4PedSurg

ERN eUROGEN Resources Available for Anorectal Malformations - ERN eUROGEN

Update: This post has been superseded. Please see our latest article on ARM resources for the current versions. ERN eUROGEN, the European Reference Network for Rare Uro-Recto-Genital Diseases and...

eurogen-ern.eu
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This Tuesday, Feb 25, the International Center for Colorectal and Urogenital Care at Children’s Hospital Colorado in partnership with @hendrenproject will be hosting a FREE Bowel Management Course. #SoMe4PedSurg Register here: us02web.zoom.us/webinar/regi…
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🌟 Join the PTN 5000 Likes Awareness Challenge! 🌟 February is Rare Disease Month, shining a light on rare diseases like Anorectal Malformations (ARM) & Hirschsprung Disease (HD), affecting 1 in 5,000 babies. Let's raise awareness, support families, & improve treatments. 💙
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Please find below article by ⁦@abcnews⁩ on the closure of the CPRS. Please share far and wide. We need this crucial service for the kids born with complex lifelong colorectal conditions. 🧡💙 #anorectalmalformation #hirschsprung #pedscolorectal abc.net.au/news/2025-02-19/c…

Specialist unit at Melbourne children's hospital runs out of funding

Parents say the closure of the colorectal unit will rob them of vital support and guidance.

abc.net.au
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Please find below link I’ve created regarding the impending closure of the Colorectal and Pelvic Reconstructive Service at the Royal Children’s Hospital, Melbourne. Please sign and share the Petition. We need this decision reversed. chng.it/6FpKY7JrmJ

Sign the Petition

Stop the impending closure of the Colorectal and Pelvic Reconstruction Service at the RCH

change.org
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@MarcLevittMD @drrichardwood @PCPLC1 @Dr_Alessandra_G @RebeccaRenteaMD @vilanovasanchez @PaedsSurgeon @nelson_rosen @ONEin5000 @martin_lacher @Pullthrunetwork @Kinder_Chirurg @JasonFrischerMD @DanDaJusta @hkearl @DrsPenaBischoff @ERN_eUROGEN #SoMe4PedSurg #pedscolorectal
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Greg Ryan OAM retweeted
@ACPGBI@ACPGBI3 Feb 2025
Anorectal prolapse after anorectal reconstruction: Incidence and risk factors according to the ARM‐Net Consortium - Stenström - 2025 - Colorectal Disease - Wiley Online Library onlinelibrary.wiley.com/doi/…

Colorectal Disease | ACPGBI Gastroenterology Journal | Wiley Online Library

Aim There is a knowledge gap regarding which patients with anorectal malformations (ARMs) are at highest risk of anorectal prolapse (AP), and which risk factors predispose to AP in ARM. The aims of...

onlinelibrary.wiley.com
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