We are changing how scientific research is done. By working to find a cure for NGLY1 Deficiency, we’re helping those suffering from countless other diseases.
Joined June 2014
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Grace Science retweeted
Matt Wilsey’s story is one of determination & innovation.
When his daughter was diagnosed with NGLY1 deficiency—an ultra-rare genetic disorder with only 130 known cases worldwide—Matt took an unconventional path: he built @gracescience, a company dedicated to curing the disease. Without a background in biology, Matt relied on relentless learning, assembling a top-tier team of scientists, and a startup mindset to tackle the problem.
Matt recently joined a16z general partner, @JorgeCondeBio, to discuss how he turned a personal tragedy into purpose, used a startup approach to drive scientific progress, and worked closely with the FDA to overcome regulatory challenges.
Listen on Raising Health: a16z.com/podcast/rare-diseas…
Grace Science retweeted
So inspired to see last week’s 2022 #NobelPrize for chemistry go to @GraceScience's @CarolynBertozzi. Her pioneering work is truly changing the world. Honored to support Carolyn & Grace Science on their mission to make rapid, life-saving advances for NGLY1 & many other diseases!
Grace Science retweeted
Congrats @CarolynBertozzi and hats off to @gracescience for advancing medical capabilities through your funding, hard work, and dedication
Excited @NobelPrize goes to friend, colleague, & grantee @CarolynBertozzi. She changed the #NGLY1 field that is poised to impact several diseases that touch millions of ppl (not just the #RareDisease we started w/). Love her rocking Grace Science "Cure All" shirt in @nytimes pic.
Grace Science retweeted
Happy Pride Month!! 🏳️🌈 We’re celebrating LGBTQ+ organic chemists all month long, starting with this week’s #WomanCrushWednesday, @CarolynBertozzi! (1/7)
Grace Science retweeted
I’m excited about the next stage of growth for @RecursionPharma as we become a public company - $RXRX! Our team has worked tirelessly to achieve this milestone and now it is time to put our heads down and get back to work on our mission! Thanks to all who have supported us!
Grace Science retweeted
There is no reason why you can’t do something kind for someone else today. Good talk. And good luck.
Grace Science retweeted
Today is #RareDiseaseDay. There are ~7000 rare diseases. Most affect children & don’t have treatments. I'm thinking about all patients, advocates & researchers who work tirelessly to cure these diseases. @gracescience is close to my heart and working to cure #NGLY1.
Grace Science retweeted
In the case of rare diseases, a support network among family members is more important than ever. I encourage those initiatives that support research and cures and I express my closeness to those who ill, especially the children, and their families.
Grace Science retweeted
There are ~7,000 rare diseases, & only 5% have FDA-approved treatments. Join @mattrwilsey (@gracescience), Leena Panwala (@INADcure), Daniel Paull (NYSCF) & @raekaaiyar (NYSCF) to hear how #stemcell research is advancing treatments & cures (2/24, 5 PM ET): us02web.zoom.us/webinar/regi…
Grace Science retweeted
What a pleasure speaking with @mattrwilsey on latest #TechTonics about his career as a political operative, tech entrepreneur, and now, and most importantly, rare disease champion - a remarkable and inspiring human being! buff.ly/3p2LsPM cc @VentureValkyrie @gracescience
Grace Science retweeted
New #TechTonics podcast: a great and inspirational chat w/ Matt Wilsey, @gracescience founder, on his journey from the White House to the SV tech world to his self-taught foray into science and biology in search of a cure venturevalkyrie.com/new-from… @DShaywitz @ManattHealth
Grace Science retweeted
A movie titled "Living with NGLY1 deficiency: Grace’s Story" has been released. The disease is studied by a project of the T-CiRA Program, a joint research between Takeda Pharmaceutical Co. Ltd. and CiRA. takeda.com/what-we-do/t-cira…
Grace Science retweeted
#CIRM Bridges Program @SFSU prepared student for research of a #raredisease @CarolynBertozzi @Stanford @gracescience @UCBerkeley bit.ly/2G7DGDW
ALT Ian Blong, Ph.D., CIRM San Francisco State University Bridges to Stem Cell Research Alumnus
Grace Science retweeted
Congratulations to the brilliant new Breakthrough Prize, New Horizons Prize and inaugural Maryam Mirzakhani New Frontiers Prize laureates: breakthroughprize.org/News/6…
Grace Science retweeted
Nothing like a parent’s love for a child in need. Awestruck, humbled & immensely proud of Matt & Kristen Wilsey’s efforts to help their daughter Grace
"The problem facing ultra-rare diseases is the lack of R&D dollars," said Matt Wilsey. "Many pharmaceutical companies avoid rare conditions because the markets are so small." stan.md/2p6CgRr
Grace Science retweeted
Grace Wilsey is one of 54 people in the world known to suffer from NGLY1 deficiency, a genetic disorder. Her father Matt Wilsey, MBA '08, used his entrepreneurial background to found @gracescience, a nonprofit dedicated to finding a cure. stanford.io/2VymsVe #RareDiseaseDay
Grace Science retweeted
Proud to know, love & support the Wilsey family! Wonderful read about the work of @gracescience & their mission to find cures for rare diseases.
Grace Wilsey is one of 54 people in the world diagnosed with NGLY1 deficiency. Her father, @mattrwilsey, MBA ’08, is on a quest to cure her ultra-rare disease.
Read our feature on the Wilseys and nonprofit @gracescience:
gsb.stanford.edu/insights/gr…
Grace Science retweeted
Grace Wilsey is one of 54 people in the world diagnosed with NGLY1 deficiency. Her father, @mattrwilsey, MBA ’08, is on a quest to cure her ultra-rare disease.
Read our feature on the Wilseys and nonprofit @gracescience:
gsb.stanford.edu/insights/gr…
