Julia Hodgson (@glenside25) profile picture

Julia Hodgson

@glenside25
Joined July 2011
  • Tweets137
  • Following64
  • Followers51
5Media
Photo by Julia Hodgson (@glenside25)Photo by Julia Hodgson (@glenside25)Photo by Julia Hodgson (@glenside25)Photo by Julia Hodgson (@glenside25)Photo by Julia Hodgson (@glenside25)
So well deserved!!!
Together for Short Lives (@Tog4ShortLives) profile pictureTogether for Short Lives@Tog4ShortLives8 Oct 2020
In tears hearing this amazing news. We could not be prouder of @itsandyfletch ✨🍾🎇 #ThirdSectorAwards Richly deserved - he will always be a winner. Andy is the best advocate for seriously ill children & families - and will not stop until we can reach every family in need.
3
Julia Hodgson retweeted
Katrina Kelly (@kk6332) profile picture
Katrina Kelly@kk63327 Oct 2020
Many of us have felt like saying #GiveMeABreak this year. With schools & nurseries open it feels like we finally have some breathing space. For families caring for a very ill child lockdown is not new, they routinely care 24/7 & respite at their local hospice is their only break:
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
3
7
Julia Hodgson retweeted
Maria Loades (@MariaLoades) profile picture
Maria Loades@MariaLoades2 Sep 2020
@Kiesha__AM, @Sadietu1 and I are designing a #research project about fatigue in teens with neuromuscular conditions. Looking for a couple of teens/parents with relevant lived experience to offer some expert input into the study design. Email kw733 AT bath.ac.uk.

University of Bath

A leading UK university with an international reputation for teaching and research excellence.

bath.ac.uk
1
2
2
1
Please share: Just launched, our survey focuses on the grief experiences & support needs of people bereaved during the pandemic either due to COVID-19 or another cause of death. cardiff.onlinesurveys.ac.uk/… @EmilyHarrop10 @Daniella_M_H @annmarienelson0 @Lucy_Selman @MarieCurieEOLC
Image from Marie Curie Research Centre, Cardiff (@MCPCRCCardiff)
4
100
14
79
Julia Hodgson retweeted
James Cooper (@James_Cooper_) profile picture
James Cooper@James_Cooper_7 Aug 2020
👇✍️ Please add your name today & share this far & wide - it's crucial that we get a new UK-wide #rarediseases strategy by the end of the year 📢 #hopeforhasti
Together for Short Lives (@Tog4ShortLives) profile pictureTogether for Short Lives@Tog4ShortLives7 Aug 2020
✏️Please sign this petition by @brannigan001 to improve care, support & treatment for children with #rarediseases. The current UK strategy for #rarediseases ends this year & we join the call on @DHSCgovuk to deliver a new framework before the end of 2020 petition.parliament.uk/petit…
3
4
Have you ever been to A&E for yourself or your child? If you have you can help @PatientsAssoc by joining an online focus group on 6 August to discuss using A&E & NHS 111. Find out more: abdullah.mahmood@patients-association.org.uk All participants will receive £100 voucher
Image from Together for Short Lives (@Tog4ShortLives)
1
2
1
This is a great opportunity to join our 📱family helpline - families caring for seriously ill children need our support more than ever. We'd love to hear from you if you have experience of working on a helpline. Why not join our friendly team? Thanks for sharing @HelplinesUK!
This Post is from an account that no longer exists. Learn more
2
4
SURVEY: We'd really like to hear from you if you are looking after a seriously ill child. Share your experiences of caring for your child & family during the #Covid19 pandemic. Along with @UoYmhrc we'll use your answers to help support families like you: isurvey.soton.ac.uk/37377
Image from Together for Short Lives (@Tog4ShortLives)
10
1
9
Do you work with children with medical complexity? @Col_Partnership wants to understand your learning needs so they can develop the right resources. Can you spare a few minutes to share your experiences of working on the frontline? 👇 Take the survey: surveymonkey.co.uk/r/MedComC…
Image from Together for Short Lives (@Tog4ShortLives)
6
4
Please share as we want to hear from as many families as possible
Together for Short Lives (@Tog4ShortLives) profile pictureTogether for Short Lives@Tog4ShortLives18 May 2020
📢Calling families caring for seriously ill children. Please share your experiences of caring for your child & family during the #Covid19 pandemic. We’re partnering with @UoYmhrc on a study to help us understand the best way to support families like you. isurvey.soton.ac.uk/37377
1
“The #MakeEveryChildCount research is pivotal & will help government, the NHS, children’s palliative care providers & others to deliver the right care & support for children with life-limiting conditions, now & in the future.” says our CEO @itsandyfletch togetherforshortlives.org.uk…
Image from Together for Short Lives (@Tog4ShortLives)
10
17
The increase in number of children with life-limiting conditions in England looks set to continue. #MakeEveryChildCount predicts that that the number will rise ⬆️ at least another 11 percent📈 by 2030. Read #MakeEveryChildCount research findings 👇 togetherforshortlives.org.uk…
Image from Together for Short Lives (@Tog4ShortLives)
5
1
8
Some great artwork @Tog4ShortLives
Together for Short Lives (@Tog4ShortLives) profile pictureTogether for Short Lives@Tog4ShortLives8 Apr 2020
We are very proud to unveil a series of artwork 🎨✏️📸 designed by children and young people with serious illnesses. The 'This is Me' project has given them a chance to share how they feel about their life and their health condition through the arts 👇 togetherforshortlives.org.uk…
Image from Together for Short Lives (@Tog4ShortLives)
2
5
We are very proud to unveil a series of artwork 🎨✏️📸 designed by children and young people with serious illnesses. The 'This is Me' project has given them a chance to share how they feel about their life and their health condition through the arts 👇 togetherforshortlives.org.uk…
Image from Together for Short Lives (@Tog4ShortLives)
1
5
6
17
📻ICYMI catch up with Our Chair @Hilary_Cass talking with @Sarah_Montague @BBCWorldatOne on #COVID19 and what this means for vulnerable children with complex medical needs and their families. ➡️Fast forward 1.22 hours bbc.co.uk/programmes/m000gsl…
4
3
5
We’ve joined with @Col_Partnership @RCPCHtweets @BACD_tweets to share tips & practical ways of dealing with #coronavirus for professionals caring for children & young people with medical complexity or a life-limiting condition. Share far & wide! 👇 togetherforshortlives.org.uk…
Image from Together for Short Lives (@Tog4ShortLives)
2
17
3
19
A rare but special piece of joyful news. Delighted Naveed has been recognised in this way for his contribution to children's palliative care. He was a complete force of nature at the APPG last year pressing parliamentarians to address the workforce crisis. Congrats Naveed.
British Academy of Childhood Disability (@BACD_tweets) profile pictureBritish Academy of Childhood Disability@BACD_tweets18 Mar 2020
Replying to @BACD_tweets
Inspirational Young Person - Naveed Hafeez, nominated by @Tog4ShortLives for his inspirational contribution to Children's Palliative Care. He attended the APPG to promote a report about the workforce shortages and how these affect his life and the care he receives
Naveed holding his award

ALT Naveed holding his award

1
1
8
Exciting to be here at the National Paediatric Hospitals Bereavement Network discussing, among others things development of the bereavement support standards for children's hospitals @Tog4ShortLives
7
Great to be in Leeds today @cbuk @Tog4ShortLives to hear more about the new landscape in neonatal palliative care (and lots more!) #cbukconf
Image from Julia Hodgson (@glenside25)
5
We'd love to hear from any budding artists, poets, photographers!
Together for Short Lives (@Tog4ShortLives) profile pictureTogether for Short Lives@Tog4ShortLives3 Feb 2020
Whether you like to paint , draw ✏️, blog 💻, write 🖊️ or take selfies 📷 - we would love for you to get involved with our creative arts project - 'This is Me.' Submit your artwork for a chance to appear at our #TfSLConf exhibition in March👇 togetherforshortlives.org.uk…
Image from Together for Short Lives (@Tog4ShortLives)
3
2
Load more